Prader-Willi News

September 22, 2020September 22, 2020

Low Thyroid Hormone Thyroxine Levels in PWS Children Increase With Age

Prader-Willi News

Japanese infants with Prader-Willi syndrome (PWS) have lower levels of the thyroid hormone thyroxine compared with healthy infants, according to a new study. However, the levels of thyroxine, also known ... Read more

September 17, 2020September 17, 2020

Lallemand, PWSA Become Running Partners to Support Fundraiser

Prader-Willi News

Lallemand Health Solutions has partnered with the Prader-Willi Syndrome Association (PWSA) to support Running for Research, an initiative to raise funds for PWS research at the University of Florida (UF). Running ... Read more

September 15, 2020September 15, 2020

Inversago Raises $35M to Develop Therapies for PWS, Other Disorders

Prader-Willi News

Inversago Pharma has obtained $35 million in financing to advance the development of therapies for disorders such as Prader-Willi syndrome (PWS). The investment will support studies of INV-101, the company’s lead ... Read more

September 10, 2020September 10, 2020

Researchers Detail PWS Prenatal Diagnosis Based on Noninvasive Test

Prader-Willi News

Researchers in Russia have published the first detailed description of a prenatal Prader-Willi syndrome (PWS) diagnosis based on the results of a noninvasive genetic test. The study, “Prenatal diagnosis of ... Read more

September 8, 2020September 8, 2020

At-home Exercise May Improve Bone Health in PWS Children

Prader-Willi News

An exercise intervention program can improve bone health in children with Prader-Willi syndrome (PWS) and potentially lower the risk of osteoporosis later in life, a six-month clinical trial shows. While improvements were ... Read more

September 3, 2020September 3, 2020

Gut Microbiome Differences in PWS Children Possibly Linked With Their Overeating, Study Suggests

Prader-Willi News

The types and levels of bacteria and fungi in the gastrointestinal tract are different in children with Prader-Willi syndrome (PWS) compared with their peers without the syndrome, a study has ... Read more

September 2, 2020September 3, 2020

Same But Different Photo Contest Celebrates People With Rare Diseases

Prader-Willi News

Same But Different, a U.K. nonprofit that uses the arts to bring communities together, is holding a calendar photography competition to raise awareness for rare diseases. Under the theme “A ... Read more

September 1, 2020September 1, 2020

FPWR Video Competition Seeks to Raise Awareness, Research Funds for PWS

Prader-Willi News

The Foundation for Prader-Willi Research (FPWR) is hosting a video competition to help spread awareness of Prader-Willi syndrome (PWS) and raise funds for research. The FPWR is seeking inspiring stories ... Read more

August 27, 2020August 27, 2020

Single, Wearable Motion Sensor Detects Trunk Instability, Poor Walking Symmetry in Study

Prader-Willi News

A single, wearable motion sensor placed on the lower back successfully detected poor trunk stability and walking symmetry in adults with Prader-Willi syndrome (PWS), a study showed. These findings suggest that ... Read more

August 20, 2020September 20, 2020

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Prader-Willi News

The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. The ... Read more

August 18, 2020August 19, 2020

Online Survey Seeks to Assess Potential of Telemedicine for PWS

Prader-Willi News

The Prader-Willi Syndrome Association and the Foundation for Prader-Willi Research (FPWR) have partnered to launch a survey assessing the use of telemedicine as a way of improving access to care ... Read more

August 11, 2020August 14, 2020

Lowest Dose of LV-101 Fares Well in Phase 3 Trial of PWS Children

COVID-19 News, Prader-Willi News

Children with Prader-Willi syndrome (PWS) experience significant reductions in their excessive hunger, anxiety and distress behaviors when treated with the lowest dose of Levo Therapeutics’ LV-101 (intranasal carbetocin) in a Phase 3 ... Read more

August 6, 2020August 7, 2020

Prader-Willi Seeks More Participants for COVID-19 Survey

COVID-19 News, Prader-Willi News

The International Prader-Willi Syndrome Organisation (IPWSO) is seeking more responses to its COVID-19 survey evaluating the virus’ potential risks for people with Prader-Willi syndrome (PWS). The survey seeks to answer ... Read more

July 23, 2020July 24, 2020

Study Links Structural Changes in Brain to Behavioral Problems in PWS Patients

Prader-Willi News

Structural changes in a brain region called the cerebellum are associated with behavioral problems in people with Prader-Willi syndrome (PWS), according to a study in Japan. The findings provided, for the ... Read more

July 21, 2020July 21, 2020

Non-invasive Method Could Help Detect Low-grade Inflammation, Study Suggests

Prader-Willi News

Measuring how electricity moves through the body could help detect low-grade inflammation in adults with Prader-Willi syndrome (PWS) without the need for a blood sample, a new study suggests. This ... Read more