Pulmonary Fibrosis News Columns

September 25, 2020September 25, 2020

Keep the Whole System Running by Maintaining the Parts

Pulmonary Fibrosis News Columns

The medical facility at the military base where my husband is stationed is enormous. Almost every specialty you can imagine is under one roof. The first time I had an ... Read more

September 24, 2020September 24, 2020

Making Exercise Easier: Tips From a Pulmonary Fibrosis Patient

COVID-19 Columns, Pulmonary Fibrosis News Columns

Exercising with a chronic lung disease is not for the faint of heart. Recall your most strenuous workout or physical activity: Your heart beats rapidly, you struggle to catch your ... Read more

September 11, 2020September 11, 2020

Prednisone and Self-image: Transplant Side Effects We Don’t Talk About

Pulmonary Fibrosis News Columns

The University of California, San Francisco (UCSF), where my mom, Holly, received her double-lung transplant, has gone to great lengths to provide information at every turn on the transplant journey. ... Read more

September 10, 2020September 10, 2020

Pulmonary Fibrosis Is Like a Storm Cloud Over My Future

Pulmonary Fibrosis News Columns

It’s common for young adults in their early 30s to plan for their future. For some, this might include planning for a beautiful wedding or having a family. For others, ... Read more

September 3, 2020September 3, 2020

5 Household Tips to Maintain Better Respiratory Health

Pulmonary Fibrosis News Columns

As we launch into Pulmonary Fibrosis Awareness Month this September, I personally believe there’s a lot that can be done to educate others and to raise the profile of this ... Read more

August 28, 2020August 28, 2020

Embracing Caregiving: Learning to Accept a Diagnosis

Pulmonary Fibrosis News Columns

Receiving a pulmonary fibrosis diagnosis is a life-changing event. Accepting this new reality may initially seem impossible. There are so many new things to consider that never were on the ... Read more

August 27, 2020August 28, 2020

Identifying and Reducing IPF-related Stress in My Life

COVID-19 Columns, Pulmonary Fibrosis News Columns

At some point in everyone’s lives, we feel overwhelmed by the pressure to perform, whether it’s getting good grades at school, excelling at playing an instrument, or receiving a promotion ... Read more

August 20, 2020August 20, 2020

How Much Risk Can Pulmonary Fibrosis Patients Mitigate?

Pulmonary Fibrosis News Columns

The world must learn to address our widespread anxiety about the ongoing health crisis. As a patient living with idiopathic pulmonary fibrosis (IPF), a life-threatening lung disease that makes me ... Read more

August 14, 2020August 15, 2020

Lung Transplant Memories: Greatest Hits

COVID-19 Columns, Pulmonary Fibrosis News Columns

I’ve been going through a second (Third? Fourth?) wave of grief for all things pre-pandemic. I am still mourning things that once brought me joy but are currently off-limits — rugby, ... Read more

August 13, 2020August 14, 2020

Preparing for Power Outages as a Pulmonary Fibrosis Patient

Pulmonary Fibrosis News Columns

During a video call with pulmonary fibrosis (PF) advocates last week, I was informed that the U.S. Eastern Seaboard faced some terrible weather. Severe thunderstorms left many without power for ... Read more

July 30, 2020July 30, 2020

A Call to Share Your EGCG Experiences With BioNews Insights

Pulmonary Fibrosis News Columns

Have you ever suddenly realized you are part of something special? This happened to me today during a video call with other members of the BioNews Insights (BNI) team. BNI ... Read more

July 24, 2020July 29, 2020

My Hardest Days as My Mom’s Caregiver

COVID-19 Columns, Pulmonary Fibrosis News Columns

Two weeks after my mom, Holly’s, double-lung transplant, she was discharged from the hospital. Although she was weak, she was walking, talking, eating, and, best of all, breathing on her ... Read more

July 23, 2020July 28, 2020

It’s Time to Stop Stigmatizing the IPF Cough

COVID-19 Columns, Pulmonary Fibrosis News Columns

The dry, persistent cough associated with idiopathic pulmonary fibrosis (IPF) is arguably the most difficult symptom of this life-threatening lung disease. Pulmonary fibrosis is defined simply as scarring in the ... Read more

July 16, 2020July 17, 2020

Mask Controversy is Tough to Accept as a Chronically Ill Patient

COVID-19 Columns, Pulmonary Fibrosis News Columns

As a person living with idiopathic pulmonary fibrosis (IPF), a chronic respiratory condition characterized by progressive scarring of the lungs and reduced oxygen, I’ve been wearing a mask for years ... Read more

July 10, 2020July 22, 2020

Call It What You Will, Transplant Helped Mom Beat an Incurable Disease

COVID-19 Columns, Pulmonary Fibrosis News Columns

The correct way to talk about lung transplantation in relation to pulmonary fibrosis is to call it a “treatment.” I learned this early in my caregiving journey through a combination ... Read more