Cold Agglutinin News

January 14, 2022January 14, 2022

Global Genes Starting Grant Cycle for RARE Meet-Ups

Cold Agglutinin News, COVID-19 News

Global Genes is accepting grant applications to fund a series of U.S.-based RARE Meet-Ups for those affected by a rare disease, including cold-agglutinin disease (CAD), scheduled to occur from April ... Read more

January 7, 2022January 7, 2022

Bone Marrow Biopsy May Be Useful in Newly Diagnosed CAD

Cold Agglutinin News

A bone marrow biopsy may be useful as a test for an underlying cancer or other conditions involving the excessive immune cell expansion and guiding treatment in people with newly ... Read more

December 17, 2021December 18, 2021

Case Study: Secondary CAD Caused by Rare Cancer in Spleen

Cold Agglutinin News

A case of secondary cold agglutinin disease (CAD) was triggered by a rare, undetected slow-growing type of immune cell cancer in the spleen. The case study, “Cold agglutinin syndrome secondary ... Read more

December 10, 2021December 10, 2021

Patients Interviews Highlight Need for Better Outcome Measures

Cold Agglutinin News

New patient-reported outcome measures capable of adequately capturing and assessing the impact of cold agglutinin disease (CAD) symptoms are needed, a study reported. Its scientists hope that by identifying relevant ... Read more

December 3, 2021December 3, 2021

CAD Active Year Round, Not Just in Cold Weather, New Study Shows

Cold Agglutinin News

People with cold agglutinin disease (CAD) show signs of red blood cell destruction year round, not just when the weather is cold, a new study highlights. These findings suggest that ... Read more

November 19, 2021November 19, 2021

Sutimlimab Suppressed CAD Response in Heart Surgery Patient

Cold Agglutinin News

Suppressing the pro-inflammatory complement pathway using sutimlimab, in addition to other measures, can help prevent red blood cell destruction in patients with cold agglutinin disease (CAD) undergoing major surgery, a ... Read more

November 12, 2021November 12, 2021

Sutimlimab Eases Fatigue and Anemia Symptoms, Trials Show

Cold Agglutinin News

Sutimlimab increased hemoglobin, lowered levels of red blood cell destruction markers, and eased fatigue and symptoms related to anemia in patients with cold agglutinin disease (CAD), according to a recent ... Read more

November 5, 2021November 5, 2021

NIH Study: Cost of Treating Rare Diseases ‘Large’ Relative to Other Ills

Cold Agglutinin News

A retrospective study by the National Institutes of Health (NIH) suggests that healthcare costs for those with rare diseases have been underestimated, possibly being three to five times higher than ... Read more

October 29, 2021October 29, 2021

CAD Played Role in Acute Liver Failure of Elder Woman

Cold Agglutinin News

Cold agglutinin disease (CAD) in an elder woman worsened an underlying autoimmune condition that subsequently led to acute liver failure, a case study reports. This case highlights a need for ... Read more

October 22, 2021October 22, 2021

Global Genes, Diversity Coalition Team Up to Advance Health Equity

Cold Agglutinin News

Global Genes has partnered with the Rare Disease Diversity Coalition (RDDC) to advance health equity for rare disease patients and caregivers in underrepresented communities of color. “For rare disease patients, ... Read more

October 22, 2021October 22, 2021

Case Report: Warm AIHA Plus CAD Possibly Triggered by COVID-19

Cold Agglutinin News, COVID-19 News

The virus that causes COVID-19, SARS-CoV-2, may have triggered both warm and cold autoimmune hemolytic anemia (AIHA) in a 51-year-old man, a case study reports. The case report, “Warm and ... Read more

October 15, 2021October 15, 2021

Rare Disease Diversity Coalition Awards $600K to Combat Disparities

Cold Agglutinin News, COVID-19 News

The Rare Disease Diversity Coalition (RDDC) awarded $600,000 in grants to ease the disparities faced by rare disease patients of color. These Impact Rare Disease Solution grants will go five RDDC ... Read more

October 8, 2021October 8, 2021

‘Rare’ Documentary in Kickstarter Campaign to Raise $45K by Oct. 28

Cold Agglutinin News

A crowdfunding campaign aims to raise $45,000 to support “Rare,” a documentary film featuring the struggles and achievements of people living with rare diseases and their families. Sweis Entertainment and ... Read more

October 1, 2021October 1, 2021

New Data-sharing Program Aims to Speed Innovation in Rare Diseases

Cold Agglutinin News

A new U.S. initiative called Rare Disease Cures Accelerator–Data and Analytics Platform — dubbed RDCA–DAP — aims to accelerate treatment innovation across rare diseases by sharing existing patient data and ... Read more

September 24, 2021September 24, 2021

Disease Flares Due to COVID-19 Vaccines Manageable With Proper Care

Cold Agglutinin News, COVID-19 News

In some cases, vaccines for COVID-19 can lead to a disease flare in people with cold agglutinin disease (CAD) and related conditions, but these flares can be readily managed with ... Read more