Cold Agglutinin News

June 18, 2021June 18, 2021

Get Ready for NORD’s Patient and Family Forum, Set for June 26-27

Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual Living Rare Living Stronger Patient and Family Forum, hosted by the ... Read more

June 18, 2021June 18, 2021

Case Report Describes COVID-19 Triggering CAD

Cold Agglutinin News, COVID-19 News

COVID-19 appears to have triggered cold agglutinin disease (CAD) in a woman with thalassemia, an inherited bleeding disorder that affects red blood cells. Her case was complicated by the multiple ... Read more

June 11, 2021June 11, 2021

Rare 2030 Action Campaign Pushing for European Plan for Rare Diseases

Cold Agglutinin News

Eurordis opened a campaign, called Rare 2030 Action, that is seeking to establish a European action plan for rare diseases to ensure that none of the 30 million people in ... Read more

June 4, 2021June 4, 2021

Advocates Can Try for Grants Ahead of Rare Disease Week on Capitol Hill

Cold Agglutinin News

Ahead of this year’s Rare Disease Week on Capitol Hill, held virtually July 14–22, the EveryLife Foundation will award grants to top advocates of rare disease organizations who participate in ... Read more

June 4, 2021June 4, 2021

Key Steps Can Lower Risk of CAD Complications During Surgery

Cold Agglutinin News

The case of an 80-year-old man with cold agglutinin disease (CAD) who underwent abdominal surgery to remove his gallbladder was described in a recent report. Its investigators highlighted steps that ... Read more

May 28, 2021May 28, 2021

First Case of 2 Unrelated Autoimmune Disorders Reported in Patient

Cold Agglutinin News

Researchers have reported for the first time a case of the autoimmune disorder antiphospholipid syndrome (APLS) in a woman who also developed cold agglutinin disease. More studies are needed to ... Read more

May 21, 2021May 21, 2021

IV Fluids at Room Temperature Trigger Hemolytic Anemia in Diabetic

Cold Agglutinin News

Progressive hemolytic anemia — the rupture and gradual depletion of red blood cells — caused by cold agglutinin disease (CAD) was triggered in a man with diabetes being treated at ... Read more

May 14, 2021May 17, 2021

Sutimlimab Protects Blood Cells Over Time to Improve Life Quality, Trials Report

Cold Agglutinin News

Sutimlimab continues to lessen the need for blood transfusions, prevent red blood cell destruction, ease fatigue, and limit inflammation in patients with primary cold agglutinin disease (CAD), according to data ... Read more

May 7, 2021May 7, 2021

COVID Vaccines Briefly Worsen CAD Symptoms in Woman in Case Study

Cold Agglutinin News, COVID-19 News

Symptoms of cold agglutinin disease (CAD) worsened for a 57-year-old woman two days after receiving the first dose of a COVID-19 vaccine, and again two days after the second dose, ... Read more

April 28, 2021April 30, 2021

CAD Diagnoses Climb With Cold of Winter Months, European Study Finds

Cold Agglutinin News

Cold agglutinin disease (CAD) is more frequently diagnosed during winter months at multiple locations across Europe, supporting outdoor temperature as a disease trigger, researchers reported. Findings also suggest that, in ... Read more

April 23, 2021April 23, 2021

Plasma Exchange Treats CAD Linked to Tuberculosis in Pregnant Woman

Cold Agglutinin News

A pregnant woman with a rare case of tuberculosis-induced cold autoimmune hemolytic anemia — also known as cold agglutinin disease (CAD) — was successfully treated with plasma exchange and medications for her tuberculosis. ... Read more

April 23, 2021April 23, 2021

Quick Approval Given COVID Vaccines Raise Concerns, Rare Disease Patients Say

Cold Agglutinin News, COVID-19 News

More than half of the people with rare diseases and their caregivers, asked in a survey, were undecided or less than willing to be vaccinated for COVID-19 if a vaccine ... Read more

April 16, 2021April 16, 2021

COVID-19 Triggered CAD, Muscle Inflammation in Leukemia Patient, Report Says

Cold Agglutinin News, COVID-19 News

A woman developed cold agglutinin disease (CAD) and myositis (muscle inflammation) as a complication of COVID-19, underscoring the importance of a timely, comprehensive evaluation to identify rare complications of SARS-CoV-2 ... Read more

April 16, 2021April 16, 2021

EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US

Cold Agglutinin News, COVID-19 News

The EveryLife Foundation for Rare Diseases is accepting applications for a scholarship program that aims to help adults with a rare disease pursue personal goals through training and education. For a ... Read more

April 9, 2021April 9, 2021

New Trial Data Show ‘Promising’ Sustained Sutimlimab Effects

Cold Agglutinin News

Sanofi’s investigational therapy sutimlimab safely and rapidly prevents red blood cell destruction (hemolysis), increases hemoglobin levels, and reduces fatigue in adults with primary cold agglutinin disease (CAD), according to full data ... Read more