Cushing’s Disease News

January 15, 2021January 15, 2021

COVID-19 May Be Severe in Cushing’s Patients, Case Report Suggests

A young healthcare worker who contracted COVID-19 shortly after being diagnosed with Cushing’s disease was detailed in a case report from Japan. While the woman was successfully treated for both ... Read more

January 13, 2021January 13, 2021

MRI Better Than IPSS at Locating Pituitary Tumors, Researchers Conclude

Cushing's Disease News

Magnetic resonance imaging (MRI) is a better way to find pituitary tumors in Cushing’s disease than inferior petrosal sinus sampling (IPSS), according to the results of a recent record review. The ... Read more

December 18, 2020December 18, 2020

Clinical Trial Will Test Fluasterone in Cushing’s Syndrome

Cushing's Disease News

SteroTherapeutics and the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) are teaming up to conduct a Phase 2 clinical trial to determine the safety, efficacy, ... Read more

December 11, 2020December 11, 2020

Recorlev Lessens Cushing’s Symptoms, Eases Depression, SONICS Trial Data Show

Cushing's Disease News

Recorlev (levoketoconazole), Strongbridge Biopharma’s oral investigational therapy, lessens disease symptoms and depression, and improves quality of life among people with endogenous Cushing’s syndrome, according to data from the Phase 3 ... Read more

December 4, 2020January 5, 2021

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

Cushing's Disease News

To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients and their families, the National Organization for Rare Disorders (NORD) ... Read more

December 2, 2020December 2, 2020

Epidural Steroid Injections May Increase Risk of Adrenal Insufficiency, Study Finds

Cushing's Disease News

People undergoing regular epidural steroid injections (ESIs) to ease back pain may be at increased risk of adrenal insufficiency, a preliminary study suggests. However, the researchers found no link between ... Read more

November 26, 2020December 28, 2020

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

COVID-19 News, Cushing's Disease News

The first wave of COVID-19 in Europe severely disrupted access to care and raised stress and anxiety in people with rare diseases, negatively affecting their health and well-being, according to a ... Read more

November 25, 2020November 25, 2020

Rare Case of Cushing’s Disease Due to ‘Collision’ Brain Tumor Reported

Cushing's Disease News

Researchers report a very rare case of Cushing’s disease in a 34-year-old woman caused by a “collision” brain tumor, a tumor simultaneously consisting of a meningioma and a pituitary adenoma. Meningioma, ... Read more

November 18, 2020November 18, 2020

Patients With Ectopic Cushing’s Face Healthcare Challenges in Colombia, Study Says

Cushing's Disease News

Patients with ectopic Cushing’s syndrome face challenges in their healthcare management if they live in developing countries, according to a study of cases in Colombia that describes challenges unique to ... Read more

November 18, 2020December 20, 2020

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

Cushing's Disease News

Leaders in the U.S. rare disease community came together recently for a webinar to present helpful information on how to start a nonprofit and patient registry. They shared about how ... Read more

November 13, 2020November 13, 2020

Cushing’s Disease Linked to Rare Pituicytoma in Case Report

Cushing's Disease News

Although rare, pituicytomas should still be considered as a possible cause of Cushing’s disease in patients experiencing the typical symptoms of the disease, a case report highlights. The study, “Pituicytoma ... Read more

November 11, 2020November 11, 2020

AllianceRx Walgreens Prime Chosen as Sole Supplier of Metopirone in US

Cushing's Disease News

HRA Pharma Rare Diseases has named AllianceRx Walgreens Prime as its exclusive pharmacy distributor for two rare disease medications: Metopirone (metyrapone), used to diagnose Cushing’s syndrome, and Lysodren (mitotane), an approved ... Read more

November 6, 2020December 7, 2020

Report Describes Two Cases of Cushing’s Syndrome Diagnosis After Pregnancy

Cushing's Disease News

Two cases of Cushing’s syndrome that were diagnosed following pregnancy are described in a new report, which highlights the difficulty of recognizing the rare disorder in pregnant women. The report, ... Read more

November 4, 2020December 6, 2020

NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

Cushing's Disease News

The National Organization for Rare Disorders (NORD)’s RareLaunch training program will host two days of free virtual workshops in December, with the aim of empowering leaders to start non-profit organizations ... Read more

October 30, 2020October 30, 2020

Isturisa Quickly, Safely Lowers Cortisol Levels in 3 Severe Cushing’s Cases

Cushing's Disease News

Isturisa (osilodrostat) rapidly and safely controlled high cortisol levels associated with severe Cushing’s syndrome in three cancer patients who could not take standard medications, a case series study reported. The study, ... Read more