Scleroderma News Columns

October 8, 2019May 6, 2020

With Scleroderma, Exercise Comes at a Cost

Scleroderma News Columns

My cardiologist has given me the OK to go back to the gym. I’ve been waiting for his clearance for a long time. Working out at the gym was how ... Read more

October 1, 2019May 6, 2020

Finding the Glimmer of Gold Amid the Sludge of Scleroderma

Scleroderma News Columns

It has been a long few weeks of dealing with recurrent benign paroxysmal positional vertigo while trying to maintain some sense of routine in between my need for sleep. While ... Read more

September 10, 2019May 6, 2020

Grappling with My Identity as a Scleroderma Patient

Scleroderma News Columns

It’s been an eventful couple of weeks.   I am currently dealing with several crises at the same time, all of which include seriously unwell significant others. My mother has been ... Read more

August 20, 2019May 6, 2020

When Choosing My Medical Team, It’s All About Attitude

Scleroderma News Columns

In my last column, I promised to share my experience with a new cardiologist, as well as his ideas about the likely cause of my heart issues. I had been ... Read more

August 6, 2019May 6, 2020

Finding Hope in the Hospital Despite Adversity

Scleroderma News Columns

Last week began like any other. I usually play catch-up on Monday, my favorite day of the week. It gives me a chance to recover from the weekend, which generally ... Read more

July 23, 2019May 6, 2020

Puzzles Enable Me to ‘Armchair Travel’ with Scleroderma

Scleroderma News Columns

I complete many jigsaw puzzles as I rest in my recliner. I find puzzles to be an excellent way to pass the time and keep my mind occupied. I do ... Read more

July 16, 2019May 6, 2020

Navigating the Uncharted Waters of Scleroderma

Scleroderma News Columns

I like to read online about how other patients experience systemic scleroderma, especially when I encounter unusual symptoms that don’t seem to have any relevance to the disease. So far, ... Read more

July 2, 2019May 6, 2020

Is a ‘Normal Life’ Possible with Scleroderma?

Scleroderma News Columns

This morning I went for a walk. I’m trying to introduce this daily activity into my self-care program in an attempt to claw back some semblance of a “normal” life. ... Read more

June 18, 2019May 6, 2020

How I’m Surviving My Worst Waiting Room

Scleroderma News Columns

I’ve had a rough run lately. Three separate kidney infections, medications to treat them, and additional medicines to deal with the side effects of the first lot have left me ... Read more

May 28, 2019May 6, 2020

My Scleroderma Seminar Trip Was Just What the Doctor Ordered

Scleroderma News Columns

The last two weeks have been extremely challenging. Living the scleroderma lifestyle means I never know what is around the next corner. Waking up brings a daily surprise, sometimes good, ... Read more