Muscular Dystrophy News Columns

November 24, 2020November 24, 2020

Looking at Holiday Self-isolation in a Positive Light

COVID-19 Columns, Muscular Dystrophy News Columns

The holidays are notorious for being one of the most hectic times of the year. People jump at the opportunity to score the best deals, and they sprint to grab ... Read more

November 23, 2020November 23, 2020

Expressing Our Negative Emotions to Find Positive Ones

COVID-19 Columns, Muscular Dystrophy News Columns

I always hope to impart a positive message to my readers and exude joy in life whenever possible, but I also know it’s OK to be upset, even angry, at ... Read more

November 10, 2020November 10, 2020

Saying Goodbye to Eye Strain, Thanks to Blue-light Glasses

Muscular Dystrophy News Columns

Technology is an essential tool I use both in my social life and to be more productive at work. While it can make certain things I struggle with easier, it ... Read more

November 9, 2020November 9, 2020

How I’m Getting Out of My 2020 Funk

COVID-19 Columns, Muscular Dystrophy News Columns

If 2020 hasn’t been a challenging year for you, that’s great news. But for me, like many others, this year has been a lesson in overcoming adversity, whether it’s due ... Read more

October 20, 2020October 20, 2020

The 4 Categories of Tiredness

Muscular Dystrophy News Columns

Those of us with invisible chronic illnesses master the art of mindfulness for our bodies. Since our symptoms show little signs of existence, we must work hard to translate our ... Read more

October 19, 2020October 19, 2020

What I Learned About Life From My Dog

Muscular Dystrophy News Columns

On Sept. 29, part of my life was lost. My dog, Gus, who had been a staple of the Miller family household for 13 years, left the world. To where, ... Read more

October 6, 2020October 6, 2020

Living for Myself While Hoping for the Right Person

Muscular Dystrophy News Columns

I have clear memories of listening to my fourth-grade friends talk about what their “boyfriends” got them for Valentine’s Day, or whispering between one another during class about who liked ... Read more

October 5, 2020October 5, 2020

Removing Barriers to Employment for People With Disabilities

Muscular Dystrophy News Columns

As a journalist and person with Duchenne muscular dystrophy, I have a dual purpose. I want to inform people and hold those in power accountable. I also want to show ... Read more

September 21, 2020September 21, 2020

The Value of Having Friends With the Same Disease

Muscular Dystrophy News Columns

Over the last couple of years, I’ve had opportunities to meet and befriend more adults with Duchenne muscular dystrophy. Whether we’ve found one another through CureDuchenne events or a common ... Read more

September 14, 2020September 15, 2020

Overcoming the Idea of Being a Burden

Muscular Dystrophy News Columns

As I’ve started relying more on people for things I used to do on my own, it’s become easier to ask for help without feeling like a burden. This toxic ... Read more

August 25, 2020August 26, 2020

The Battle Against Ableism Is Tiring, but I Won’t Give Up

COVID-19 Columns, Muscular Dystrophy News Columns

A few unfortunate circumstances recently have left me mentally exhausted by the endless recurrence of ableism. It feels as though ableism lurks around every corner, waiting for the opportune moment ... Read more

August 24, 2020August 24, 2020

Why It’s Important to Be Still Amid the World’s Chaos

Muscular Dystrophy News Columns

The world can be overwhelming thanks to the deadly coronavirus pandemic, especially for someone dealing with muscular dystrophy. On top of the daily struggles — lack of mobility, physical exhaustion, ... Read more

August 11, 2020August 12, 2020

I’m Sleeping Comfortably Now, Thanks to a New Mattress

Muscular Dystrophy News Columns

Most mitochondrial myopathy patients rely on sleep as therapy for our disease. Yes, rest can be effective at regenerating lost energy, but there’s nothing comparable to a restful night’s sleep ... Read more

August 10, 2020August 10, 2020

Losing My Ability to Walk Won’t Stop Me

Muscular Dystrophy News Columns

When I was younger, I couldn’t imagine losing my ability to get up from the ground, run, or play soccer. Now I can’t imagine losing my ability to walk. At ... Read more

August 4, 2020August 4, 2020

The Angels Who’ve Profoundly Affected My Life

Muscular Dystrophy News Columns

Living with a disability often means I’m exposed to people’s true colors. This can be both positive and negative. My disease has familiarized me with the cold shoulders of family ... Read more