Cold Agglutinin News

June 17, 2022June 17, 2022

Long-term Treatment With Enjaymo Safe and Effective, Trial Data Show

Long-term treatment with Sanofi’s Enjaymo (sutimlimab-jome) safely and effectively prevented red blood cell destruction (hemolysis), anemia, and the need for blood transfusions, while improving the quality of life in adults ... Read more

June 10, 2022June 10, 2022

NORD’s ‘Living Rare, Living Stronger’ Patient, Family Forum Set for June 26

Cold Agglutinin News, COVID-19 News

The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person on June 26 for a day of learning and networking in ... Read more

June 3, 2022June 3, 2022

1st Case of CAD Due to COVID-19 in Asia Treated With Corticosteroids

Cold Agglutinin News, COVID-19 News

An elderly woman in Japan is the first reported patient in Asia to develop cold agglutinin disease (CAD) due to COVID-19, according to a new case study. The patient was ... Read more

May 27, 2022May 27, 2022

Prednisone, a Steroid, May Treat Primary CAD in Specific Cases

Cold Agglutinin News

A 71-year-old woman with primary cold agglutinin disease (CAD) was successfully treated with the glucocorticoid prednisone, a case study reported. Its scientists noted that primary CAD typically does not respond ... Read more

May 20, 2022May 20, 2022

CAD Diagnosis Seen With Diffuse Large B-cell Lymphoma: Case Report

Cold Agglutinin News

The case of a man with cold agglutinin disease (CAD) that was found to be secondary to a blood cancer, called diffuse large B-cell lymphoma (DLBCL), was described in a ... Read more

May 13, 2022May 13, 2022

Soliris Used to Treat CAD Possibly Caused by Severe COVID-19: Study

Cold Agglutinin News, COVID-19 News

Treatment with Soliris (eculizumab) eased the symptoms of cold agglutinin disease (CAD) in a man in France who possibly developed the condition as a result of a severe infection with SARS-CoV-2, the virus ... Read more

May 6, 2022May 6, 2022

Rare Co-occurrence of CAD and Blood Disorder Reported

Cold Agglutinin News

The case of a man with cold agglutinin disease (CAD) co-occurring with a blood cell disorder called myelodysplastic syndrome was described in a recent report from India. The report, “Cold ... Read more

April 29, 2022April 29, 2022

Organizations Rally to Help Ukrainian Rare Disease Patients

Cold Agglutinin News

A Russian military plane crash near Tetiana Zamorska’s home in Kyiv, Ukraine, was a sign that it was time for her and her family to leave. The treacherous, 34-hour pilgrimage that ... Read more

April 22, 2022April 22, 2022

Europe Awaits Proposed New Framework for Sharing Health Data

Cold Agglutinin News

The European Commission is expected to propose a new governing framework for health data next month, called the European Health Data Space (EHDS), with the aim of connecting national health ... Read more

April 15, 2022April 15, 2022

Telehealth Added to Latest Digital-friendly NORD State Report Card

Cold Agglutinin News, COVID-19 News

The National Organization for Rare Disorders (NORD) has updated its State Report Card to make it more digitally friendly and added telehealth to its categories of rare disease policy issues ... Read more

April 8, 2022April 8, 2022

Danish Study Assesses Mortality Rate in CAD and Related Disorders

Cold Agglutinin News

Mortality rates are generally higher among people with cold agglutinin disease (CAD) and related conditions than in the general population, according to a recent study from Denmark. These results highlight ... Read more

April 1, 2022April 1, 2022

Secondary CAD Initially Mistaken for Blood Cancer in Patient, 27

Cold Agglutinin News

A case of cold agglutinin disease (CAD) secondary to bacterial infection in a young woman in the U.K. was initially mistaken for blood cancer, according to a recent report. The ... Read more

March 25, 2022March 25, 2022

Increased Education Crucial to Improving Rare Disease Care, Survey Finds

Cold Agglutinin News

Healthcare providers involved in diagnosing and treating rare diseases believe that increased physician education and collaboration with specialized facilities will have the greatest positive impact on treating these conditions over ... Read more

March 18, 2022March 18, 2022

RaDaR Serves as Starting Point for Creating Rare Disease Registry

Cold Agglutinin News

Patient registries are a hot topic of rare disease research and many organizations are taking advantage of this resource by signing up their patient communities and connecting with researchers. Eric ... Read more

March 11, 2022March 11, 2022

COVID-19 Infection Can Worsen CAD Symptoms, Report Highlights

Cold Agglutinin News, COVID-19 News

COVID-19 can worsen symptoms of cold agglutinin disease (CAD), a recent case report highlights. The scientists stressed the need for further research to determine the best ways to care for ... Read more