Cold Agglutinin News

March 8, 2021March 8, 2021

Pink, Green, Blue and Purple Lights Illuminated World for Rare Disease Day

Many diseases have their own awareness color — breast cancer is pink, muscular dystrophy is green, and AIDS is red, for example — but what’s the significance of pink, green, ... Read more

March 5, 2021March 5, 2021

Infant, Secondary AIHA Treatment Challenging, Indian Study Shows

Cold Agglutinin News

An examination of medical records of Indian children with autoimmune hemolytic anemia (AIHA), a group of disorders that includes cold agglutinin disease, found managing infants and those with secondary AIHA ... Read more

February 26, 2021February 27, 2021

Lower C3, C4 Complement Proteins Levels Found in CAD Patients

Cold Agglutinin News

People with cold agglutinin disease (CAD) have significantly lower blood levels of C3 and C4 — two key molecules of the body’s innate complement immune system — than their healthy ... Read more

February 25, 2021February 25, 2021

Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

Cold Agglutinin News, COVID-19 News

Diagnosed with sickle cell disease as a 6-month-old, Tristan Lee has faced a lot of challenges over his 37 years of life. But from a young age, he also learned ... Read more

February 23, 2021February 23, 2021

Rare Disease Day at NIH, Set for March 1, Growing Year by Year

Cold Agglutinin News, COVID-19 News

Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1, will feature panel discussions, patient stories, research updates, TED-style talks, and a ... Read more

February 19, 2021February 19, 2021

Modified Red Blood Cells May Be Better to Resolve Anemia in AIHA

Cold Agglutinin News

Modified red blood cell products may be better at counteracting anemia than red blood cell suspensions normally used in conventional blood transfusions, while posing fewer side effects to patients with ... Read more

February 18, 2021February 18, 2021

Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

Cold Agglutinin News

People with rare disorders have a worse healthcare experience than those affected by chronic diseases, according to the results of an international survey conducted by Eurordis-Rare Diseases Europe. Indeed, rare ... Read more

February 12, 2021February 12, 2021

Antibody Modification May Drive Antibody-linked Diseases Like CAD

Cold Agglutinin News

A type of protein modification called glycosylation is associated with higher levels of disease-causing antibodies in cold agglutinin disease (CAD), new research suggests. The findings highlight the role that antibody ... Read more

February 11, 2021February 11, 2021

Pandemic Won’t Stop Rare Disease Day on Feb. 28

Cold Agglutinin News, COVID-19 News

Scores of virtual events are afoot around the world to mark Rare Disease Day 2021 on Feb. 28. The activities are focused on heightening awareness about rare diseases and the ... Read more

February 5, 2021February 5, 2021

Bladder Cancer Linked to CAD in Rare Case

Cold Agglutinin News

Researchers have reported a very rare case of cold agglutinin disease (CAD) associated with urothelial carcinoma, the most common type of bladder cancer, in an 86-year-old man. The acquired autoimmune disease has ... Read more

February 3, 2021February 3, 2021

NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

Cold Agglutinin News

While progress was made last year on newborn screening and other policy issues critical to rare disease patients, a “State Report Card” argues that many concerns — notably out-of-pocket costs ... Read more

January 29, 2021January 29, 2021

Rwandan Study Finds CAD Plays Small Role in Malaria-Related Anemia

Cold Agglutinin News

Cold agglutinin disease (CAD) seems to play a small part in the development of anemia among people who have enlarged spleens due to malaria infection, a study from Rwanda suggested. ... Read more

January 22, 2021January 22, 2021

New Data Highlight Unmet Needs Over Time of Primary CAD Patients

Cold Agglutinin News

The burden of disease among people with primary cold agglutinin disease (CAD) remains high multiple years after diagnosis, illustrating the unmet needs of these patients, new data from a large ... Read more

January 20, 2021February 22, 2021

NORD’s Caregiver Respite Program Continues Through Pandemic

Cold Agglutinin News, COVID-19 News

Caring for a loved one with a rare disease, especially during these uncertain times, demands significant time, attention, patience, and dedication. To help meet that need, the National Organization for ... Read more

January 15, 2021January 15, 2021

CAD in COVID-19 Patients May Lead to Blood Typing Abnormalities

Cold Agglutinin News, COVID-19 News

COVID-19 can be associated with the development of cold agglutinin disease (CAD), leading to the need for blood transfusions. But the autoantibodies resulting from CAD may interfere with blood typing ... Read more