Muscular Dystrophy News Columns

January 17, 2022January 17, 2022

How I Overcome Constant Worry About Life With Duchenne

Muscular Dystrophy News Columns

Having Duchenne muscular dystrophy gives me plenty of things to worry about, like scheduling doctors’ appointments on time, not knowing when I might lose my ability to do certain actions, ... Read more

January 14, 2022January 14, 2022

3 Reasons I Love Having 3 Sons With DMD

COVID-19 Columns, Muscular Dystrophy News Columns

Before COVID-19, I used to travel a lot and participate in several in-person meetings and conferences related to Duchenne muscular dystrophy (DMD). Unfortunately, having three sons with DMD is somewhat ... Read more

January 10, 2022January 10, 2022

I Outlived My Life Expectancy by Focusing on Health and Purpose

Muscular Dystrophy News Columns

Making it to 25 years old is no small feat. It means you’ve survived for a quarter of a century. While 18 is a clear demarcation between childhood and adulthood, ... Read more

January 7, 2022January 7, 2022

What I’ve Learned About Adaptive Skiing and Duchenne

Muscular Dystrophy News Columns

In a previous column, I mentioned that my family would be skiing in Winter Park, Colorado, over Christmas break. My sons Max, Rowen, and Charlie, who have Duchenne muscular dystrophy, ... Read more

December 17, 2021December 17, 2021

Coping With the Stress of Caregiving

Muscular Dystrophy News Columns

Being the mother and caregiver of three sons living with Duchenne muscular dystrophy brings a lot of stress. Much of it is everyday stress that I have learned to live ... Read more

December 10, 2021December 10, 2021

Holiday Gift Ideas for Loved Ones With DMD

Muscular Dystrophy News Columns

I often see posts in Facebook groups and other places asking about what holiday gift ideas people might have for sons with Duchenne muscular dystrophy (DMD). Duchenne can affect different ... Read more

December 8, 2021December 8, 2021

Decreasing Decision Fatigue Through Time Chunking

Muscular Dystrophy News Columns

It’s good to have you back to my column, “Hidden Truths.” I appreciate everyone who takes the time to read my reflections on life with limb-girdle muscular dystrophy. As I ... Read more

December 6, 2021December 6, 2021

Because of Duchenne, I’m Working Smarter, not Harder

Muscular Dystrophy News Columns

Millions of people around the country have quit their jobs in search of more fulfilling work, better hours, and work-from-home options in what the media is calling the “Great Resignation.” ... Read more

December 3, 2021December 3, 2021

Taking a Break During Clinic Week, Feeling a Little Guilty

Muscular Dystrophy News Columns

My husband, Jason, and my three sons with Duchenne muscular dystrophy — Max, Rowen, and Charlie — just pulled out of the driveway. They are headed to Denver for neuromuscular ... Read more

November 22, 2021November 22, 2021

Learning When to Say Yes and When to Say No

Muscular Dystrophy News Columns

Learning when to say yes and when to say no has been especially important for me as I live with Duchenne muscular dystrophy (DMD). It’s a balance between trying to ... Read more

November 19, 2021November 19, 2021

What It’s Like Having Children as a Duchenne MD Carrier

Muscular Dystrophy News Columns

I didn’t think we would ever have more children after I found out 10 years ago that I was a carrier of Duchenne muscular dystrophy. But here I am in ... Read more

November 17, 2021November 17, 2021

What Effect Does Constant Decision-making Have on Our Lives?

COVID-19 Columns, Muscular Dystrophy News Columns

Welcome back to my column, “Hidden Truths.” While I tend to write that at the beginning of most of my columns, I genuinely appreciate you checking in. You consciously decided ... Read more

November 12, 2021November 12, 2021

Moms Can Do It All, but That Doesn’t Mean We Should

Muscular Dystrophy News Columns

The title of this column comes from a meme I saw this week. Its message found me at a time when I needed to hear it. My three sons with ... Read more

November 8, 2021November 8, 2021

Why I Don’t View Myself as Disabled

Muscular Dystrophy News Columns

We form our identity from the world around us. That includes factors like our relationships with parents, siblings, and friends, what we look like, our sexual orientation, and our religious ... Read more

November 5, 2021November 5, 2021

A Look Back at a Halloween Filled With More Treats Than Tricks

Muscular Dystrophy News Columns

Halloween is over, and I’m happy to say we all got through it. While it was one of my favorite holidays when I was a kid, celebrating it with children ... Read more