Scleroderma News

July 6, 2020July 6, 2020

Orencia Shows Promise in Treating Localized Scleroderma in Children, Adults

Scleroderma News

Orencia (abatacept) — an approved medication for juvenile idiopathic arthritis and other inflammatory conditions — is a safe and effective treatment for localized scleroderma in both children and adults, according ... Read more

June 29, 2020June 29, 2020

CellCept, Cyclophosphamide Both Improve Patient-reported Outcomes in SSc-ILD, Phase 2 Data Show

Scleroderma News

CellCept (mycophenolate mofetil) and cyclophosphamide can both improve the health-related quality of life of people with systemic sclerosis-related interstitial lung disease, an analysis from a Phase 2 clinical trial shows. ... Read more

June 22, 2020June 22, 2020

Rheumatology Expert to Lead Scleroderma Program at Cedars-Sinai’s Kao Institute

Scleroderma News

Francesco Boin, a nationally recognized rheumatologist, has taken over as director of the division of Rheumatology and of the new Scleroderma Program at Cedars-Sinai‘s Kao Autoimmunity Institute. Boin previously established ... Read more

June 15, 2020June 15, 2020

Shear-wave Elastography May Best Capture Changes in Skin Stiffness

Scleroderma News

A form of ultrasound imaging called shear-wave elastography (SWE) is more sensitive for assessing changes in skin stiffness over time in scleroderma (SSc) patients than the current gold standard measure, ... Read more

June 9, 2020July 11, 2020

Coalition Will Address Racial Disparities in Rare Disease Communities

COVID-19 News, Scleroderma News

The Black Women’s Health Imperative (BWHI) recently created a Rare Disease Diversity Coalition focused on reducing racial disparities in the rare disease community. Getting a timely and accurate diagnosis for ... Read more

June 8, 2020June 10, 2020

Virtual Walks, Other Activities to Spotlight Scleroderma Awareness Month

Scleroderma News

Social distancing might thin the crowds, but it won’t stop the walks, runs, and other activities planned throughout June, in support of Scleroderma Awareness Month. The events, coordinated annually by ... Read more

May 31, 2020June 1, 2020

TLY012 Receives FDA Orphan Drug Status for Systemic Scleroderma

Scleroderma News

The U.S. Food and Drug Administration has granted orphan drug designation to Theraly Fibrosis’ TLY012 for the treatment of systemic scleroderma. This designation is given to medications with the potential ... Read more

May 28, 2020June 29, 2020

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

COVID-19 News, Scleroderma News

While the ongoing COVID-19 pandemic won’t have much of an impact on cash available for new biotech startups, it has begun to cause delays in the development of gene therapies ... Read more

May 25, 2020June 25, 2020

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Scleroderma News

European authorities must step up efforts to screen babies for a multitude of genetic disorders, a panel of experts suggested during a May 14-15 online medical conference. The session was ... Read more

May 20, 2020June 19, 2020

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

COVID-19 News, Scleroderma News

Eurordis, a Paris-based coalition of national rare disease associations across Europe, hosted its first all-virtual conference, bringing some 1,500 delegates from 57 countries together online during the COVID-19 pandemic. The ... Read more

May 18, 2020May 19, 2020

Experts Issue Guidance for Care of Scleroderma Patients During COVID-19

COVID-19 News, Scleroderma News

With the World Scleroderma Foundation (WSF)’s support, experts worldwide answered questions in the form of  recommendations for scleroderma patients amid the COVID-19 outbreak, including the importance of maintaining current medications and ... Read more

May 12, 2020June 13, 2020

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

COVID-19 News, Scleroderma News

The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the COVID-19 outbreak is affecting people with rare diseases, their families, and caregivers. Survey ... Read more

May 11, 2020May 11, 2020

Lenabasum Use Seen to Lessen Inflammation, Fibrosis in Phase 2 dcSSc Trial

Scleroderma News

Treatment with lenabasum is safe and leads to clinically meaningful improvements in people with diffuse cutaneous scleroderma (dcSSc), results from Phase 2 trial show. The therapy is now being tested ... Read more

May 4, 2020May 4, 2020

Early Use of Triple Combo Seen to Treat Diffuse Cutaneous Scleroderma

Scleroderma News

A triple combination of prednisolone, cyclophosphamide and plasma exchange (plasmapheresis) was effective against skin thickening in seven of eight people with diffuse cutaneous systemic sclerosis (dcSSc), a case series study reports. These ... Read more

April 29, 2020June 1, 2020

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

COVID-19 News, Scleroderma News

While there are few silver linings to the cloud created by COVID-19, the pandemic that has killed tens of thousands, hobbled economies worldwide and drove millions to quarantine in their ... Read more