Sickle Cell Disease News Columns

June 20, 2022June 20, 2022

Building Myself Up Yet Again After Another Sickle Cell Crisis

Sickle Cell Disease News Columns

At the start of the year, I challenged myself to have zero sickle cell crises. I knew this goal was ambitious and something I’d never done as an adult, but ... Read more

June 17, 2022June 17, 2022

My Parents’ Top Tips for Raising a Child With Sickle Cell Disease

Sickle Cell Disease News Columns

In a previous column, I gave a brief overview of my family’s experience with sickle cell disease. Both my parents have the sickle cell trait, and of their four children, ... Read more

June 17, 2022June 22, 2022

My Parents’ Top Tips for Raising a Child With Sickle Cell Disease

Sickle Cell Disease News Columns

In a previous column, I gave a brief overview of my family’s experience with sickle cell disease. Both my parents have the sickle cell trait, and of their four children, ... Read more

June 13, 2022June 13, 2022

One Year On: Raising Awareness by Documenting Life With Sickle Cell Disease

Sickle Cell Disease News Columns

As World Sickle Cell Day approaches on June 19, I’ve been thinking about my contribution to raising awareness about sickle cell disease. For those dealing with the condition, sickle cell ... Read more

June 13, 2022June 22, 2022

One Year On: Raising Awareness by Documenting Life With Sickle Cell Disease

Sickle Cell Disease News Columns

As World Sickle Cell Day approaches on June 19, I’ve been thinking about my contribution to raising awareness about sickle cell disease. For those dealing with the condition, sickle cell ... Read more

June 6, 2022June 22, 2022

Learning to Be Kinder to Myself With Sickle Cell Disease

Sickle Cell Disease News Columns

I struggle with the fear of letting others down. For example, suppose someone scheduled a work meeting that is inconvenient for me. I’ll do anything to make sure I attend ... Read more

June 6, 2022June 6, 2022

Learning to Be Kinder to Myself With Sickle Cell Disease

Sickle Cell Disease News Columns

I struggle with the fear of letting others down. For example, suppose someone scheduled a work meeting that is inconvenient for me. I’ll do anything to make sure I attend ... Read more

June 3, 2022June 22, 2022

What I’ve Learned From My Family’s Experience With Sickle Cell Disease

Sickle Cell Disease News Columns

In recent columns, I have written about why knowing your genotype is imperative when planning a family, as well as the steps to take to avoid having children with sickle ... Read more

June 3, 2022June 3, 2022

What I’ve Learned From My Family’s Experience With Sickle Cell Disease

Sickle Cell Disease News Columns

In recent columns, I have written about why knowing your genotype is imperative when planning a family, as well as the steps to take to avoid having children with sickle ... Read more

May 23, 2022June 22, 2022

In Defense of the Importance of Sickle Cell Clinical Trials

COVID-19 Columns, Sickle Cell Disease News Columns

I work in the research and development field, an industry I didn’t know much about until I completed my first college degree. In this field, I’ve developed a vast understanding ... Read more

May 23, 2022May 23, 2022

In Defense of the Importance of Sickle Cell Clinical Trials

COVID-19 Columns, Sickle Cell Disease News Columns

I work in the research and development field, an industry I didn’t know much about until I completed my first college degree. In this field, I’ve developed a vast understanding ... Read more

May 20, 2022June 22, 2022

Family Planning Options for Partners With Sickle Cell Trait

Sickle Cell Disease News Columns

Living with sickle cell disease is no easy feat. At 32, I still struggle to understand my body and live as freely as I’d like. Because it’s within our power ... Read more

May 20, 2022May 20, 2022

Family Planning Options for Partners With Sickle Cell Trait

Sickle Cell Disease News Columns

Living with sickle cell disease is no easy feat. At 32, I still struggle to understand my body and live as freely as I’d like. Because it’s within our power ... Read more

May 18, 2022June 22, 2022

Managing Expectations About Life With a Chronic Illness

Sickle Cell Disease News Columns

I recently started a new job with a charity, and my new colleagues are hands down the most understanding group of people I have ever worked with.  I’ve always felt ... Read more

May 18, 2022May 18, 2022

Managing Expectations About Life With a Chronic Illness

Sickle Cell Disease News Columns

I recently started a new job with a charity, and my new colleagues are hands down the most understanding group of people I have ever worked with.  I’ve always felt ... Read more