Myasthenia Gravis News

June 17, 2021June 17, 2021

MG Patients Satisfied With Treatment, but Quality of Life Could Be Better, US Survey Shows

Myasthenia Gravis News

Most people with myasthenia gravis (MG) — more than 70% — are in general “satisfied” with their treatment plan, as well as with their health insurance provider, according to the ... Read more

June 16, 2021June 16, 2021

Get Ready for NORD’s Patient and Family Forum, Set for June 26-27

COVID-19 News, Myasthenia Gravis News

Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual Living Rare Living Stronger Patient and Family Forum, hosted by the ... Read more

June 15, 2021June 15, 2021

Poor Lung Function, Steroid Use Tied to Risk of Severe COVID-19

COVID-19 News, Myasthenia Gravis News

Poor lung function and disease management, along with previous long-term use of corticosteroids, older age, and the presence of cancer are the most significant predictors of severe COVID-19 among people ... Read more

June 10, 2021June 10, 2021

Study: MG Patients Not at Increased Risk for Atrial Fibrillation

Myasthenia Gravis News

People with myasthenia gravis (MG) are not at a higher risk of developing atrial fibrillation, a potentially serious heart condition that causes the heart to beat irregularly and often faster ... Read more

June 8, 2021June 8, 2021

Response to Soliris May Take Longer Than 3 Months for Some With gMG

Myasthenia Gravis News

Most generalized myasthenia gravis (gMG) patients respond to Soliris (eculizumab) within three months of treatment, but some have to wait longer to achieve clinical responses, according to a post-hoc analysis of data ... Read more

June 7, 2021June 7, 2021

Rare 2030 Action Campaign Pushing for European Plan for Rare Diseases

Myasthenia Gravis News

Eurordis opened a campaign, called Rare 2030 Action, that is seeking to establish a European action plan for rare diseases to ensure that none of the 30 million people in ... Read more

June 3, 2021June 3, 2021

Immunovant Planning Pivotal Trial of IMVT-1401

Myasthenia Gravis News

Following a review of available clinical data, Immunovant has announced plans to resume clinical testing of the investigational medication IMVT-1401 in myasthenia gravis (MG) and other autoimmune conditions. Following discussions ... Read more

June 2, 2021June 2, 2021

Advocates Can Try for Grants Ahead of Rare Disease Week on Capitol Hill

Myasthenia Gravis News

Ahead of this year’s Rare Disease Week on Capitol Hill, held virtually July 14–22, the EveryLife Foundation will award grants to top advocates of rare disease organizations who participate in ... Read more

June 1, 2021June 1, 2021

MGFA Events Set to ‘Turn Awareness Into Action’ Throughout June

Myasthenia Gravis News

From contributing to an interactive activities map to taking up challenges and advocating for local proclamations, supporters are set to mark Myasthenia Gravis Awareness Month, held each June. The aim ... Read more

May 27, 2021May 27, 2021

Thymectomy May Be Better for Early-onset MG

Myasthenia Gravis News

Thymectomy – surgical removal of the thymus gland — may be a better option for treating patients with early-onset non-thymomatous myasthenia gravis (MG), a study has found. According to study ... Read more

May 25, 2021May 25, 2021

Micro RNA Molecule miR-146a May Be Useful Diagnostic Marker

Myasthenia Gravis News

A micro RNA molecule called miR-146a was found at high levels in the blood of patients with myasthenia gravis (MG), and this is thought to contribute to disease development, a ... Read more

May 20, 2021May 20, 2021

MG Case Due to Hodgkin’s Lymphoma Highlights Link Between Diseases

Myasthenia Gravis News

The rare case of a female patient who developed myasthenia gravis (MG) in association with Hodgkin’s lymphoma, a type of blood cancer, highlighted the link between these conditions and the ... Read more

May 18, 2021May 18, 2021

MuSK-MG Tied to Poorer Outcomes in Myasthenic Crisis, Study Reports

Myasthenia Gravis News

Patients with myasthenia gravis (MG) and self-reactive antibodies against the muscle-specific kinase (MuSK) protein are more likely to have poorer outcomes when experiencing a myasthenic crisis than other MG patients, ... Read more

May 13, 2021May 13, 2021

Plasma Exchange May Be Safe, Effective as Short-term MG Therapy

Myasthenia Gravis News

A new type of plasma exchange treatment, called double-filtration plasmapheresis (DFPP), may be effective and safe for short-term relief of myasthenia gravis (MG) symptoms, a review study has found. These ... Read more

May 11, 2021May 11, 2021

Early Swallowing Difficulty Tied to Worse Outcomes

Myasthenia Gravis News

People with myasthenia gravis (MG) who have difficulty swallowing are more likely to have poor clinical outcomes, according to a recent study. Data from the study also indicates that low ... Read more