Muscular Dystrophy News Columns

March 8, 2021March 8, 2021

I’m Ready to Go Forward After My 2nd Dose of the COVID-19 Vaccine

COVID-19 Columns, Muscular Dystrophy News Columns

On Feb. 19, I received my second dose of the Pfizer COVID-19 vaccine. According to the nurse who gave me the injection and clinical trial results from the biotech company, ... Read more

March 3, 2021March 3, 2021

A Hefty Guitar Impacts My Ability to Keep the Music Going

Muscular Dystrophy News Columns

When I was a kid, music from the likes of Led Zeppelin, Fleetwood Mac, and Jim Croce swirled around the house. The three were staples in my dad’s vast collection ... Read more

February 22, 2021February 22, 2021

Yes, We Are Rare, but Please Realize We Are Human First

Muscular Dystrophy News Columns

Rare Disease Day, a global push for rare disease awareness, is less than a week away, on Feb. 28. As someone with a rare disease myself, I’ve heard the word ... Read more

February 17, 2021February 17, 2021

How an Albino Direwolf Named Ghost Made Me Think About Being Rare

Muscular Dystrophy News Columns

“A white wolf in a white wood, silent as a shadow.” – “A Dance with Dragons,” George R. R. Martin I wanted to write something that encompasses the upcoming Rare ... Read more

February 8, 2021February 8, 2021

It’s Time for Me to Go Outdoors and Take in the Vitamin D

COVID-19 Columns, Muscular Dystrophy News Columns

In the last year, it’s been easy for me to coop myself up in my room and spend the entire day without stepping outside once. I’m either afraid of getting ... Read more

February 3, 2021February 3, 2021

Welcome to the Castle: Facing Down and Defeating Your Fears

Muscular Dystrophy News Columns

His palms firmly pressed against the pommel, he holds the sword close to his chest. He can feel the heat from the fire on the other side of the stone ... Read more

January 25, 2021January 25, 2021

Why I’m Taking a Break From Playing Video Games

Muscular Dystrophy News Columns

I’m a self-described gamer, and proud of it, but lately I’ve realized I’ve probably been playing too much. Two weeks ago, during online church services, we talked about fasting, including ... Read more

January 19, 2021January 19, 2021

A Bittersweet Farewell to My Column Readers

Muscular Dystrophy News Columns

Dear readers, This will be my last column for Muscular Dystrophy News. I want to thank you for following along with “You, Me, and MD” and for supporting me. You ... Read more

January 12, 2021January 12, 2021

I Make Sure My Support System Is Strong

COVID-19 Columns, Muscular Dystrophy News Columns

When I’m deep in thought, reflecting on my life, I shudder to think who and where I’d be without the support of my family and friends. Whether I need a ... Read more

January 11, 2021January 11, 2021

Why Freelancing Works for My Life With Duchenne

COVID-19 Columns, Muscular Dystrophy News Columns

Since my internship at The Washington Post, I’ve done freelance work at outlets ranging from The Forward, a Jewish-focused website, to Dot Esports, and of course, BioNews, the publisher of ... Read more

December 21, 2020December 21, 2020

It’s Time to Spread Some Holiday Cheer

Muscular Dystrophy News Columns

Christmas is upon us, and for many, it might not even feel like the holiday season at all. We’ve been forced to stay away from family, our finances are tight, ... Read more

December 8, 2020December 8, 2020

Give Yourself Some Peace of Mind This Holiday Season

Muscular Dystrophy News Columns

This year has been full of seemingly insurmountable struggles for everyone. As we resolved one hardship, another seemed to suddenly appear, creating an endless cycle that rocked our mental stability. ... Read more

December 7, 2020December 7, 2020

How to Avoid a Fall

Muscular Dystrophy News Columns

Having Duchenne muscular dystrophy is scary for a number of reasons. High up on that list is experiencing a fall. That’s especially true for those who have been on steroids ... Read more

November 24, 2020November 24, 2020

Looking at Holiday Self-isolation in a Positive Light

COVID-19 Columns, Muscular Dystrophy News Columns

The holidays are notorious for being one of the most hectic times of the year. People jump at the opportunity to score the best deals, and they sprint to grab ... Read more

November 23, 2020November 23, 2020

Expressing Our Negative Emotions to Find Positive Ones

COVID-19 Columns, Muscular Dystrophy News Columns

I always hope to impart a positive message to my readers and exude joy in life whenever possible, but I also know it’s OK to be upset, even angry, at ... Read more