Angelman Syndrome News Columns

January 13, 2022January 13, 2022

Lessons I Learned While Vaccinating My Kids Against COVID-19

Angelman Syndrome News Columns, COVID-19 Columns

Deciding to get yourself or your child vaccinated for COVID-19 is a personal choice. For us, the facts outweighed the myths. My 10-year-old daughter, Jessa, and our 11-year-old Angel, Juliana, ... Read more

January 6, 2022January 6, 2022

How I Smile Through My Journey with Angelman Syndrome

Angelman Syndrome News Columns

We are now almost 10 years into our journey with Angelman syndrome and I’m still smiling. Not a cheesy, pasted-on smile, but a smile that says things are tough sometimes but ... Read more

December 30, 2021December 30, 2021

The Devil on My Angel’s Shoulder

Angelman Syndrome News Columns

Although they present a happy demeanor, Angels can have bad days. Or bad weeks, which is what happens when my 11-year-old Angel, Juliana, is sick. Her sweet disposition is there ... Read more

December 23, 2021December 23, 2021

The Quirky Object of My Angel’s Obsession

Angelman Syndrome News Columns

My 11-year-old Angel, Juliana, has a fixation. A fixation is an intense focus or obsession. Some parents may view this as a bad thing, but experts say otherwise, and I’ve ... Read more

December 16, 2021December 16, 2021

When Your Angel Swipes Your Favorite Ornament

Angelman Syndrome News Columns

There’s a really significant Christmas bell rolling around my house these days. The bell used to be an ornament. Now it serves as a reminder for me to be flexible ... Read more

December 9, 2021December 9, 2021

One Size Doesn’t Fit All When It Comes to My Angel’s Christmas List

Angelman Syndrome News Columns

Finding the right gift for an Angel can be tough. However, when I decided to let go of old expectations, I was able to craft the perfect Christmas list for ... Read more

December 2, 2021December 2, 2021

Happier Holidays Happen When We Don’t Jump Through Hoops

Angelman Syndrome News Columns

The holiday season is here. For many people, there might be a mountain of little details to plan that perfect holiday. However, it’s simplicity that keeps me festive while managing ... Read more

November 18, 2021November 18, 2021

A Good Nighttime Routine Helps My Angel Find Her Sweet Dreams

Angelman Syndrome News Columns

Children with Angelman syndrome are known to have sleep issues, and I have heard and read trying tales about problems some families have encountered. But my 11-year-old Angel, Juliana, is ... Read more

November 11, 2021November 11, 2021

Staying Wishful While Waiting for Our Angel to Walk

Angelman Syndrome News Columns

Walking is something many of us take for granted. It seems so simple — you just put one foot in front of the other and go. But as the parent ... Read more

November 4, 2021November 4, 2021

An Adoption Question That Needs No Response

Angelman Syndrome News Columns

People used to ask me sometimes if my husband and I knew when we adopted our daughter, Juliana, that she had Angelman syndrome. My answer, of course, has always been ... Read more

October 28, 2021October 28, 2021

My Angel Gets Her Voice With an AAC Device

Angelman Syndrome News Columns

It’s never too late for an Angel to find her voice. This past summer, Juliana, 11, finally got an iPad as her dedicated augmentative and alternative communication (AAC) device. Getting ... Read more

October 21, 2021October 21, 2021

How We Kissed Our Angel’s Reflux Goodbye

Angelman Syndrome News Columns

Reflux and constipation are not pretty words to hear. Unfortunately, when you’re the parent of an Angel, you may hear them a lot. My 11-year-old Angel, Juliana, is now far ... Read more

October 14, 2021October 14, 2021

Modified Trick-or-Treating Saves Halloween for Our Family

Angelman Syndrome News Columns

When you’re raising a child with Angelman syndrome, even Halloween plans need modifications. For the past several years, we have been changing the way we handle the beloved event of ... Read more

October 7, 2021October 7, 2021

When Perfect Plans Fail, Just Do Them Over

Angelman Syndrome News Columns

As the parent of an Angel, I have learned that things don’t always go as planned. My 11-year-old Angel, Juliana, is getting better at a lot of things as she ... Read more

September 30, 2021September 30, 2021

My Angel’s Superpower Shines on World Smile Day

Angelman Syndrome News Columns

If I hadn’t seen it countless times, I would never believe a smile could make someone’s day. Leave it to my 11-year-old Angelman child’s happy demeanor to do just that. ... Read more