Cushing’s Disease News

October 15, 2021October 15, 2021

Rare Pituitary Carcinoma Managed With Radiation, Chemotherapy

Cushing's Disease News

An aggressive tumor in the brain’s pituitary gland, which caused severe Cushing’s disease, was successfully treated with rounds of radiation and chemotherapy with temozolomide, as described in a recent case report. ... Read more

October 13, 2021October 13, 2021

Rare Disease Diversity Coalition Awards $600K to Combat Disparities

Cushing's Disease News

The Rare Disease Diversity Coalition (RDDC) awarded $600,000 in grants to ease the disparities faced by rare disease patients of color. These Impact Rare Disease Solution grants will go five RDDC ... Read more

October 8, 2021October 8, 2021

‘Rare’ Documentary in Kickstarter Campaign to Raise $45K by Oct. 28

Cushing's Disease News

A crowdfunding campaign aims to raise $45,000 to support “Rare,” a documentary film featuring the struggles and achievements of people living with rare diseases and their families. Sweis Entertainment and ... Read more

October 6, 2021October 6, 2021

Cushing’s by Different Causes May Have Similar Effects on Metabolism

Cushing's Disease News

Cushing’s syndrome triggered by different causes can have similar effects on a person’s metabolism, or the set of chemical changes that take place in the body, a study suggests. The ... Read more

October 1, 2021October 1, 2021

Conference on Care of Pituitary Tumors in Cushing’s Set for Oct.8

Cushing's Disease News

At an upcoming conference offered by the University of Pennsylvania (Penn), experts will share the latest approaches and techniques for diagnosing and treating Cushing’s disease and other conditions caused by ... Read more

September 30, 2021September 30, 2021

New Data-sharing Program Aims to Speed Innovation in Rare Diseases

Cushing's Disease News

A new U.S. initiative called Rare Disease Cures Accelerator–Data and Analytics Platform — dubbed RDCA–DAP — aims to accelerate treatment innovation across rare diseases by sharing existing patient data and ... Read more

September 29, 2021September 29, 2021

Rare Case of Cushing’s Due to Tumors on Both Adrenal Glands

Cushing's Disease News

A 43-year-old woman developed Cushing’s syndrome due to bilateral adrenal adenomas, or a tumor on each of her two adrenal glands, according to a recent case report. “Although Cushing’s syndrome ... Read more

September 24, 2021September 24, 2021

Cushing’s Syndrome Treatment Preceded Cushing’s Disease Diagnosis

Cushing's Disease News

A woman developed Cushing’s disease years after she had received successful treatment for Cushing’s syndrome, as described in a recent case report. “Our case illustrates that both ... Read more

September 22, 2021September 22, 2021

Uplifting Athletes Tackles Funding for Rare Disease Research, Awareness

Cushing's Disease News

Football and science seem to be disparate fields of play at first glance, but the nonprofit Uplifting Athletes is finding common ground by leveraging the popularity of college gridiron games ... Read more

September 17, 2021September 17, 2021

New Institute Aims to Leave No Rare Disease Patient Behind

Cushing's Disease News

A newly launched non-profit institute is seeking to advance research, and the development of new therapies, for people with rare diseases — a patient community with some of the largest ... Read more

September 17, 2021September 17, 2021

Post-surgery Use of Enoxaparin Lowered Blood Clot Risk

Cushing's Disease News

Treatment with the blood thinner enoxaparin within a few hours after curative pituitary surgery may help reduce the risk of blood clots forming in people with Cushing’s disease, a new ... Read more

September 15, 2021September 15, 2021

New USP8 Gene Mutation Found in Pituitary Tumor of Cushing’s Patient

Cushing's Disease News

A newly discovered mutation in a gene called USP8 may contribute to the development of pituitary tumors, which are the underlying cause Cushing’s disease, researchers reported, describing the mutation. Their work ... Read more

September 10, 2021September 10, 2021

Group Focuses on Rare Disease Clinical Trial Participation

Cushing's Disease News

Participation in clinical trials exposes rare disease patients to financial, physical, and emotional pressures, according to the results of a patient focus group series. “Rare disease trial participants are running ... Read more

September 10, 2021September 10, 2021

2-surgeon Bilateral Adrenalectomy May Be Better for Ectopic Cushing’s

Cushing's Disease News

A two-surgeon approach to bilateral adrenalectomy — the surgical removal of both adrenal glands — may lead to fewer complications and shorter operating time in patients with ectopic Cushing’s syndrome, ... Read more

September 8, 2021September 8, 2021

Cushing’s in Woman With Pituitary Tumor Tied to Low Blood Potassium

Cushing's Disease News

Cushing’s disease may occur secondary to a large pituitary tumor and, in rare cases, cause potassium levels in the blood to be persistently low, a recent case report highlighted. According ... Read more