Ankylosing Spondylitis News

February 26, 2021February 26, 2021

Why It’s Important to Have People Who Validate Your Pain

Ankylosing Spondylitis News

“I love you, dud!” I hollered after my 3-year-old son as he blissfully skipped back to play with his brothers. (It’s unfortunate that while I had meant to say, “I ... Read more

February 24, 2021February 24, 2021

How Medical Marijuana Has Reduced My AS Pain

Ankylosing Spondylitis News

Medicinal marijuana has been a true lifesaver for me as someone with ankylosing spondylitis (AS). I have so much gratitude and appreciation for this plant, as it provides pain relief ... Read more

February 22, 2021February 22, 2021

IL-17A Inhibitors Appear Effective in Treating AS, But Safety Needs Further Study

Ankylosing Spondylitis News

Medications that block the activity of the pro-inflammatory molecule interleukin-17A (IL-17A) can ease symptoms of ankylosing spondylitis (AS), but further research is needed to evaluate their safety, according to an ... Read more

February 18, 2021February 18, 2021

Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

Ankylosing Spondylitis News

People with rare disorders have a worse healthcare experience than those affected by chronic diseases, according to the results of an international survey conducted by Eurordis-Rare Diseases Europe. Indeed, rare ... Read more

February 17, 2021February 17, 2021

A Chat With Luke Magda About AS and the Carnivore Diet

Ankylosing Spondylitis News, COVID-19 News

Luke Magda and I first met online in a Facebook group called “Low/No Starch Lifestyle Group for Ankylosing Spondylitis.” There, thousands have discovered that making changes to their diet by ... Read more

February 15, 2021February 15, 2021

FDA Gives Thumb’s Up for Phase 2 Trial of Izokibep in AS Patients

Ankylosing Spondylitis News

The U.S. Food and Drug Administration (FDA) has cleared the start of a Phase 2 trial of izokibep in people with ankylosing spondylitis (AS), according to the therapy’s developers Affibody ... Read more

February 11, 2021February 11, 2021

Here Are the Dietary Changes That Reduced My AS Symptoms

Ankylosing Spondylitis News

“What did you say you can’t eat?” my friend asked me in shock as we casually strolled along a river path. I recently had decided to tackle my ankylosing spondylitis ... Read more

February 10, 2021February 10, 2021

Pandemic Won’t Stop Rare Disease Day on Feb. 28

Ankylosing Spondylitis News, COVID-19 News

Scores of virtual events are afoot around the world to mark Rare Disease Day 2021 on Feb. 28. The activities are focused on heightening awareness about rare diseases and the ... Read more

February 8, 2021February 8, 2021

High Pain Sensitivity in Patients Linked to Worse Clinical Outcomes

Ankylosing Spondylitis News

People with axial spondyloarthritis (axSpA) who had higher pain sensitivity were more likely to have worse clinical outcomes, according to a study that found chronic pain to be common in ... Read more

February 3, 2021February 3, 2021

A Visitor’s Guide to the Montana Radon Health Mines, Part 2

Ankylosing Spondylitis News

Second in a two-part series. (Photos by Andrea Wyckoff) Thank you for reading part two of my radon mine series. If you haven’t yet, please read part one, “My Experience ... Read more

February 2, 2021February 2, 2021

NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

Ankylosing Spondylitis News

While progress was made last year on newborn screening and other policy issues critical to rare disease patients, a “State Report Card” argues that many concerns — notably out-of-pocket costs ... Read more

February 1, 2021February 1, 2021

Rinvoq Approved in EU for Two Types of Active Arthritis

Ankylosing Spondylitis News

AbbVie‘s Rinvoq (upadacitinib) has been approved in the European Union to treat active ankylosing spondylitis (AS) in adults who have responded inadequately to conventional therapy. The European Commission also approved ... Read more

January 28, 2021January 28, 2021

After Diagnosis, I Discovered That Knowledge Boosts My Confidence

Ankylosing Spondylitis News

When I recently was diagnosed with ankylosing spondylitis, I was confronted with complicated terminology that initially overwhelmed me. Klebsiella pneumoniae, molecular mimicry, cytokines, tumor necrosis factor-alpha — the list of ... Read more

January 25, 2021January 25, 2021

Quality of Life, Work Appear to Improve for Patients Taking Humira in China

Ankylosing Spondylitis News

Treatment with Humira (adalimumab) over six months significantly reduced symptoms and improved physical function, quality of life, and work productivity in ankylosing spondylitis (AS) patients, a Chinese study finds. The ... Read more

January 20, 2021January 20, 2021

My Experience With Radon Mine Therapy for Ankylosing Spondylitis, Part 1

Ankylosing Spondylitis News

First in a two-part series. In 2014, I took a road trip to Montana to receive experimental treatments in the underground radon mines. (Photos by Andrea Wyckoff) Visiting the “radon ... Read more