COVID-19 News

April 1, 2021April 1, 2021

It’s April — Time to Participate in Parkinson’s Awareness Month

Activities are underway to mark Parkinson’s Awareness Month, set aside each April to draw attention to the neurodegenerative disorder that affects some seven to 10 million people globally. At the ... Read more

April 1, 2021April 1, 2021

SPMS Patient First To Be Treated With Antibody Given via Nasal Spray

COVID-19 News, Multiple Sclerosis News Today

For a first time, an immune-modulating antibody will be given via nasal administration to treat a person with secondary progressive multiple sclerosis (SPMS). The U.S. Food and Drug Administration (FDA) ... Read more

March 31, 2021March 31, 2021

COVID-19 Vaccine Compatible with Trial Testing of Rett Gene Therapy

COVID-19 News, Rett Syndrome News

People with Rett syndrome can receive the COVID-19 vaccine from Johnson & Johnson and still participate in future clinical trials of the investigational gene therapy TSHA-102, the treatment’s developer has ... Read more

March 30, 2021March 30, 2021

Applications Sought for Foundation Scholarships

COVID-19 News, Scleroderma News

The Anna Belle Carter Memorial Foundation (ABCMF) is offering scholarships to students living with scleroderma and their siblings who remain under the care of their parents and guardians. Recipients can ... Read more

March 30, 2021March 30, 2021

Immunosuppressants May Be Beneficial to Treat MG Patients With COVID-19

COVID-19 News, Myasthenia Gravis News

In two of three myasthenia gravis (MG) patients who contracted COVID-19, the use of immunosuppressants did not cause an exacerbation or myasthenic crisis, a case study reports, suggesting the treatments ... Read more

March 25, 2021March 25, 2021

MPS Society to Use £195,000 Grant to Reduce UK Patient Isolation

COVID-19 News, Sanfilippo News

The MPS Society will use a £195,000 (about $268,000) award from the National Lottery Community Fund to build connections and reduce feelings of isolation — largely caused by the COVID-19 ... Read more

March 24, 2021March 24, 2021

COVID-19 Affected Speech, Language Therapies, UK Survey Shows

COVID-19 News, Parkinson's News Today

Lockdown during the COVID-19 pandemic has affected speech and language therapy in patients with Parkinson’s disease, a survey in the United Kingdom shows. The survey was conducted by the Royal ... Read more

March 23, 2021March 23, 2021

Development of Long-acting Firdapse on Track, Catalyst Says

COVID-19 News, Lambert-Eaton News

Development of a new long-acting formulation of Firdapse (amifampridine) remains on track, according to Catalyst Pharmaceuticals, the therapy’s developer. In a year-end update, the company announced the completion of the first pharmacokinetic ... Read more

March 23, 2021March 23, 2021

Certain Factors Worsen Outcomes in MS Patients With COVID-19

COVID-19 News, Multiple Sclerosis News Today

People with multiple sclerosis (MS) who have more extensive mobility issues are more likely to have worse outcomes from COVID-19, a new study indicates. The study findings also indicate that ... Read more

March 22, 2021March 22, 2021

Case Report Shows COVID-19 May Worsen Well-controlled Hypoparathyroidism

COVID-19 News, Hypoparathyroidism News

COVID-19 may lead to the deterioration of some medical conditions, such as hypoparathyroidism, that had been well controlled before the infection, a case report suggests. The study, “Decompensated primary hypoparathyroidism ... Read more

March 22, 2021March 22, 2021

Live Expert Panel to Discuss COVID-19’s Effect on Respiratory Diseases

COVID-19 News, Pulmonary Hypertension News

Experts will discuss how the COVID-19 pandemic has affected people living with pulmonary hypertension and other rare respiratory diseases during a live panel discussion this week. The event, taking place ... Read more

March 22, 2021March 22, 2021

National MS Society Encourages Patients to Get COVID-19 Vaccine

COVID-19 News, Multiple Sclerosis News Today

Most patients with relapsing and progressive forms of multiple sclerosis (MS) are encouraged to get vaccinated against COVID-19 — and any vaccine of three authorized for use in the U.S. ... Read more

March 19, 2021March 20, 2021

#MDA2021 – Muscle-directed Therapy Apitegromab Found to Improve Motor Function

COVID-19 News, SMA News Today

Editor’s note: The SMA News Today team is providing in-depth coverage of the 2021 MDA Virtual Clinical and Scientific Conference, March 15–18. Go here to read the latest stories from the conference. Six ... Read more

March 19, 2021March 19, 2021

Survey on COVID-19 and Mental Health Opens in UK, US and Germany

COVID-19 News, Hemophilia News Today

A research study is asking people with hemophilia and other inherited bleeding disorders living in the U.K., U.S., or Germany to take part in a survey evaluating how the COVID-19 ... Read more

March 19, 2021March 19, 2021

Case Report Highlights Possible CAD, COVID-19 Link

Cold Agglutinin News, COVID-19 News

The case of a man with COVID-19 who temporarily developed elevated levels of cold agglutinins — the self-reactive antibodies that cause cold agglutinin disease (CAD) — was described in a ... Read more