Pulmonary Hypertension News Columns

August 1, 2022August 1, 2022

The Heart of the Matter: Grappling With the Dangers of Dehydration

Pulmonary Hypertension News Columns

I know what I’m about to say will make some of you roll your eyes, but it’s so important. Drink water every day! I’m reminding you because a scary dehydration ... Read more

July 28, 2022July 28, 2022

A Supportive Community Has Been Essential in My Health Journey

Pulmonary Hypertension News Columns

When I was 8 or 9 years old, the alarm of my IV pump went off in the middle of dance class. When you’re placed on an IV medication for ... Read more

July 27, 2022July 27, 2022

How a Friend Inspired Me to Be Proud of My Disability

Pulmonary Hypertension News Columns

After my bloodwork a few weeks ago, I stopped by a local 7-Eleven to grab an iced coffee. I parked and went in. An older man came in behind me ... Read more

July 25, 2022July 25, 2022

How PTSD Has Affected My Self-care

Pulmonary Hypertension News Columns

My son Cullen is 22, and I’ve been his primary advocate and caregiver for 14 of those years. I’ve seen him through pulmonary hypertension (PH) and heart and double-lung transplant ... Read more

July 19, 2022July 19, 2022

Air Travel With a Disability: Fitting a Square Peg Into a Round Hole

Pulmonary Hypertension News Columns

“This is humiliating,” I said to the security agent waiting for his colleague to arrive to run a test on my portable oxygen concentrator. The agent asked if I wanted ... Read more

July 18, 2022July 18, 2022

Why We Decided to Go With the Flo: Our Experience With Flolan for PH

Pulmonary Hypertension News Columns

My son Cullen was 8 when he was diagnosed with severe pulmonary hypertension (PH). His cardiologist in Washington state placed Cullen on Tracleer (bosentan) and Revatio (sildenafil). He also referred ... Read more

July 14, 2022July 14, 2022

Healing Versus Wholeness in the Face of Incurable Illness

Pulmonary Hypertension News Columns

Over the years, I’ve become familiar with it: the discomfort that others feel in the face of the incurable. When sharing my story, the sum of responses consistently averages to ... Read more

July 13, 2022July 13, 2022

In Memory of a Special PHriend, With Gratitude

Pulmonary Hypertension News Columns

Last month, I lost a friend within my rare disease community, pulmonary hypertension (PH). PH continuously takes with no regard for anyone or anything. It wasn’t the first time and ... Read more

July 11, 2022July 11, 2022

Navigating Summer Fun With a Chronic Illness

Pulmonary Hypertension News Columns

Summer is in full swing here in the U.K. Many are jetting off on holiday, and thousands flocked to the recent Glastonbury Festival. I’ve always loved summer, music festivals, heat, ... Read more

July 5, 2022July 5, 2022

A Patient’s Perspective on the 2022 PHA Conference in Atlanta

COVID-19 Columns, Pulmonary Hypertension News Columns

Before my diagnosis, pulmonary hypertension (PH) was a mystery to me. I’d never met anybody who had the disease. Sometimes finding another person with PH is just as rare as ... Read more

June 30, 2022June 30, 2022

Easing the Stress of Clinic Days for Pulmonary Hypertension Testing

Pulmonary Hypertension News Columns

The alarm sounds at an absurd hour on those days of the year when I am always up earliest. No food or coffee. And only enough water to take my ... Read more

June 27, 2022June 27, 2022

Celebrate Helen Keller Day With Optimism

Pulmonary Hypertension News Columns

On this day in 1880, a healthy baby girl named Helen Keller was born. When Helen was 19 months old, a febrile illness with no known cause struck her. Historical ... Read more

June 17, 2022June 17, 2022

My Sons Share Their Father’s Day Reflections

Pulmonary Hypertension News Columns

Experience has taught my husband, Brian, and me that life is what you make it, but you don’t always get to choose the ingredients. We have put a lot of ... Read more

June 17, 2022June 22, 2022

My Sons Share Their Father’s Day Reflections

Pulmonary Hypertension News Columns

Experience has taught my husband, Brian, and me that life is what you make it, but you don’t always get to choose the ingredients. We have put a lot of ... Read more

June 16, 2022June 16, 2022

My College Experience Was Great — and Yours Can Be, Too

Pulmonary Hypertension News Columns

When I was deciding which college to attend, my health was declining because of pulmonary hypertension (PH). That made my college decision — which for most people is marked by ... Read more