Hypoparathyroidism News

June 13, 2022June 13, 2022

NORD’s ‘Living Rare, Living Stronger’ Patient, Family Forum Set for June 26

The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person on June 26 for a day of learning and networking in ... Read more

June 6, 2022June 6, 2022

AZP-3601 Treatment Still Showing Positive Results in Phase 2 Trial

Hypoparathyroidism News

Daily treatment with AZP-3601, Amolyt Pharma’s investigational therapy for hypoparathyroidism, was well tolerated and allowed patients to discontinue standard supplement treatment, early data from a Phase 2a trial show. The treatment ... Read more

May 23, 2022May 23, 2022

PTH Levels Help Predict Recovery 6 Months After Thyroid Surgery

Hypoparathyroidism News

Late recovery — longer than six months — from post-surgery hypoparathyroidism is not uncommon, and having levels of parathyroid hormone (PTH) within the normal range may indicate whether patients are ... Read more

May 9, 2022May 9, 2022

Severe COVID-19 Suspected as Cause of Temporary Hypoparathyroidism

COVID-19 News, Hypoparathyroidism News

Severe COVID-19 could lead to the development of temporary hypoparathyroidism, a case report suggests. This report represents the third case of hypoparathyroidism secondary to severe COVID-19 infection noted in scientific ... Read more

May 2, 2022May 2, 2022

Child with Hypoparathyroidism Has Kidney, Parathyroid Transplant

Hypoparathyroidism News

The dual transplant of a kidney and a parathyroid gland was safe and effective at restoring parathyroid hormone (PTH) levels and turning back kidney disease, in an 11-year-old girl with ... Read more

April 29, 2022April 29, 2022

Organizations Rally to Help Ukrainian Rare Disease Patients

Hypoparathyroidism News

A Russian military plane crash near Tetiana Zamorska’s home in Kyiv, Ukraine, was a sign that it was time for her and her family to leave. The treacherous, 34-hour pilgrimage that ... Read more

April 25, 2022April 25, 2022

Europe Awaits Proposed New Framework for Sharing Health Data

Hypoparathyroidism News

The European Commission is expected to propose a new governing framework for health data next month, called the European Health Data Space (EHDS), with the aim of connecting national health ... Read more

April 18, 2022April 18, 2022

Blood Levels of Calcium, Phosphate Appear to Affect Cognitive Skills

Hypoparathyroidism News

Slower processing speed, or longer times to take in and use information, appear to be connected to lower blood calcium and higher blood phosphate levels in people with hypoparathyroidism, a ... Read more

April 12, 2022April 12, 2022

Telehealth Added to Latest Digital-friendly NORD State Report Card

COVID-19 News, Hypoparathyroidism News

The National Organization for Rare Disorders (NORD) has updated its State Report Card to make it more digitally friendly and added telehealth to its categories of rare disease policy issues ... Read more

April 11, 2022April 11, 2022

Patients Report Reduced Quality of Life Linked to Symptoms

Hypoparathyroidism News

A significant proportion of people with hypoparathyroidism reported quality-of-life impairments, which were associated with more symptoms and an inability to work, according to a recent German survey study. A lack ... Read more

March 28, 2022March 28, 2022

FDA Rejects Changes to Natpara Cartridge, Delaying Its Relaunch

Hypoparathyroidism News

The U.S. Food and Drug Administration (FDA) has rejected Takeda Pharmaceutical’s proposed changes to address the risk of rubber fragments detaching into Natpara’s cartridge that led to the therapy’s U.S. ... Read more

March 23, 2022March 23, 2022

Increased Education Crucial to Improving Rare Disease Care, Survey Finds

Hypoparathyroidism News

Healthcare providers involved in diagnosing and treating rare diseases believe that increased physician education and collaboration with specialized facilities will have the greatest positive impact on treating these conditions over ... Read more

March 21, 2022March 21, 2022

TransCon PTH Normalizes Calcium Levels in Adults in Phase 3 Trial

Hypoparathyroidism News

Daily injections of TransCon PTH can safely and effectively normalize calcium levels in the blood and urine and eliminate the need for conventional therapy in adults with hypoparathyroidism, according to six-month ... Read more

March 16, 2022March 16, 2022

RaDaR Serves as Starting Point for Creating Rare Disease Registry

Hypoparathyroidism News

Patient registries are a hot topic of rare disease research and many organizations are taking advantage of this resource by signing up their patient communities and connecting with researchers. Eric ... Read more

March 14, 2022March 14, 2022

Hypoparathyroidism Identified as Sign of DiGeorge Syndrome in Adult Man

Hypoparathyroidism News

Symptoms of hypoparathyroidism were among the first signs of DiGeorge syndrome (DGS) in a man in whom standard treatment successfully restored calcium levels before surgery to remove his thyroid, which ... Read more