Friedreich’s Ataxia News Columns

June 23, 2022June 23, 2022

The Delicate Art of Fielding Questions About My Walker

Friedreich’s Ataxia News Columns

I’m frequently asked, “What happened to you?” The person asking usually points at my walker. What they’re really asking is, “Why are you using a walker?” People don’t tend to ... Read more

June 22, 2022June 22, 2022

I’m Trying Not to Feel Discouraged by My Genetic Test Results

Friedreich’s Ataxia News Columns

I eagerly kept refreshing my inbox. My local doctor’s office had called about 20 minutes earlier, letting me know that it had received my genetic test results and would forward ... Read more

June 17, 2022June 17, 2022

Even When You Don’t Think You Can, Do It Anyway

Friedreich’s Ataxia News Columns

Greetings! These summer temperatures are getting close to the triple digits down here in Alabama, and honestly, if it doesn’t involve air conditioning, I’d rather not go. I have a ... Read more

June 17, 2022June 21, 2022

Even When You Don’t Think You Can, Do It Anyway

Friedreich’s Ataxia News Columns

Greetings! These summer temperatures are getting close to the triple digits down here in Alabama, and honestly, if it doesn’t involve air conditioning, I’d rather not go. I have a ... Read more

June 16, 2022June 16, 2022

An Open Letter to My Friends, Who Support Me in Life With FA

Friedreich’s Ataxia News Columns

I often write about how important it is to have a strong village supporting you in life — not only for big things like parenting and disabilities caused by Friedreich’s ... Read more

June 16, 2022June 21, 2022

An Open Letter to My Friends, Who Support Me in Life With FA

Friedreich’s Ataxia News Columns

I often write about how important it is to have a strong village supporting you in life — not only for big things like parenting and disabilities caused by Friedreich’s ... Read more

June 14, 2022June 14, 2022

Taking My New Wheelchair on a Cruise Felt Empowering

COVID-19 Columns, Friedreich’s Ataxia News Columns

The progressive nature of Friedreich’s ataxia (FA) has been a common topic for me lately. From talking with a friend over dinner about changes I experience to discussing on my podcast the ... Read more

June 14, 2022June 21, 2022

Taking My New Wheelchair on a Cruise Felt Empowering

COVID-19 Columns, Friedreich’s Ataxia News Columns

The progressive nature of Friedreich’s ataxia (FA) has been a common topic for me lately. From talking with a friend over dinner about changes I experience to discussing on my podcast the ... Read more

June 9, 2022June 9, 2022

Conquering Villains With the Magical Power of Perspective

Friedreich’s Ataxia News Columns

I am the first to admit that I am a Disney fanatic. I have always loved the replicated ideas in Disney movies that friends and family can come together and ... Read more

June 9, 2022June 21, 2022

Conquering Villains With the Magical Power of Perspective

Friedreich’s Ataxia News Columns

I am the first to admit that I am a Disney fanatic. I have always loved the replicated ideas in Disney movies that friends and family can come together and ... Read more

June 1, 2022June 21, 2022

Seeing Yourself in ‘The Hero With a Thousand Faces’

Friedreich’s Ataxia News Columns

I wrote this speech last week for a group of middle-schoolers. I like the topic and think it is relevant for people like me, decades past the age of junior ... Read more

June 1, 2022June 1, 2022

Seeing Yourself in ‘The Hero With a Thousand Faces’

Friedreich’s Ataxia News Columns

I wrote this speech last week for a group of middle-schoolers. I like the topic and think it is relevant for people like me, decades past the age of junior ... Read more

May 26, 2022June 21, 2022

Facing an Unknown Future as My FA Symptoms Progress

Friedreich’s Ataxia News Columns

Since the beginning of my journey with Friedreich’s ataxia (FA), worries about the future have plagued me. Would I have a future? What would it look like? As I learned ... Read more

May 26, 2022May 26, 2022

Facing an Unknown Future as My FA Symptoms Progress

Friedreich’s Ataxia News Columns

Since the beginning of my journey with Friedreich’s ataxia (FA), worries about the future have plagued me. Would I have a future? What would it look like? As I learned ... Read more

May 20, 2022June 21, 2022

How to Keep Going as a Caregiver When Time Seems Short

Friedreich’s Ataxia News Columns

Welcome! Summer is not officially here yet, but the heat has definitely arrived in Alabama, where I live. The days are getting longer, and the craziness of the end of ... Read more