Hypoparathyroidism News

June 21, 2021June 21, 2021

Blood Levels of 2 Minerals May Predict Faster Parathyroid Recovery

In people with hypoparathyroidism caused by thyroid gland removal, the combined levels of magnesium and phosphorus in the blood best predicted the short-term return to normal parathyroid function, a study ... Read more

June 17, 2021June 17, 2021

Get Ready for NORD’s Patient and Family Forum, Set for June 26-27

COVID-19 News, Hypoparathyroidism News

Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual Living Rare Living Stronger Patient and Family Forum, hosted by the ... Read more

June 14, 2021June 14, 2021

Visen Set to Start Phase 3 Trial of TransCon PTH in China

Hypoparathyroidism News

Visen Pharmaceuticals has obtained regulatory clearance to start the PaTHway China Trial, a Phase 3 study of TransCon PTH as a hormone replacement therapy for people with hypoparathyroidism in China. ... Read more

June 9, 2021June 9, 2021

Rare 2030 Action Campaign Pushing for European Plan for Rare Diseases

Hypoparathyroidism News

Eurordis opened a campaign, called Rare 2030 Action, that is seeking to establish a European action plan for rare diseases to ensure that none of the 30 million people in ... Read more

June 7, 2021June 7, 2021

Encaleret for Rare ADH1 Gets FDA Fast Track Designation

Hypoparathyroidism News

The U.S. Food and Drug Administration has granted fast track designation to encaleret, an investigational therapy for autosomal dominant hypocalcemia type 1, called ADH1, a rare genetic form of hypoparathyroidism. ... Read more

June 3, 2021June 3, 2021

Advocates Can Try for Grants Ahead of Rare Disease Week on Capitol Hill

Hypoparathyroidism News

Ahead of this year’s Rare Disease Week on Capitol Hill, held virtually July 14–22, the EveryLife Foundation will award grants to top advocates of rare disease organizations who participate in ... Read more

June 1, 2021June 1, 2021

Town Hall Meeting, Events Mark World Hypopara Awareness Day

Hypoparathyroidism News

From buying virtual lemonade drinks to participating in a town hall meeting, the hypoparathyroidism community is poised to mark World Hypopara Awareness Day, observed each June 1. Patients, caregivers, and ... Read more

May 24, 2021May 25, 2021

Calcium Deposits in Kidneys Common in Hypoparathyroidism

Hypoparathyroidism News

Calcium deposits — known as calcifications — in the kidneys and higher-than-normal levels of calcium in urine are common in people with chronic hypoparathyroidism, according to a small Danish study. ... Read more

May 17, 2021May 17, 2021

Ascendis Asking to Open TransCon PTH Trial for Adults in Japan

Hypoparathyroidism News

Ascendis Pharma is requesting regulatory permission to open a Phase 3 clinical trial in Japan, part of its program to assess TransCon PTH as a hormone replacement therapy for adults with hypoparathyroidism at ... Read more

May 10, 2021May 10, 2021

Aeterna Selects Treatment Candidate for Primary Hypoparathyroidism

Hypoparathyroidism News

Aeterna Zentaris, in collaboration with the University of Sheffield, in the U.K., selected AEZS-150 as its lead candidate for primary hypoparathyroidism and will begin formal preclinical studies to assess its ... Read more

May 3, 2021May 3, 2021

Chronic Hypoparathyroidism Linked to Higher Risk of Kidney Stones

Hypoparathyroidism News

People with chronic hypoparathyroidism have a significantly higher risk of kidney stones compared with patients without chronic disease, a large study finds. These patients also have a much greater risk ... Read more

April 26, 2021April 26, 2021

Quick Approval for COVID Vaccines a Concern, Rare Disease Patients Say

COVID-19 News, Hypoparathyroidism News

More than half of the people with rare diseases and their caregivers, asked in a survey, were undecided or less than willing to be vaccinated for COVID-19 if a vaccine ... Read more

April 19, 2021April 19, 2021

PTH Levels Predict Low Calcium After Thyroid Surgery, Can Guide Treatment

Hypoparathyroidism News

Levels of parathyroid hormone (PTH) accurately predicted hypoparathyroidism-related calcium deficiency following surgery to remove the thyroid gland, a study reported. A PTH cut-off value was established to identify those at ... Read more

April 16, 2021April 16, 2021

EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US

COVID-19 News, Hypoparathyroidism News

The EveryLife Foundation for Rare Diseases is accepting applications for a scholarship program that aims to help adults with a rare disease pursue personal goals through training and education. For a ... Read more

April 12, 2021April 12, 2021

Hypoparathyroidism After Thyroid Surgery Can Greatly Affect Life Quality

Hypoparathyroidism News

People who develop chronic hypoparathyroidism following surgery to remove the thyroid gland have significantly poorer quality of life than those whose surgery does not permanently damage the neighboring parathyroid glands, a ... Read more