Myasthenia Gravis News Columns

May 19, 2020May 19, 2020

Myasthenia Gravis Has Made Planning for Motherhood Challenging

Myasthenia Gravis News Columns

Life with myasthenia gravis has taken some dramatic turns and created both challenges and opportunities. One of those dramatic moments was having to decide in my early 20s whether I ... Read more

May 19, 2020September 3, 2020

Myasthenia Gravis Has Made Planning for Motherhood Challenging

Myasthenia Gravis News Columns

Life with myasthenia gravis has taken some dramatic turns and created both challenges and opportunities. One of those dramatic moments was having to decide in my early 20s whether I ... Read more

March 25, 2020September 3, 2020

I Got Tested for COVID-19 — Here’s What It Was Like

COVID-19 Columns, Myasthenia Gravis News Columns

I started coughing last week. Really coughing. The kind that hurts your ribs after a while, and wakes you up during the night. It’s the kind of cough that makes ... Read more

March 18, 2020September 3, 2020

Fighting to Live During a Nationwide COVID-19 Lockdown

COVID-19 Columns, Myasthenia Gravis News Columns

On March 15, South Africa waited with bated breath for its president to address new measures to fight COVID-19. Countless messages of anticipation cycled between family and friends in those ... Read more

March 11, 2020September 3, 2020

Let’s Work Together to Stay Safe During the Coronavirus Crisis

COVID-19 Columns, Myasthenia Gravis News Columns

Last week, we had the first COVID-19 diagnosis in South Africa, and everyone immediately dashed to their panic stations. People flocked to pharmacies to buy all of the masks, hand ... Read more

March 4, 2020September 3, 2020

Expressing Gratitude: Being ‘Rare’ Has Positive Attributes, Too

Myasthenia Gravis News Columns

Being diagnosed with a rare disease is heart-wrenching and difficult, and something one usually never expects. It changes the course of a person’s life, leading them down a path filled ... Read more

February 26, 2020September 3, 2020

Being Told Your Symptoms Are ‘All in Your Head’ Has an Emotional Toll

Myasthenia Gravis News Columns

Receiving a diagnosis for a rare disease takes an average of 4.8 years, according to one study. That means almost five years of daily struggles with an unknown cause. It ... Read more

February 26, 2020May 6, 2020

Being Told Your Symptoms Are ‘All in Your Head’ Has an Emotional Toll

Myasthenia Gravis News Columns

Receiving a diagnosis for a rare disease takes an average of 4.8 years, according to one study. That means almost five years of daily struggles with an unknown cause. It ... Read more

February 19, 2020September 3, 2020

Rare Disease Day in South Africa Is a Chance to Promote Change

Myasthenia Gravis News Columns

Rare Disease Day on Feb. 29 is an important advocacy effort for every one of us fighting a rare disease, every minute of every day. It is a day for ... Read more

February 19, 2020May 6, 2020

Rare Disease Day in South Africa Is a Chance to Promote Change

Myasthenia Gravis News Columns

Rare Disease Day on Feb. 29 is an important advocacy effort for every one of us fighting a rare disease, every minute of every day. It is a day for ... Read more

February 12, 2020September 3, 2020

My Body and Mind Are Exhausted Following Chemotherapy

Myasthenia Gravis News Columns

I had chemotherapy about 10 days ago and returned to work later that day to ensure that I was on top of things before a weekend of recovery. My body ... Read more

February 12, 2020May 6, 2020

My Body and Mind Are Exhausted Following Chemotherapy

Myasthenia Gravis News Columns

I had chemotherapy about 10 days ago and returned to work later that day to ensure that I was on top of things before a weekend of recovery. My body ... Read more

February 5, 2020September 3, 2020

Hospital Smells Trigger Deep Memories of Past Treatments

Myasthenia Gravis News Columns

Last week, I visited my doctor because I could feel my health slip-sliding down a waterslide and didn’t want to end up back in the intensive care unit. When I ... Read more

February 5, 2020May 6, 2020

Hospital Smells Trigger Deep Memories of Past Treatments

Myasthenia Gravis News Columns

Last week, I visited my doctor because I could feel my health slip-sliding down a waterslide and didn’t want to end up back in the intensive care unit. When I ... Read more

January 29, 2020September 3, 2020

Looking Back at My Metaphorical Mountain

Myasthenia Gravis News Columns

A memory popped up on my Facebook page recently that left me speechless. I think that sometimes we are so busy simply placing one foot in front of the other ... Read more