Prader-Willi News

July 10, 2020July 11, 2020

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

Prader-Willi News

The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease Survey to measure the full implications, economic and social, of living with rare disease in ... Read more

July 9, 2020July 10, 2020

Gene’s Loss Linked to Sleep and Food Irregularities in PWS Mouse Model

Prader-Willi News

Loss of the paternal copy of Snord116, a gene associated with Prader-Willi syndrome (PWS), causes alterations in sleep and feeding responses in a mouse model of the disease, a study ... Read more

July 7, 2020July 7, 2020

Dietary Planning Helps Maintain Normal Fat Tissue Levels in PWS Children

Prader-Willi News

Regular adherence to a careful dietary plan can help children with Prader-Willi syndrome (PWS) maintain a normal amount of visceral adipose tissue, the fatty tissue around abdominal organs, a study reported. The study, ... Read more

July 2, 2020July 6, 2020

Growth Hormone Use Beyond Childhood Aids Young Adults With PWS, Study Finds

Prader-Willi News

Growth hormone treatment given for years in childhood and then either restarted or continued as patients reach adult height shows sustained positive effects on body composition among young adults with Prader-Willi ... Read more

June 25, 2020June 26, 2020

Study Links Inflammatory Molecules to Behavior Problems in PWS Children

Prader-Willi News

Children with Prader-Willi syndrome (PWS) have abnormally high blood levels of certain inflammatory molecules, which is significantly associated with behavioral traits and symptoms of the condition, a recent study has ... Read more

June 23, 2020June 23, 2020

Improved Height, Body Composition Found in PWS Patients Treated With Growth Hormone

Prader-Willi News

Growth hormone therapy improves height and body composition while lowering body mass index (BMI) in people with Prader-Willi syndrome (PWS), according to a review of clinical trials. The study, “Growth hormone treatment ... Read more

June 16, 2020June 16, 2020

Saniona Planning Phase 2b Trial of Tesomet in Controlling Hunger

Prader-Willi News

The U.S. Food and Drug Administration (FDA) gave positive feedback to Saniona regarding its work to advance Tesomet as a possible treatment to aid weight loss in people with Prader-Willi ... Read more

June 11, 2020June 12, 2020

DCCR Fails to Reduce Excessive Appetite But Improves Other Measures

COVID-19 News, Prader-Willi News

Soleno Therapeutics’ investigational oral therapy diazoxide choline controlled-release (DCCR) failed to significantly lower excessive appetite, but it did improve body composition and behavior in Prader-Willi syndrome (PWS) patients, top-line data ... Read more

June 9, 2020June 10, 2020

Lack of Vitamin D in Diet Linked to Lower Levels in PWS Patients in Study

Prader-Willi News

Vitamin D levels are lower among adults with Prader-Willi syndrome (PWS) that in other obese individuals, mainly because PWS patients tend to consume less vitamin D through their diet, a ... Read more

June 4, 2020June 4, 2020

Tracking Eye Movements Can Measure Chronic Desire to Overeat

Prader-Willi News

Tracking the eye movements of children with Prader-Willi syndrome (PWS) may be a non-invasive, low-cost, and reliable method to assess their chronic desire to overeat, known as hyperphagia, a study ... Read more

June 2, 2020June 3, 2020

Liraglutide Helped Maintain Rapid Weight Loss in Teenager With PWS

Prader-Willi News

Severe fluid and calorie restriction induced rapid weight loss that was effectively maintained with liraglutide, according to a case report of a young woman with Prader-Willi syndrome (PWS). Titled “Successful rapid weight ... Read more

May 28, 2020June 29, 2020

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

COVID-19 News, Prader-Willi News

While the ongoing COVID-19 pandemic won’t have much of an impact on cash available for new biotech startups, it has begun to cause delays in the development of gene therapies ... Read more

May 26, 2020May 26, 2020

Researchers Find Corticol Deficiency Rare in PWS, Advise Against Routine Hydrocortisone Use

Prader-Willi News

Central adrenal insufficiency, a deficiency in cortisol levels due to problems in the pituitary or hypothalamus, is rare in people with Prader-Willi syndrome (PWS), affecting 1.2% of patients, a study shows. ... Read more

May 19, 2020May 20, 2020

Patient and Caregiver Survey Aims at Healthier Lifestyle, Proper Diet

Prader-Willi News

An online survey of ways to best promote a healthier lifestyle among people with Prader-Willi syndrome (PWS) is being conducted by the University of Cambridge with support from the International Prader-Willi ... Read more

May 12, 2020May 12, 2020

FPWR Awards More Than $900,000 to Nine Grants in PWS

Prader-Willi News

The Foundation for Prader-Willi Research (FPWR) is funding nine projects that intend to improve understanding and help find treatments, including gene therapies, for Prader-Willi syndrome (PWS). In total, FPWR awarded a total ... Read more