Muscular Dystrophy News Columns

July 29, 2022July 29, 2022

Legos Remind Me of Our Family’s Legacy of Love

Muscular Dystrophy News Columns

When you have kids’ Legos in the house, you tend to have Legos everywhere! At least, that’s how it’s always been here with my “Party of 9.” My oldest son ... Read more

July 25, 2022July 25, 2022

Overcoming Challenges by Looking at the Beautiful Pieces of Life

Muscular Dystrophy News Columns

Every second of our existence is like a puzzle piece falling into place on a seemingly endless dining room table. Some pieces are good and happy. Others are sad and ... Read more

July 22, 2022July 22, 2022

How the Kindness of Strangers Made All the Difference

Muscular Dystrophy News Columns

Being a mother to a child with special needs is a demanding job. My children need things I cannot ignore, no matter how tired or busy I am. Last week ... Read more

July 11, 2022July 11, 2022

How a Recent Fall Was a Vital Wake-up Call for Me

Muscular Dystrophy News Columns

Sometimes we need wake-up calls in life. They are near misses that tell us we need to make a change, approach a problem differently, or alter how we interact with ... Read more

July 8, 2022July 8, 2022

Reminding Myself That Not Every Day Is a Bad Day

Muscular Dystrophy News Columns

We had a tough day here this past week. Everyone was tired, and emotions were running high. After a long day, we hit a breaking point. I was going on ... Read more

July 1, 2022July 1, 2022

8 Things I Wish I Knew When My Sons Were Diagnosed With Duchenne

Muscular Dystrophy News Columns

My oldest son, Max, was diagnosed with Duchenne muscular dystrophy (DMD) on July 10, 2010. During the following year, my sons Rowen and Charlie were also diagnosed with DMD. In ... Read more

June 24, 2022June 24, 2022

Sharing My Perspective on DMD With a Fellow Columnist

Muscular Dystrophy News Columns

This week’s column is a little different than usual. Hawken Miller, a fellow Muscular Dystrophy News columnist who has Duchenne muscular dystrophy (DMD), reached out to collaborate. Hawken, who’s also ... Read more

June 20, 2022June 20, 2022

Sharing My Perspective About DMD With a Fellow Columnist

Muscular Dystrophy News Columns

This week’s column will be slightly different than normal. I reached out to fellow Muscular Dystrophy News Today columnist Betty Vertin, who has three boys with Duchenne muscular dystrophy (DMD), ... Read more

June 20, 2022June 21, 2022

Sharing My Perspective About DMD With a Fellow Columnist

Muscular Dystrophy News Columns

This week’s column will be slightly different than normal. I reached out to fellow Muscular Dystrophy News Today columnist Betty Vertin, who has three boys with Duchenne muscular dystrophy (DMD), ... Read more

June 17, 2022June 17, 2022

When Hard Things Help You With the Important Stuff

Muscular Dystrophy News Columns

Some days do not want to be good ones. We had one of those days this past Sunday. I was determined to get to church on time. From the get-go, ... Read more

June 17, 2022June 21, 2022

When Hard Things Help You With the Important Stuff

Muscular Dystrophy News Columns

Some days do not want to be good ones. We had one of those days this past Sunday. I was determined to get to church on time. From the get-go, ... Read more

June 10, 2022June 10, 2022

Finding Hope Through the Seasons of Duchenne MD

Muscular Dystrophy News Columns

The seasons are all special to me and necessary to one another. Each holds its own challenges and wonder. Here in Nebraska, we are fortunate enough to experience all four ... Read more

June 10, 2022June 21, 2022

Finding Hope Through the Seasons of Duchenne MD

Muscular Dystrophy News Columns

The seasons are all special to me and necessary to one another. Each holds its own challenges and wonder. Here in Nebraska, we are fortunate enough to experience all four ... Read more

June 6, 2022June 6, 2022

Within the Duchenne Community, I’ve Found Camaraderie, Support, and Joy

Muscular Dystrophy News Columns

A conga line of people snaked through shaded outdoor tables as the setting Florida sun warmed their faces. For all the conga lines one can imagine, this one was slightly ... Read more

June 3, 2022June 21, 2022

My Heart Is My Most Flexible Muscle

Muscular Dystrophy News Columns

Motherhood was not something I was always sure I wanted. The idea of motherhood scared me. I didn’t think I had what it took. When I think of the word ... Read more