This has been a year of firsts for Lambert-Eaton myasthenic syndrome (LEMS) patients. Two medications approved by the U.S. Food and Drug Administration became commercially available for patients. It ... Read more

When I published my first blog post for “The Battle Within,” I was thrilled to receive a comment from a woman in Dallas named Betty Ann Lasley. Not only ... Read more

With so much recent publicity surrounding gene therapy, it’s no surprise that the topic was a major focus of the recent 2019 NORD Rare Diseases & Orphan Products Breakthrough ... Read more

Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or so Americans with rare diseases and ensuring timely, affordable access to lifesaving treatments, the nation’s ... Read more

Lambert-Eaton myasthenic syndrome (LEMS) is a rare autoimmune disease marked by muscle weakness that starts in the lower limbs. The disease can affect how well the autonomic nervous system ... Read more

When you take a plethora of medications to manage multiple chronic conditions, it’s only a matter of time before some of the side effects catch up to you. I’ve ... Read more

A rare case of non-small cell lung cancer (NSCLC) was discovered in a patient with paraneoplastic cerebellar degeneration and Lambert-Eaton myasthenic syndrome (PCD-LEMS) — the first report to link the cancer ... Read more

When I checked into my last day of immunoglobulin therapy last week, I sat next to another patient in the waiting area. She looked over at me and said: ... Read more

Many people enjoy using treatments that enhance beauty, such as Botox. For others, Botox might be used to ease migraines or treat other medical conditions. However, for patients with Lambert-Eaton ... Read more