Scleroderma News Columns

August 3, 2022August 3, 2022

How COVID-19 Has Improved Understanding of My Life With Scleroderma

COVID-19 Columns, Scleroderma News Columns

As a woman with scleroderma, I’ve faced many unknowns regarding my body and health over the last 21 years. Every day is a new adventure in my own “series of ... Read more

July 29, 2022July 29, 2022

Adapting, Accepting, and Finding Peace Despite New Scleroderma Challenges

Scleroderma News Columns

How many times have you asked yourself, “Is this scleroderma?” Odd sensations, abnormal changes, pain, and even visible deformities — there’s no shortage of strange symptoms with this disease. I ... Read more

July 27, 2022July 27, 2022

Why Can’t We Treat Each Other With Kindness and Compassion?

Scleroderma News Columns

About a month ago, I popped into Target. I grabbed a cart and started to sanitize it. While wiping the handle, I heard laughter behind me. A group of teenage ... Read more

July 22, 2022July 22, 2022

Making Today Matter Is More Important Than Worrying About Tomorrow

Scleroderma News Columns

The day after my high school prom, a group of us went to an amusement park to continue celebrating. After navigating the ticket line, I noticed a new attraction that ... Read more

July 20, 2022July 20, 2022

Scleroderma Advocacy Can Take a Physical and Emotional Toll

Scleroderma News Columns

Lately, my life has been at a standstill. For the past 15 years, I’ve found purpose in being a scleroderma advocate, using my voice to share my journey and help ... Read more

July 15, 2022July 15, 2022

Taking My Next Step Without Scleroderma’s Permission

Scleroderma News Columns

“Your life is controlled by what you focus on.” I read this Tony Robbins quote when I was diagnosed with scleroderma in 2014, and my takeaway was to focus on ... Read more

June 29, 2022June 29, 2022

Losing My Independence Due to Scleroderma Has Been Challenging

COVID-19 Columns, Scleroderma News Columns

I have always thought of myself as someone who thrives on being independent. But living with scleroderma does not afford me that luxury. Scleroderma is a major component of my ... Read more

June 22, 2022June 22, 2022

How Pain Has Manifested in My Life With Scleroderma

Scleroderma News Columns

When I was diagnosed with scleroderma 21 years ago, it was painful to learn that I was no longer an average 19-year-old who wanted to be a nurse. I was ... Read more

June 15, 2022June 15, 2022

Learning to Embrace Life Changes With Scleroderma

Scleroderma News Columns

“I use to …” I found myself saying that more and more as the years went on, despite my best efforts to maintain normalcy more than 20 years after being ... Read more

June 15, 2022June 16, 2022

Learning to Embrace Life Changes With Scleroderma

Scleroderma News Columns

“I use to …” I found myself saying that more and more as the years went on, despite my best efforts to maintain normalcy more than 20 years after being ... Read more

June 8, 2022June 8, 2022

When Living With Scleroderma’s Challenges, I Search for Inner Peace

Scleroderma News Columns

Most of the time, I try to remain positive and open-minded. I learned this a long time ago while dealing with the ups and downs of scleroderma. If I can ... Read more

June 8, 2022June 16, 2022

When Living With Scleroderma’s Challenges, I Search for Inner Peace

Scleroderma News Columns

Most of the time, I try to remain positive and open-minded. I learned this a long time ago while dealing with the ups and downs of scleroderma. If I can ... Read more

May 18, 2022May 18, 2022

Dealing With the Lingering Effects of Medication-induced Menopause

Scleroderma News Columns

Scleroderma comes with a plethora of uncommon and unbearable symptoms that may arise before or after diagnosis. For the first five years that I was living with scleroderma, I didn’t ... Read more

May 18, 2022June 16, 2022

Dealing With the Lingering Effects of Medication-induced Menopause

Scleroderma News Columns

Scleroderma comes with a plethora of uncommon and unbearable symptoms that may arise before or after diagnosis. For the first five years that I was living with scleroderma, I didn’t ... Read more

May 11, 2022May 11, 2022

My Plan to Address Dental Problems That Are Common With Scleroderma

Scleroderma News Columns

I need a root canal! I have escaped the drama of this procedure for over 40 years, but now my fate is sealed. Before my scleroderma diagnosis, people would actually ... Read more