Bronchiectasis News Today

February 23, 2021February 23, 2021

Rare Disease Day at NIH, Set for March 1, Growing Year by Year

Bronchiectasis News Today, COVID-19 News

Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1, will feature panel discussions, patient stories, research updates, TED-style talks, and a ... Read more

February 22, 2021February 22, 2021

Bronchiectasis Can Increase Number of Asthma Attacks, Analysis Finds

Bronchiectasis News Today

More than 30% of people with asthma have bronchiectasis, which can worsen airway obstruction and increase the number of asthma attacks, according to an analysis conducted by researchers in China. ... Read more

February 19, 2021February 19, 2021

Bronchiectasis May Increase Risk for Severe COVID-19 Disease

Bronchiectasis News Today, COVID-19 News

Bronchiectasis might be more frequent in people with severe COVID-19 disease, increasing by over threefold the risk for severe symptoms, according to an analysis of patients in Wuhan, China, where ... Read more

February 18, 2021February 18, 2021

Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

Bronchiectasis News Today

People with rare disorders have a worse healthcare experience than those affected by chronic diseases, according to the results of an international survey conducted by Eurordis-Rare Diseases Europe. Indeed, rare ... Read more

February 15, 2021February 15, 2021

Tobramycin, Inhaled Antibiotic, Eases Symptoms, Study in Off-label Use Finds

Bronchiectasis News Today

Off-label use of the inhaled antibiotic tobramycin lowered sputum production, and eased shortness of breath, and cough in people with bronchiectasis, a small real-world study found.  Although there was no ... Read more

February 12, 2021February 12, 2021

Electromed Resumes Study of SmartVest

Bronchiectasis News Today, COVID-19 News

Electromed has resumed a study seeking to assess the effects of SmartVest, an inflatable vest that can be used to deliver high-frequency chest wall oscillation (HFCWO) therapy, on the quality ... Read more

February 10, 2021February 10, 2021

Pandemic Won’t Stop Rare Disease Day on Feb. 28

Bronchiectasis News Today, COVID-19 News

Scores of virtual events are afoot around the world to mark Rare Disease Day 2021 on Feb. 28. The activities are focused on heightening awareness about rare diseases and the ... Read more

February 8, 2021February 8, 2021

Chronic Fungi Infection Tied to Poor Outcomes in NTM Lung Disease

Bronchiectasis News Today

Early identification and prompt treatment of chronic pulmonary aspergillosis — a lung infection caused by fungi belonging to the Aspergillus genus — are needed to improve outcomes for people with ... Read more

February 5, 2021February 5, 2021

CT Scores for Bronchiectasis, Nodules Predict NTM Recurrence

Bronchiectasis News Today

In patients successfully treated for pulmonary disease caused by nontuberculous mycobacteria, CT scans at treatment’s end can accurately predict infection recurrence, a study found. Specifically, CT scores for bronchiectasis and lung ... Read more

February 4, 2021February 4, 2021

Treatment With Ciprofloxacin Antibiotics Found to Reduce Exacerbations

Bronchiectasis News Today

Treatment with the inhaled antibiotic ciprofloxacin can reduce the frequency of exacerbations, or sudden disease flare-ups, in people with bronchiectasis, a new analysis indicates. The findings were published in the Internal ... Read more

February 3, 2021February 3, 2021

NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

Bronchiectasis News Today

While progress was made last year on newborn screening and other policy issues critical to rare disease patients, a “State Report Card” argues that many concerns — notably out-of-pocket costs ... Read more

January 29, 2021January 29, 2021

Spanish Registry Seen to Capture Disease Scope, May Guide Research

Bronchiectasis News Today

The Spanish Bronchiectasis Registry (RIBRON) accurately reflects the characteristics of people with bronchiectasis in Spain, and may provide a solid basis for studies focused on multiple aspects of this disease, ... Read more

January 25, 2021January 25, 2021

Increased Risk of Bronchiectasis Linked to Newly Found STAT1 Mutation

Bronchiectasis News Today

A newly identified gain-of-function mutation in the STAT1 gene was associated with the development of bronchiectasis in a 17-year-old boy with a long history of persistent infections in the mouth and ... Read more

January 22, 2021January 22, 2021

Some Respiratory Symptoms Should Spark Suspicion of Bronchiectasis in Children

Bronchiectasis News Today

A case report of a young girl calls attention to the need to evaluate children with recurrent respiratory symptoms for bronchiectasis. The report, “Pediatric bronchiectasis: An orphan disease ending in ... Read more

January 18, 2021January 19, 2021

Art Contest Salutes Creativity of Rare Disease Communities

Bronchiectasis News Today

Butterflies, ballerinas, and abstract flowers are featured among the winning artwork of this year’s Rare Artist contest, hosted by the EveryLife Foundation for Rare Diseases to heighten awareness about rare ... Read more