Scleroderma News

March 21, 2019March 21, 2019

Nintedanib Submitted for Regulatory Approval to Treat SSc-ILD in US and Europe

Scleroderma News

This post was originally published on this siteThis post was originally published on this site Boehringer Ingelheim has submitted its proprietary therapy nintedanib to the ... Read more

March 19, 2019March 20, 2019

Poor SSc-PH-ILD Prognosis May be Linked to Pulmonary Veno-occlusive Disease

Scleroderma News

This post was originally published on this siteThis post was originally published on this site A high prevalence of pulmonary veno-occlusive disease (PVOD) ... Read more

March 14, 2019March 14, 2019

Brexit Could ‘Devastate’ UK Rare Disease Patients, Experts Warn

Scleroderma News

This post was originally published on this siteThis post was originally published on this site Madeline Collin, a 24-year-old activist with Gaucher disease, ... Read more

March 13, 2019March 13, 2019

Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist

Scleroderma News

This post was originally published on this siteThis post was originally published on this site With each new advance in medicine comes ethical ... Read more

March 12, 2019March 12, 2019

First Patient Dosed in Ongoing Trial to Test AVID200 for Diffuse Cutaneous Systemic Sclerosis

Scleroderma News

This post was originally published on this siteThis post was originally published on this site The first patient with diffuse cutaneous systemic sclerosis ... Read more

March 5, 2019March 5, 2019

NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

Scleroderma News

This post was originally published on this siteThis post was originally published on this site Rare diseases affect about 30 million Americans — ... Read more

February 28, 2019March 1, 2019

SSc Patients’ Health-related Quality of Life Worse Than Those With Other Rheumatoid Diseases, Study Finds

Scleroderma News

This post was originally published on this siteThis post was originally published on this site Patients with systemic sclerosis (SSc) have reduced health-related ... Read more

February 26, 2019February 26, 2019

Study Results Prompt Inventiva to End Development of Lanifibranor for Scleroderma

Scleroderma News

This post was originally published on this siteThis post was originally published on this site There was no significant difference between placebo and lanifibranor, ... Read more

February 25, 2019February 25, 2019

WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April

Scleroderma News

This post was originally published on this siteThis post was originally published on this site The world’s biggest gathering of rare disease researchers, ... Read more

February 22, 2019February 22, 2019

Vienna to Host RARE2019 Meeting on Rare Diseases

Scleroderma News

This post was originally published on this siteThis post was originally published on this site About 100 scientists, researchers, pharmaceutical executives, and others ... Read more