Myasthenia Gravis News

May 26, 2020May 26, 2020

MGFA Promoting Ways to Recognize June, MG Awareness Month

From lighting up buildings to issuing local proclamations, efforts are underway to mark Myasthenia Gravis Awareness Month, observed each June for 20 years now. Coordinated annually by the Myasthenia Gravis ... Read more

May 19, 2020May 19, 2020

Thymectomy Seen to Aid Remission in Ocular MG Patients Younger Than 40

Myasthenia Gravis News

People who develop ocular myasthenia gravis (OMG) before age 40 are more likely to go into remission after surgery to remove the thymus (thymectomy), according to a Chinese study. The ... Read more

May 12, 2020May 12, 2020

Rituximab Safe and Effective in LOMG, Study Suggests

Myasthenia Gravis News

Treatment with rituximab is safe, provides clinical improvements and enables stopping maintenance therapies in patients with late-onset myasthenia gravis (LOMG), a small study suggests. The study, “Rituximab in Late‐Onset Myasthenia Gravis ... Read more

May 5, 2020May 5, 2020

Botox Injections Linked to Symptoms That Mimic Myasthenia Gravis

Myasthenia Gravis News

Injections of botulinum toxin type A — commonly known as Botox — for cosmetic or medical purposes were linked to transient side effects similar to symptoms of myasthenia gravis (MG) in two ... Read more

April 29, 2020June 1, 2020

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

COVID-19 News, Myasthenia Gravis News

While there are few silver linings to the cloud created by COVID-19, the pandemic that has killed tens of thousands, hobbled economies worldwide and drove millions to quarantine in their ... Read more

April 28, 2020April 28, 2020

Guidelines Published for Managing MG During COVID-19 Outbreak

Myasthenia Gravis News

New guidelines have been published to help patients and physicians manage myasthenia gravis (MG) and Lambert-Eaton myasthenic syndrome (LEMS) during the COVID-19 pandemic. Broadly, the guidelines suggest that people with ... Read more

April 21, 2020April 21, 2020

UCB Acquires Ra Pharma, Adds Zilucoplan to Its MG Pipeline

Myasthenia Gravis News

UCB has completed its acquisition of Ra Pharmaceuticals, priced at about $2.3 billion, meaning that zilucoplan — an investigational treatment for myasthenia gravis (MG) — is being added to UCB’s ... Read more

April 14, 2020April 14, 2020

New MG Cell Model May Best Capture How Autoantibodies Affect Muscles in MG

Myasthenia Gravis News

Cell models that best mirror the surface of muscle cells crowded with acetylcholine receptors (AChR) are most helpful for understanding how self-reacting antibodies interrupt communication between nerve cells and muscles ... Read more

April 7, 2020April 7, 2020

Soliris Suitable for gMG Patients with Myasthenic Crisis and Thymoma-associated Disease, Study Suggests

Myasthenia Gravis News

Treatment with Soliris (eculizumab) leads to significant benefits in people with treatment-resistant generalized myasthenia gravis (gMG), including those with myasthenic crisis and thymoma-associated disease, a real-world study from Japan shows. The data suggest ... Read more

April 2, 2020May 10, 2020

NORD’s Advice on COVID-19: You’re Stronger Than You Think

COVID-19 News, Myasthenia Gravis News

First, the bad news: If you’re one of the 30 million or so Americans with a rare disease, you probably have lower immunity to the novel coronavirus than most people. ... Read more

March 31, 2020March 31, 2020

Age Among Factors Affecting Survival in MG Patients with Thymoma Surgery

Myasthenia Gravis News

Younger age, more advanced thymoma (tumors of the thymus) and cancer recurrence predict poorer survival in people with myasthenia gravis (MG) whose tumors are surgically removed, a large study from ... Read more

March 27, 2020May 8, 2020

NORD Partners with ‘Sing Me a Story’ for July 18-20 Living Rare Forum

COVID-19 News, Myasthenia Gravis News

The Living Rare, Living Stronger Patient and Family Forum, originally set for May 14–16 in Cleveland, Ohio, has been postponed until July 18–20 because of the coronavirus disease COVID-19 pandemic. The ... Read more

March 25, 2020May 8, 2020

I Got Tested for COVID-19 — Here’s What It Was Like

COVID-19 Columns, Myasthenia Gravis News

I started coughing last week. Really coughing. The kind that hurts your ribs after a while, and wakes you up during the night. It’s the kind of cough that makes ... Read more

March 24, 2020March 24, 2020

Immunoglobulin Helps by How It Acts on Regulatory T-Cells, Study Finds

Myasthenia Gravis News

Intravenous immunoglobulin (IVIg) works to treat people with myasthenia gravis (MG) by increasing the numbers of regulatory immune cells that help to control autoimmune reactions in the bloodstream, an early study suggests. ... Read more

March 19, 2020March 21, 2020

Dual Immunoglobulin, Aimovig Therapies Safe for MG, Migraines, Report Says

Myasthenia Gravis News

Aimovig (erenumab) and the investigational immune therapy subcutaneous immunoglobulin (SCIg) can safely be used simultaneously to treat migraines and myasthenia gravis, according to a recent case report. Both treatments were found ... Read more