Lupus News Today Columns

November 20, 2020November 20, 2020

The Difficulty of Explaining Lupus Fatigue to Others

Learning to live with lupus fatigue for nearly five years has been one of my greatest challenges, both physically and mentally. Initially, it was like someone flipped a switch in ... Read more

November 16, 2020November 16, 2020

Wrapping My Head Around the Number of Meds I Take

Lupus News Today Columns

Every morning and evening, I pull out my big bag of medications. The evenings aren’t as bad as the mornings. For the second round of the day, I take fewer ... Read more

November 16, 2020June 22, 2022

Wrapping My Head Around the Number of Meds I Take

Lupus News Today Columns

Every morning and evening, I pull out my big bag of medications. The evenings aren’t as bad as the mornings. For the second round of the day, I take fewer ... Read more

November 13, 2020November 13, 2020

Lupus Makes Me Crave Control

Lupus News Today Columns

A month ago, I quit my job as a barista in search of something different. I applied for nearly everything with only one qualifier: I didn’t want another job in ... Read more

October 26, 2020October 26, 2020

I Am Developing a Phobia of Commitments

Lupus News Today Columns

I’ve always considered myself a reliable person. If I said I would do something, it would be done. If I said I would be somewhere, I’d likely be the first ... Read more

October 16, 2020October 16, 2020

The Glory of Extraordinary Doctors

Lupus News Today Columns

In the last four years, I have played patient to some medical professionals with no regard for me as someone who needed their care. Some were more interested in telling ... Read more

October 12, 2020October 12, 2020

Figuring Out Where We All Fit In

Lupus News Today Columns

I think it’s ironic how in so many situations, we can feel alone, as if we are the only ones who feel a certain way. Then, when we share those ... Read more

October 2, 2020October 2, 2020

Because of Lupus, I Learned the Meaning of Love

Lupus News Today Columns

I had never truly understood what it means to be loved until I was diagnosed with lupus. Don’t get me wrong — I had an amazing upbringing. As a child ... Read more

September 28, 2020September 28, 2020

Am I Experiencing Karma From Past Judgmental Thoughts?

Lupus News Today Columns

There are times in my lupus battle when I feel karma is being delivered. Every bad thought I had about someone, every judgment I made, is heaped upon me. It’s ... Read more

September 18, 2020September 18, 2020

The Journey to Happiness After My Lupus Diagnosis

Lupus News Today Columns

This morning, I woke to spring sunshine streaming into my living room. After puttering around the house and watering my veggie garden, I settled in to have breakfast. And it ... Read more

September 14, 2020September 14, 2020

Responding to Religious Comments When You’re Not Religious

Lupus News Today Columns

If you want me to roll my eyes up in my head, tell me that faith will heal me. In your presence, I try to keep that visceral feeling to ... Read more

August 31, 2020August 31, 2020

I’m Growing Tired of Smiling My Way Through Compromise

Lupus News Today Columns

When I was selling homes, many first-time homebuyers wanted the world, but their budgets didn’t allow for it. I often told them that buying your first home is a series ... Read more

August 21, 2020August 21, 2020

Sometimes I Feel Like an Imposter in the Lupus Community

Lupus News Today Columns

In May 2016, I landed in the hospital for a week. Doctors wanted to find out how I had managed to gain 26 pounds from fluid retention in just two ... Read more

August 17, 2020August 17, 2020

The Mantra ‘I Have Lupus but Lupus Doesn’t Have Me’ Is Nonsense

Lupus News Today Columns

A while back, I shared a mantra I learned in the military years ago that’s been echoed by many. I had realized that the phrase I’d been indoctrinated to believe ... Read more

August 10, 2020August 10, 2020

Revisiting the Plans I Had Before the World Went Mad

Lupus News Today Columns

Last January, my visit to the U.S. turned into one of my longest hospital stays since my lupus diagnosis. I associate a lot of fear with that stay. Once it ... Read more