Huntington’s Disease News

September 22, 2020September 22, 2020

New book, ‘Harry Needs a Hug,’ Helps Children Who Have Huntington’s in Their Family

Huntington's Disease News

A new book is available to help children cope when a family member has Huntington’s disease. Called “Harry needs a hug: A story for children learning to deal with Huntington’s ... Read more

September 15, 2020September 15, 2020

Huntington’s in Youth Closely Tied to Problems With School and Social Life

Huntington's Disease News

Behavioral changes due to early onset Huntington’s disease and problems with school, and social and family life are common,  particularly among pediatric patients, according to a case series study in Germany. ... Read more

September 8, 2020September 8, 2020

TBK1 Enzyme Seen to Clear Mutant Huntingtin Protein in Disease Models

Huntington's Disease News

An enzyme called TANK‐binding kinase 1 (TBK1) can lower levels of the mutant huntingtin protein — which underlies the development of Huntington’s disease — and prevent its aggregation in cellular and ... Read more

September 1, 2020September 1, 2020

Huntington’s Alters Brain Development Before Birth, Study Shows

Huntington's Disease News

Huntington’s disease alters nerve cell development in the cortex — a brain region largely affected in people with the condition — before birth, a study has found. “Huntington’s definitely has ... Read more

August 31, 2020August 31, 2020

Same But Different Photo Contest Celebrates People With Rare Diseases

Huntington's Disease News

Same But Different, a U.K. nonprofit that uses the arts to bring communities together, is holding a calendar photography competition to raise awareness for rare diseases. Under the theme “A ... Read more

August 25, 2020August 26, 2020

Gut Microbiome Seen to Differ in People With Huntington’s or at Disease Risk

Huntington's Disease News

Microbes in the gut of people with Huntington’s or likely to develop this disease appear to differ from healthy peers, opening the door to potential new biomarkers and therapeutic targets, according ... Read more

August 18, 2020August 18, 2020

Antidopaminergic Meds Ease Chorea But May Worsen Cognition, Study Finds

Huntington's Disease News

Antidopaminergic medications are associated with lesser chorea and irritability in people with Huntington’s disease, but they may worsen their cognitive skills, data from the largest observational study of the disease show. Future, prospective ... Read more

August 17, 2020September 18, 2020

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Huntington's Disease News

The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. The ... Read more

August 12, 2020September 13, 2020

New Streaming Channel Showcases Rare Disease Films

Huntington's Disease News

When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a new way to bring the films ... Read more

August 11, 2020August 11, 2020

Gene Transfer Method of EPO Improves Cognition in Mouse Study

Huntington's Disease News

Administration of the hormone erythropoietin (EPO) using a gene transfer method improved spatial cognition, stimulated the branching of nerve stem cells, and preserved the brain region known as the hippocampus ... Read more

August 4, 2020August 4, 2020

Vico Therapeutics Raises $31M to Fund Advances in Central Nervous System Treatments

Huntington's Disease News

Vico Therapeutics has raised $31 million in Series A financing to continue pursuing the development of RNA modulating technologies that could potentially act as treatments for central nervous system disorders. It ... Read more

July 28, 2020July 28, 2020

Study Finds Evidence of Brain Damage in Huntington’s Decades Before Clinical Onset

Huntington's Disease News

People who will develop Huntington’s disease have subtle biological evidence of brain damage decades before the onset of symptoms, a new study indicates. This finding could be important to determine ... Read more

July 21, 2020July 21, 2020

Adequate Care Lacking for Many With Huntington’s in India, Study Finds

Huntington's Disease News

Among people with Huntington’s disease living in India, psychiatric problems are common but routine clinical follow-up is lacking, a study suggests, emphasizing the need for better symptomatic care. The study, ... Read more

July 14, 2020July 14, 2020

Natural History Study of Huntington’s Starts Enrolling Participants

Huntington's Disease News

The first patients have been enrolled in a clinical study of the natural history of Huntington’s disease (HD) and its biomarkers, to better inform how to measure and monitor early ... Read more

July 9, 2020August 9, 2020

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

Huntington's Disease News

The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease Survey to measure the full implications, economic and social, of living with rare disease in ... Read more