COVID-19 News

June 22, 2022June 22, 2022

MS Bike, Canadian Society’s Annual Fundraiser, Returns to Live Rides

COVID-19 News, Multiple Sclerosis News Today

The Multiple Sclerosis Society of Canada has opened MS Bike, an annual cycling event to raise awareness and funds for research and services that make the difference for the more than 90,000 ... Read more

June 21, 2022June 21, 2022

Our Family Values the Power of Grandmas

AADC News, COVID-19 News

Father’s Day has just passed in the United States, and I appreciate all the wishes and wonderful comments I receive each year. However, this year, I’ve been thinking about the ... Read more

June 17, 2022June 17, 2022

Vidofludimus Calcium Safely Reduced RRMS Brain Lesions

COVID-19 News, Multiple Sclerosis News Today

Treatment with the experimental immune-modulating therapy vidofludimus calcium reduced disease activity on MRI scans in adults with relapsing-remitting multiple sclerosis (RRMS), data from the Phase 2 EMPhASIS clinical trial shows. Top-line ... Read more

June 16, 2022June 16, 2022

COVID-19 Vaccination Doesn’t Lead to Worsening MG, Study Reports

COVID-19 News, Myasthenia Gravis News

Two doses of the COVID-19 vaccine did not worsen symptoms in 200 people with myasthenia gravis (MG), with mostly injection site-related side-effects reported, matching those seen in the general population, ... Read more

June 16, 2022June 16, 2022

Disqualified Ironman Competitor Lends a Hand, Finishes a Hero

ALS News Today, COVID-19 News

Patrick Harfield was on his last legs. Between the elevation gain, the heat, and the cold from the swim in the Sand Hollow Reservoir, the 44-year-old experienced triathlete, competing in ... Read more

June 15, 2022June 15, 2022

AAV Emerges in Boy Using Levamisole to Treat Kidney Disease

ANCA Vasculitis News, COVID-19 News

ANCA-associated vasculitis (AAV) emerged as a side effect of levamisole given for years to treat a 15-year-old boy with idiopathic nephrotic syndrome, according to a case report. “By reporting this ... Read more

June 15, 2022June 15, 2022

NORD’s ‘Living Rare, Living Stronger’ Patient, Family Forum Set for June 26

COVID-19 News, Porphyria News

The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person on June 26 for a day of learning and networking in ... Read more

June 14, 2022June 14, 2022

NORD’s ‘Living Rare, Living Stronger’ Patient, Family Forum Set for June 26

COVID-19 News, Prader-Willi News

The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person on June 26 for a day of learning and networking in ... Read more

June 13, 2022June 13, 2022

NORD’s ‘Living Rare, Living Stronger’ Patient, Family Forum Set for June 26

COVID-19 News, Hypoparathyroidism News

The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person on June 26 for a day of learning and networking in ... Read more

June 13, 2022June 13, 2022

NORD’s ‘Living Rare, Living Stronger’ Patient, Family Forum Set for June 26

COVID-19 News, FAP News Today

The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person on June 26 for a day of learning and networking in ... Read more

June 13, 2022June 13, 2022

RRMS Put Woman on Path Toward ‘Paying It Forward’

COVID-19 News, Multiple Sclerosis News Today

Erin Stevenson’s doctor laughed when she asked him 13 years ago if the vertigo she felt while training for a first 100-mile bike ride could be related to her mother’s ... Read more

June 10, 2022June 11, 2022

Evusheld Boosts Antibodies Against COVID-19 in Vaccinated Patients

COVID-19 News, Multiple Sclerosis News Today

Treatment with Evusheld (tixagevimab co-packaged with cilgavimab) after COVID-19 vaccination significantly boosted the levels of antibodies against the virus among people with multiple sclerosis (MS) who were taking B-cell targeted ... Read more

June 10, 2022June 10, 2022

NORD’s ‘Living Rare, Living Stronger’ Patient, Family Forum Set for June 26

COVID-19 News, Pulmonary Fibrosis News

The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person on June 26 for a day of learning and networking in ... Read more

June 10, 2022June 10, 2022

NORD’s ‘Living Rare, Living Stronger’ Patient, Family Forum Set for June 26

Cold Agglutinin News, COVID-19 News

The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person on June 26 for a day of learning and networking in ... Read more

June 10, 2022June 10, 2022

NORD’s ‘Living Rare, Living Stronger’ Patient, Family Forum Set for June 26

COVID-19 News, Epidermolysis Bullosa News

The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person on June 26 for a day of learning and networking in ... Read more