Hypoparathyroidism News

January 13, 2021January 13, 2021

AZP-3601 Earns FDA’s Orphan Drug Designation

The U.S. Food and Drug Administration (FDA) has granted orphan drug designation to AZP-3601, an investigational therapy for hypoparathyroidism by Amolyt Pharma. The designation is given to treatment candidates with the potential ... Read more

January 6, 2021January 6, 2021

First Latin America Hypoparathyroidism Study Finds Poor Disease Control

Hypoparathyroidism News

People with hypoparathyroidism in Argentina, particularly those with kidney problems and high levels of phosphate in the blood, frequently experience inadequate disease control, a study found. The study is the ... Read more

December 16, 2020December 16, 2020

Long-term Forteo Found to Safely Treat Hypoparathyroidism in Boy With Jacobsen Syndrome

Hypoparathyroidism News

Long-term treatment of hypoparathyroidism with Forteo (teriparatide), a lab-made version of the parathyroid hormone, was safe and reduced the need for supplemental therapies in what researchers describe as the first ... Read more

December 9, 2020December 9, 2020

Certain Cancer Therapies May Rarely Lead to Hypoparathyroidism, Case Study Reports

Hypoparathyroidism News

Immune checkpoint inhibitors (ICIs), a type of immune therapy used to treat some cancers, may lead to the development of immune-related hypoparathyroidism, according to a case report. Although rare, this ... Read more

December 3, 2020January 4, 2021

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

Hypoparathyroidism News

To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients and their families, the National Organization for Rare Disorders (NORD) ... Read more

December 2, 2020December 2, 2020

Uncontrolled Hypoparathyroidism Leads to Substantial Burden of Illness, Surveyed Physicians Say

Hypoparathyroidism News

People with chronic hypoparathyroidism not controlled by conventional therapy may experience a substantial burden of illness and impaired quality of life, mostly due to persistent symptoms and multiple co-existing conditions. ... Read more

November 26, 2020December 28, 2020

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

COVID-19 News, Hypoparathyroidism News

The first wave of COVID-19 in Europe severely disrupted access to care and raised stress and anxiety in people with rare diseases, negatively affecting their health and well-being, according to a ... Read more

November 25, 2020November 25, 2020

Specific Thyroid Surgery Procedures Dictate Later Risk of Hypoparathyroidism

Hypoparathyroidism News

The specific surgical procedures used when patients undergo thyroid surgery — known as thyroidectomy — dictate the risks they have of developing hypoparathyroidism and other complications, a study found. Because ... Read more

November 19, 2020December 20, 2020

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

Hypoparathyroidism News

Leaders in the U.S. rare disease community came together recently for a webinar to present helpful information on how to start a nonprofit and patient registry. They shared about how ... Read more

November 18, 2020November 18, 2020

Weight Loss Surgery May Present Problems for Hypoparathyroidism Patients, Report Asserts

Hypoparathyroidism News

People with hypoparathyroidism who wish to undergo weight-loss surgery should consider possible difficulties in maintaining calcium levels within a normal range before undergoing the procedure. The case report with that ... Read more

November 11, 2020November 11, 2020

Hypoparathyroidism Risk Increases After Thyroid, Lymph Node Surgery, Study Reports

Hypoparathyroidism News

Central lymph node dissection (CLND), or the removal of lymph nodes in the neck, increases the risk of permanent hypoparathyroidism in people with papillary thyroid cancer (PTC) who are treated ... Read more

November 4, 2020December 6, 2020

NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

Hypoparathyroidism News

The National Organization for Rare Disorders (NORD)’s RareLaunch training program will host two days of free virtual workshops in December, with the aim of empowering leaders to start non-profit organizations ... Read more

October 28, 2020October 28, 2020

TransCon PTH Granted Orphan Drug Designation in Europe

Hypoparathyroidism News

The European Commission (EC) has granted orphan drug designation to Ascendis Pharma’s experimental hormone replacement therapy TransCon PTH, currently in development for the treatment of hypoparathyroidism. Medicines receiving this designation ... Read more

October 27, 2020November 30, 2020

UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

Hypoparathyroidism News

A photo of a bespectacled young boy, his red baseball cap slightly askew as he enjoys time outside, will be featured on the front cover of an upcoming calendar in ... Read more

October 21, 2020October 21, 2020

First Person Treated in Amolyt Pharma’s AZP-3601 Trial for Hypoparathyroidism

Hypoparathyroidism News

A Phase 1 clinical trial of AZP-3601, an experimental therapy designed to induce a prolonged increase in blood calcium levels in people with hypoparathyroidism, has treated the first participant. Amolyt ... Read more