Sickle Cell Disease News Columns

August 1, 2022August 1, 2022

Caregiving Tips to Support a Loved One With Sickle Cell Disease

Sickle Cell Disease News Columns

I have written about learning to appreciate those who support me on my journey with sickle cell disease. My support network plays a pivotal role in advocating for me when ... Read more

July 25, 2022July 25, 2022

As a Sickle Cell Patient, I Found Hope and Inspiration in a New Song

Sickle Cell Disease News Columns

Disease representation is essential in all aspects of life. Over the years, I’ve noted a few mentions of sickle cell disease in mainstream media by celebrities. I’ll never forget hearing ... Read more

July 22, 2022July 22, 2022

Sickle Cell Pain Is Made Worse by Stigmas and Bias

Sickle Cell Disease News Columns

Living with sickle cell disease means dealing with constant fatigue and painful vaso-occlusive crises. These symptoms can impede on a normal life with wide-reaching implications, such as limiting social or work ... Read more

July 18, 2022July 18, 2022

My Support Network Has Sickle Cell, Too 

Sickle Cell Disease News Columns

Every day I make a thousand and one micro-decisions to manage my health with sickle cell disease and avoid having a vaso-occlusive crisis. Most of these decisions are automatic, subconscious ... Read more

July 11, 2022July 11, 2022

I Will Keep Fighting for Greater Awareness of Sickle Cell Disease

Sickle Cell Disease News Columns

I have been a volunteer for a charity organization called Give Blood Spread Love for a couple years. We drop in on people at their work and other community establishments ... Read more

June 27, 2022June 27, 2022

Sickle Cell Crisis Treatment Includes Caring for Mental Health, Well-being

Sickle Cell Disease News Columns

I strongly advocate for mental health and well-being because I have seen the personal benefits of it. By paying attention to these issues in my life, my overall mood has ... Read more

June 20, 2022June 20, 2022

Building Myself Up Yet Again After Another Sickle Cell Crisis

Sickle Cell Disease News Columns

At the start of the year, I challenged myself to have zero sickle cell crises. I knew this goal was ambitious and something I’d never done as an adult, but ... Read more

June 17, 2022June 17, 2022

My Parents’ Top Tips for Raising a Child With Sickle Cell Disease

Sickle Cell Disease News Columns

In a previous column, I gave a brief overview of my family’s experience with sickle cell disease. Both my parents have the sickle cell trait, and of their four children, ... Read more

June 17, 2022June 22, 2022

My Parents’ Top Tips for Raising a Child With Sickle Cell Disease

Sickle Cell Disease News Columns

In a previous column, I gave a brief overview of my family’s experience with sickle cell disease. Both my parents have the sickle cell trait, and of their four children, ... Read more

June 13, 2022June 22, 2022

One Year On: Raising Awareness by Documenting Life With Sickle Cell Disease

Sickle Cell Disease News Columns

As World Sickle Cell Day approaches on June 19, I’ve been thinking about my contribution to raising awareness about sickle cell disease. For those dealing with the condition, sickle cell ... Read more

June 13, 2022June 13, 2022

One Year On: Raising Awareness by Documenting Life With Sickle Cell Disease

Sickle Cell Disease News Columns

As World Sickle Cell Day approaches on June 19, I’ve been thinking about my contribution to raising awareness about sickle cell disease. For those dealing with the condition, sickle cell ... Read more

June 6, 2022June 22, 2022

Learning to Be Kinder to Myself With Sickle Cell Disease

Sickle Cell Disease News Columns

I struggle with the fear of letting others down. For example, suppose someone scheduled a work meeting that is inconvenient for me. I’ll do anything to make sure I attend ... Read more

June 6, 2022June 6, 2022

Learning to Be Kinder to Myself With Sickle Cell Disease

Sickle Cell Disease News Columns

I struggle with the fear of letting others down. For example, suppose someone scheduled a work meeting that is inconvenient for me. I’ll do anything to make sure I attend ... Read more

June 3, 2022June 22, 2022

What I’ve Learned From My Family’s Experience With Sickle Cell Disease

Sickle Cell Disease News Columns

In recent columns, I have written about why knowing your genotype is imperative when planning a family, as well as the steps to take to avoid having children with sickle ... Read more

June 3, 2022June 3, 2022

What I’ve Learned From My Family’s Experience With Sickle Cell Disease

Sickle Cell Disease News Columns

In recent columns, I have written about why knowing your genotype is imperative when planning a family, as well as the steps to take to avoid having children with sickle ... Read more