Muscular Dystrophy News Columns

July 6, 2020July 6, 2020

Don’t Feel Bad About Calling Me ‘Inspiring’

Muscular Dystrophy News Columns

In the disabled community, many people discuss the negative implications of being called “inspiring.” Some have said it’s objectifying, reduces our humanness, or congratulates us just for being disabled.  I ... Read more

June 25, 2020June 26, 2020

Looking Backward but Living Life Forward With MD

Muscular Dystrophy News Columns

“Life can only be understood backwards; but it must be lived forwards,” said philosopher Søren Kierkegaard. He came up with an existential masterpiece. In a dozen words, Kierkegaard captured what ... Read more

June 23, 2020June 23, 2020

Dating in the Era of Coronavirus

Muscular Dystrophy News Columns

It is undeniable that the coronavirus pandemic has affected many aspects of life. Along with establishing new norms for work, school, and social interaction, the pandemic has forced romantic relationships ... Read more

June 22, 2020June 22, 2020

Creativity Allows Me to Surpass Any Physical Limits

Muscular Dystrophy News Columns

For a long time, I didn’t think journalism was a creative endeavor. I viewed the craft from an analytical perspective. After all, I was just recounting my firsthand experience publishing ... Read more

June 15, 2020June 15, 2020

Duchenne Has Forced Me to Reflect on My Own Mortality

Muscular Dystrophy News Columns

My parents tried to shield me as long as they could from data that revealed the average life expectancy of patients with Duchenne muscular dystrophy (DMD). Once I grew older ... Read more

June 11, 2020June 12, 2020

Medicare’s Role for People with Disabilities

Muscular Dystrophy News Columns

On May 1, I became eligible for Medicare. This is one of those milestones in life. I was able to access this benefit a few years early because of my ... Read more

June 9, 2020June 9, 2020

Learning to Accept My Mental Illness Through Creativity

Muscular Dystrophy News Columns

Positivity is a characteristic that I naturally possess. I seldom struggle to find the bright side of situations. Although this attribute has saved me innumerous times from acquiring a negative ... Read more

June 1, 2020June 1, 2020

What I’ve Learned from Starting a Twitch Channel

Muscular Dystrophy News Columns

When I started my Twitch channel in February, I wasn’t sure what to expect. I became quite familiar with the video game streaming platform through journalism, and finally worked up ... Read more

May 28, 2020May 28, 2020

Let’s Aim to Achieve True Global Accessibility

Muscular Dystrophy News Columns

On May 21, the world celebrated its ninth Global Accessibility Awareness Day, but accessibility awareness hasn’t yet risen to its deserved level of interest. The awareness day website shares a ... Read more

May 14, 2020May 14, 2020

Why Self-monitoring Our Functioning Levels Is Important

Muscular Dystrophy News Columns

The muscular dystrophy world is ever-evolving. I began to have symptoms of muscle loss and weakness in 2006. Science had not yet discovered my form of the illness, limb-girdle muscular ... Read more

May 11, 2020May 11, 2020

Living Joyfully Helped Me Overcome Fear, Anger, and Sadness

Muscular Dystrophy News Columns

Joy is one of the best tools we have to combat the progressive loss of our physical abilities. It’s an emotion that helps us triumph over our negative feelings. I ... Read more