FAP News Today Columns

June 22, 2022June 22, 2022

Making the Right Decision at the Beginning Helped Me in the End

FAP News Today Columns

Some time has passed since I lost my husband on May 22. For nine years, Aubrey suffered from hereditary ATTR amyloidosis. Despite the toll of this disease on his body, ... Read more

June 8, 2022June 8, 2022

In This Passageway of Grief, I Also Find Hope

FAP News Today Columns

After nine years of being a caregiver to a husband afflicted with hATTR amyloidosis, I can no longer lay claim to having that role. My beloved husband of 27 years, ... Read more

June 8, 2022June 21, 2022

In This Passageway of Grief, I Also Find Hope

FAP News Today Columns

After nine years of being a caregiver to a husband afflicted with hATTR amyloidosis, I can no longer lay claim to having that role. My beloved husband of 27 years, ... Read more

June 1, 2022June 1, 2022

Now That the End Is Here, I Think Everything Will Be All Right

FAP News Today Columns

I am sitting across from my husband, Aubrey, who’s on his last leg of life with us on earth. When I look at him, I see a man who has ... Read more

June 1, 2022June 21, 2022

Now That the End Is Here, I Think Everything Will Be All Right

FAP News Today Columns

I am sitting across from my husband, Aubrey, who’s on his last leg of life with us on earth. When I look at him, I see a man who has ... Read more

May 25, 2022June 21, 2022

What Time Away From My Husband Taught Me About Love

COVID-19 Columns, FAP News Today Columns

On April 1, Malaysia’s borders reopened to international travelers following COVID-19-related closures, and I finally had the pleasure of visiting my family who lives there. I hadn’t seen them in ... Read more

May 25, 2022May 25, 2022

What Time Away From My Husband Taught Me About Love

COVID-19 Columns, FAP News Today Columns

On April 1, Malaysia’s borders reopened to international travelers following COVID-19-related closures, and I finally had the pleasure of visiting my family who lives there. I hadn’t seen them in ... Read more

May 18, 2022June 21, 2022

My Calendar Helps Me Remember Past Medical Events

FAP News Today Columns

In my work as a patient advocate for the New Zealand Amyloidosis Patients Association, I occasionally need to assemble content for the awareness projects I’m involved in. Whether it’s a ... Read more

May 18, 2022May 18, 2022

My Calendar Helps Me Remember Past Medical Events

FAP News Today Columns

In my work as a patient advocate for the New Zealand Amyloidosis Patients Association, I occasionally need to assemble content for the awareness projects I’m involved in. Whether it’s a ... Read more

May 11, 2022June 21, 2022

Taking a Break From Caregiving to Visit Family

FAP News Today Columns

After almost three years of not seeing my family, I’m finally back in Malaysia to spend some quality time with my father, siblings, and children. More important, I can receive ... Read more

May 11, 2022May 11, 2022

Taking a Break From Caregiving to Visit Family

FAP News Today Columns

After almost three years of not seeing my family, I’m finally back in Malaysia to spend some quality time with my father, siblings, and children. More important, I can receive ... Read more

May 4, 2022June 21, 2022

How My Husband and I Feel About Being Offered Palliative Care

FAP News Today Columns

For the first time since my husband, Aubrey, was diagnosed with hereditary ATTR amyloidosis in 2013, his care team brought up the subject of palliative care last week. Was it ... Read more

May 4, 2022May 4, 2022

How My Husband and I Feel About Being Offered Palliative Care

FAP News Today Columns

For the first time since my husband, Aubrey, was diagnosed with hereditary ATTR amyloidosis in 2013, his care team brought up the subject of palliative care last week. Was it ... Read more

April 27, 2022June 21, 2022

Feeling at Home at the Hospital

FAP News Today Columns

As a caregiver to a spouse with hereditary ATTR amyloidosis, I’ve become familiar with our local hospital. The countless appointments and stays that Aubrey, my husband, has endured since diagnosis ... Read more

April 27, 2022April 27, 2022

Feeling at Home at the Hospital

FAP News Today Columns

As a caregiver to a spouse with hereditary ATTR amyloidosis, I’ve become familiar with our local hospital. The countless appointments and stays that Aubrey, my husband, has endured since diagnosis ... Read more