Scleroderma News

June 16, 2022June 16, 2022

FDA Clears Thermo Fisher’s Tests for Scleroderma, Lupus Diagnosis

Scleroderma News

The U.S. Food and Drug Administration (FDA) has cleared Thermo Fisher Scientific to market its blood tests for diagnosing scleroderma and systemic lupus erythematosus (SLE), two autoimmune diseases. “Autoimmune diseases ... Read more

June 9, 2022June 9, 2022

NORD’s ‘Living Rare, Living Stronger’ Patient, Family Forum Set for June 26

COVID-19 News, Scleroderma News

The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person on June 26 for a day of learning and networking in ... Read more

June 7, 2022June 7, 2022

Rituximab May Ease Arthritis in Longtime SSc, Small Study Finds

Scleroderma News

The immunosuppressant Rituximab may ease arthritis — an inflammation of the joints — in patients with long-standing systemic sclerosis (SSc), a small Turkish study found. Moreover, in some patients, skin ... Read more

June 2, 2022June 2, 2022

‘Know Scleroderma,’ Campaign Says, During June Awareness Month

Scleroderma News

June is Scleroderma Awareness Month, and the scleroderma community is working to increase awareness of this rare disease with several campaigns. In a video released at the start of the ... Read more

May 26, 2022May 26, 2022

How Stem Cell Therapy Works to Ease Skin Fibrosis in SSc Detailed

Scleroderma News

Autologous hematopoietic stem cell transplant (AHSCT) eases skin scarring in people with diffuse systemic sclerosis (SSc) by tweaking the levels of molecules involved in tissue remodeling and inflammation, a study from ... Read more

May 24, 2022May 24, 2022

Plasma Exchange May Help Ease Scleroderma’s Digestive Symptoms

Scleroderma News

Therapeutic plasma exchange may help ease digestive issues in people with limited systemic scleroderma (lcSSc), new research indicates. Edward Harris of the Scleroderma Education Project presented the findings at the American ... Read more

May 17, 2022May 17, 2022

SRF to Host New Virtual Patient Forum, Collaborating for a Cure

Scleroderma News

To kick off Scleroderma Awareness Month, the Scleroderma Research Foundation (SRF) will host a free online patient forum, Collaborating for a Cure, on June 1. The half-day forum will gather ... Read more

May 12, 2022May 13, 2022

Researchers Uncover Frequency, Features of 2 Rare SSc Subtypes

Scleroderma News

Patients with two rare subtypes of systemic sclerosis (SSc) — based on the presence of specific antibodies and the extent of skin involvement — have mild disease courses and specific ... Read more

May 10, 2022May 10, 2022

Over One-third of Patients With Autoantibodies at Risk for PH: Study

Scleroderma News

People with systemic scleroderma (SSc) who have certain autoantibodies are at increased risk of developing pulmonary hypertension, or high pressure in the blood vessels of the lungs, according to a ... Read more

May 5, 2022May 5, 2022

Digital Ulcers in SSc Result in More Tests, Visits to Doctors

Scleroderma News

Among people with systemic scleroderma (SSc), those who have digital ulcers (DUs) — sores on their fingers or toes — tend to use more healthcare resources, a new study suggests. ... Read more

May 3, 2022May 3, 2022

Botox Found to Be Effective for Treating Raynaud’s in Small Study

Scleroderma News

Local injection with botulinum toxin A (BTX-A) safely and effectively reduces Raynaud’s phenomenon (RP) and nailfold small blood vessel, or capillary, abnormalities in women with scleroderma, according to data from a ... Read more

May 2, 2022May 2, 2022

Organizations Rally to Help Ukrainian Rare Disease Patients

Scleroderma News

A Russian military plane crash near Tetiana Zamorska’s home in Kyiv, Ukraine, was a sign that it was time for her and her family to leave. The treacherous, 34-hour pilgrimage that ... Read more

April 28, 2022April 28, 2022

Gesynta Pharma’s GS-248 Wins FDA Orphan Drug Designation

Scleroderma News

The U.S. Food and Drug Administration (FDA) has granted orphan drug status to Gesynta Pharma’s GS-248, its oral therapy for people with systemic sclerosis (scleroderma). Orphan drug status aims to encourage therapies for rare ... Read more

April 26, 2022April 26, 2022

Protein Linked to Inflammation May Be Promising New Treatment Target

Scleroderma News

A protein that triggers a form of cell death driven by inflammation is present at high levels in the skin of patients with scleroderma, and this suggests it may play ... Read more

April 21, 2022April 21, 2022

Cell Therapy Results Spur Pivotal Trial in Diffuse SCL Hand Function

Scleroderma News

Fat-derived cells from adults with diffuse cutaneous scleroderma that are then injected under the skin of the hands led to clinically meaningful improvements in hand function, according to published data ... Read more