Myasthenia Gravis News

September 16, 2021September 16, 2021

MGFA Poised for 2021 Coast-to-Coast Walk 2740 Challenge

With the goal of raising funds and awareness to improve care and find a cure for myasthenia gravis (MG), the Myasthenia Gravis Foundation of America (MGFA) is hosting the 2021 ... Read more

September 14, 2021September 14, 2021

New Institute Aims to Leave No Rare Disease Patient Behind

Myasthenia Gravis News

A newly launched non-profit institute is seeking to advance research, and the development of new therapies, for people with rare diseases — a patient community with some of the largest ... Read more

September 14, 2021September 14, 2021

Swallowing Muscle Test May Help Diagnose MG

Myasthenia Gravis News

The flexible endoscopic evaluation of swallowing-tensilon test (FTT), a new diagnostic tool for myasthenia gravis (MG), can be used to distinguish people with swallowing difficulties due to MG from those ... Read more

September 13, 2021September 13, 2021

BioNews Clinical Moving to Bring Trials Into ‘Continuum’ of MG Care

Myasthenia Gravis News

A new service, BioNews Clinical is seeking to bring more patients into relevant clinical trials by helping all involved — scientists, pharmaceutical companies, people with diseases — regard these studies as part ... Read more

September 10, 2021September 10, 2021

Group Focuses on Rare Disease Clinical Trial Participation

Myasthenia Gravis News

Participation in clinical trials exposes rare disease patients to financial, physical, and emotional pressures, according to the results of a patient focus group series. “Rare disease trial participants are running ... Read more

September 9, 2021September 9, 2021

CAR T-cell Therapy Descartes-08 Eased MG Symptoms

Myasthenia Gravis News

Treatment with Descartes-08, an investigational CAR T-cell therapy, markedly eased symptoms of myasthenia gravis (MG) in three patients participating in a Phase 1/2 clinical trial assessing the therapy’s safety and ... Read more

September 7, 2021September 7, 2021

MG Genetic Risk Factor Directly Tied to Neuromuscular Junction Identified

Myasthenia Gravis News

For the first time, a genetic risk factor for myasthenia gravis (MG) has been identified that involves a gene — AGRN — coding for a protein directly involved in the activity of ... Read more

September 3, 2021September 3, 2021

‘Running for Rare’: NORD a Charity Partner of 2021 NYC Marathon

Myasthenia Gravis News

The National Organization for Rare Disorders, known as NORD, was named an official charity partner of the 2021 TCS New York City Marathon, which will be held Nov. 7 both ... Read more

September 2, 2021September 2, 2021

Differences Seen in Composition of Gut Microbiome in MG Patients

Myasthenia Gravis News

Differences in gut bacteria composition in people with myasthenia gravis (MG) may be a promising avenue to explore in developing new therapies, a study highlights. Findings suggest that these bacteria ... Read more

August 31, 2021August 31, 2021

Calprotectin, Inflammatory Protein, May Be Biomarker of MG Severity

Myasthenia Gravis News

An inflammation-associated protein called calprotectin is present at abnormally high levels in the blood of people with myasthenia gravis (MG), a new study reports. Data also suggest that levels of ... Read more

August 27, 2021August 27, 2021

‘Not Alone in the Dark’: New Guide for, by Caregivers of Children With Rare Diseases

Myasthenia Gravis News

The National Alliance for Caregiving, in partnership with Global Genes, has issued a free guidebook, available online, that offers resources and support for caregivers of children with rare diseases. “The ... Read more

August 26, 2021August 26, 2021

Efgartigimod Being Considered as Generalized MG Therapy for Europe

Myasthenia Gravis News

The European Medicines Agency (EMA) has agreed to review Argenx’s application requesting the approval of its lead candidate, efgartigimod (ARGX-113), to treat people with generalized myasthenia gravis (gMG). A regulatory ... Read more

August 24, 2021August 24, 2021

MG Severity Linked With Female Sex, Obesity and Diagnostic Delay

Myasthenia Gravis News

Myasthenia gravis (MG) tends to be more severe in people who are female, obese, or who took a long time to get diagnosed, according to a survey including nearly half ... Read more

August 19, 2021August 19, 2021

Rituximab Equally Effective in MG Patients 65 or Older, Analysis Finds

Myasthenia Gravis News

One year of rituximab therapy was effective in people with myasthenia gravis (MG) ages 65 or older, with no significant differences in response or safety seen in this older patient ... Read more

August 18, 2021August 18, 2021

Register Now for Global Genes’ RARE Patient Advocacy Summit

Myasthenia Gravis News

Registration is now open for Global Genes‘ 2021 RARE Patient Advocacy Summit. This year’s hybrid event will be livestreamed from California Sept. 27-29, and some seats also are available for attending ... Read more