Angelman Syndrome News Columns

August 4, 2022August 4, 2022

Understanding Ataxia Helps Me Endure My Angel’s Struggle With Stairs

Angelman Syndrome News Columns

Ataxia is one of those words that sounds scary before you even know what it is. It’s one of the culprits that affect the coordination, balance, and walking of my ... Read more

July 28, 2022July 28, 2022

Planning Eases Anxiety When My Angel Is Getting a Haircut

Angelman Syndrome News Columns

When you’re raising a child with Angelman syndrome, even simple things like a haircut need a plan of action. I no longer try winging it when it’s time for my ... Read more

July 21, 2022July 21, 2022

Accepting These 3 Things Makes Living With Angelman Syndrome Easier

Angelman Syndrome News Columns

Raising our 12-year-old Angel, Juliana, seems to be getting easier in some ways. Research is improving, and scientists are learning more about Angelman syndrome. However, I don’t think our journey ... Read more

July 14, 2022July 14, 2022

Knocking Has Become an Effective Communication Tool for My Angel

Angelman Syndrome News Columns

Most people would agree that screaming is not the most effective way to communicate. Unfortunately, screaming has been the default for my 12-year-old Angel, Juliana, as long as I can ... Read more

July 7, 2022July 7, 2022

Despite Tough Days for Our Angel, We Don’t Abandon Our Plans

Angelman Syndrome News Columns

Although children with Angelman syndrome may smile a lot, anxiety and other health issues can change their disposition. If my 12-year-old Angel, Juliana, isn’t having the best day, we don’t ... Read more

June 30, 2022June 30, 2022

A Good Game Plan Helps Us Avoid Shoe-shopping Disasters

Angelman Syndrome News Columns

Shoe shopping with children can be frustrating. Keeping a tyke engaged while you try on multiple pairs of shoes takes time and patience. Shopping for shoes with a child with ... Read more

June 23, 2022June 23, 2022

Better Babysitters for My Angel Are Worth the Extra Effort

Angelman Syndrome News Columns

Choosing a babysitter for my 12-year-old Angel, Juliana, is no easy task. My goal is to choose the best caregiver to stand in for us when my husband and I ... Read more

June 16, 2022June 16, 2022

Personal Shopping Taught Me an Unexpected Lesson About Angelman Syndrome

Angelman Syndrome News Columns, COVID-19 Columns

As the parent of a 12-year-old Angel, Juliana, I’ll take whatever help I can get to save time and extra effort. Long before the COVID-19 pandemic struck, I began relying ... Read more

June 16, 2022June 17, 2022

Personal Shopping Taught Me an Unexpected Lesson About Angelman Syndrome

Angelman Syndrome News Columns, COVID-19 Columns

As the parent of a 12-year-old Angel, Juliana, I’ll take whatever help I can get to save time and extra effort. Long before the COVID-19 pandemic struck, I began relying ... Read more

June 9, 2022June 9, 2022

Communicating With My Angel Is a Trial-and-Error Process

Angelman Syndrome News Columns

Parents of children with Angelman syndrome occasionally may face behavior that is challenging to control or understand. Our 12-year-old Angel, Juliana, can spiral out of control in a matter of minutes. ... Read more

June 9, 2022June 17, 2022

Communicating With My Angel Is a Trial-and-Error Process

Angelman Syndrome News Columns

Parents of children with Angelman syndrome occasionally may face behavior that is challenging to control or understand. Our 12-year-old Angel, Juliana, can spiral out of control in a matter of minutes. ... Read more

June 2, 2022June 2, 2022

Establishing a Routine Helps Make Summer Transitions Smoother

Angelman Syndrome News Columns, COVID-19 Columns

Summer, which officially begins on June 21, is still quite a few days away. Nevertheless, I’m already in summer mode as I begin my 12-year-old Angel Juliana’s transition from school. ... Read more

June 2, 2022June 17, 2022

Establishing a Routine Helps Make Summer Transitions Smoother

Angelman Syndrome News Columns, COVID-19 Columns

Summer, which officially begins on June 21, is still quite a few days away. Nevertheless, I’m already in summer mode as I begin my 12-year-old Angel Juliana’s transition from school. ... Read more

May 26, 2022June 17, 2022

May Brings Mayhem for This Angel Mom

Angelman Syndrome News Columns

Our 12-year-old Angel, Juliana, is finishing her last year of elementary school. That means our already eventful month of May has kicked up a notch. There have been some different ... Read more

May 26, 2022May 26, 2022

May Brings Mayhem for This Angel Mom

Angelman Syndrome News Columns

Our 12-year-old Angel, Juliana, is finishing her last year of elementary school. That means our already eventful month of May has kicked up a notch. There have been some different ... Read more