Lambert-Eaton News

September 10, 2020September 10, 2020

Wait Between Repeat Nerve Stimulation Tests in LEMS, Researcher Advises

Lambert-Eaton News

When monitoring Lambert-Eaton myasthenic syndrome (LEMS) patients, physicians should wait at least 150 seconds between nerve stimulation tests to avoid interference from prior exercise or electric stimulation in subsequent muscle ... Read more

September 3, 2020September 3, 2020

Same But Different Photo Contest Celebrates People With Rare Diseases

Lambert-Eaton News

Same But Different, a U.K. nonprofit that uses the arts to bring communities together, is holding a calendar photography competition to raise awareness for rare diseases. Under the theme “A ... Read more

August 27, 2020August 27, 2020

Catalyst, KYE Agree to Commercialize Firdapse for Adult LEMS Patients in Canada

Lambert-Eaton News

Catalyst Pharmaceuticals and KYE Pharmaceuticals have reached an exclusive agreement that will enable KYE to commercialize Firdapse (amifampridine), Catalyst’s oral therapy for adults with Lambert-Eaton myasthenic syndrome (LEMS), in Canada. The ... Read more

August 20, 2020August 20, 2020

Health Canada Approves Ruzurgi for LEMS Patients Ages 6 or Older

Lambert-Eaton News

Health Canada has approved Ruzurgi (amifampridine) for the treatment of Lambert-Eaton myasthenic syndrome (LEMS) in individuals ages 6 or older. In Canada, the oral medication will be commercialized by Médunik ... Read more

August 19, 2020September 19, 2020

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Lambert-Eaton News

The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. The ... Read more

August 13, 2020August 13, 2020

Firdapse Approved in Canada to Treat People With LEMS

COVID-19 News, Lambert-Eaton News

Health Canada has approved the use of oral Firdapse (amifampridine) to treat people with Lambert-Eaton myasthenic syndrome (LEMS). Catalyst Pharmaceuticals‘ request for Firdapse’s approval in Canada was assigned priority review. The oral therapy ... Read more

August 10, 2020September 11, 2020

New Streaming Channel Showcases Rare Disease Films

COVID-19 News, Lambert-Eaton News

When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a new way to bring the films ... Read more

July 23, 2020July 23, 2020

Test Helps Assess Carpal Tunnel Syndrome in LEMS, Case Report Shows

Lambert-Eaton News

A post-exercise facilitation test, which measures muscle activity following voluntary muscle contraction or electrical stimulation, can help identify the effects of carpal tunnel syndrome (CTS) on nerves and muscles in ... Read more

July 9, 2020August 9, 2020

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

Lambert-Eaton News

The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease Survey to measure the full implications, economic and social, of living with rare disease in ... Read more

July 2, 2020July 6, 2020

Scientists Validate New Tool for Estimating Cancer Risk in LEMS Patients

Lambert-Eaton News

A new scoring tool can be used to effectively estimate the risk of developing small cell lung cancer (SCLC) for a person with Lambert-Eaton myasthenic syndrome (LEMS), according to a new study. ... Read more

June 22, 2020July 24, 2020

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

COVID-19 News, Lambert-Eaton News

The Alexion Charitable Foundation has awarded $1.1 million in grants to programs that support those with rare diseases during the COVID-19 pandemic, the organization recently announced. The grants will support ... Read more

June 18, 2020June 18, 2020

Specific Response Pattern to Nerve Stimulation May Help Diagnose LEMS

Lambert-Eaton News

People with Lambert-Eaton myasthenia syndrome (LEMS) have a specific response pattern to repetitive nerve stimulation — known as RNS — that may enable physicians to easily distinguish such cases from ... Read more

June 11, 2020June 12, 2020

Researchers Studying Cause of Autoimmune Diseases Awarded $1.95M Grant

Lambert-Eaton News

A $1.95 million federal grant has been awarded to researchers investigating the underlying cause of autoimmune diseases, which include Lambert-Eaton myasthenic syndrome (LEMS). Autoimmune disorders, collectively characterized by immune system ... Read more

June 9, 2020July 11, 2020

Coalition Will Address Racial Disparities in Rare Disease Communities

COVID-19 News, Lambert-Eaton News

The Black Women’s Health Imperative (BWHI) recently created a Rare Disease Diversity Coalition focused on reducing racial disparities in the rare disease community. Getting a timely and accurate diagnosis for ... Read more

June 4, 2020June 4, 2020

Autoantibodies Targeting GRP78 Protein May Cause PCD in LEMS

Lambert-Eaton News

Autoantibodies against a protein called GRP78 may lead to paraneoplastic cerebellar degeneration (PCD) in people with Lambert-Eaton myasthenic syndrome (LEMS), a study suggests. The study, “GRP78 antibodies are associated with blood-brain barrier ... Read more