ANCA Vasculitis News

March 3, 2021March 3, 2021

Relative Benefits, Risks of AAV Induction and Maintenance Therapies Reviewed

The antibody rituximab is a good alternative to cyclophosphamide for inducing remission in people with ANCA-associated vasculitis (AAV), and is better than azathioprine as a maintenance therapy, researchers reported. These ... Read more

March 1, 2021March 1, 2021

Most Vasculitis Patients Willing to Get COVID-19 Vaccine, Survey Finds

ANCA Vasculitis News, COVID-19 News

The majority of people with ANCA-associated vasculitis (AAV) and other forms of vasculitis plan to get the COVID-19 vaccine, and about one-third has already received at least one dose, a ... Read more

February 26, 2021February 26, 2021

Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

ANCA Vasculitis News, COVID-19 News

Diagnosed with sickle cell disease as a 6-month-old, Tristan Lee has faced a lot of challenges over his 37 years of life. But from a young age, he also learned ... Read more

February 24, 2021February 24, 2021

COVID Reinfection Possibly Due to Immunosuppressant Use for AAV

ANCA Vasculitis News, COVID-19 News

A woman was potentially reinfected with SARS-CoV-2 — the virus that causes COVID-19 — while on immunosuppressive therapy for ANCA-associated vasculitis (AAV). This case suggests that immunosuppressed patients are at risk ... Read more

February 23, 2021February 23, 2021

Rare Disease Day at NIH, Set for March 1, Growing Year by Year

ANCA Vasculitis News, COVID-19 News

Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1, will feature panel discussions, patient stories, research updates, TED-style talks, and a ... Read more

February 22, 2021February 23, 2021

Avacopan May Be Effective Option to Steroids for AAV, Phase 3 Trial Finds

ANCA Vasculitis News

Use of avacopan can increase remission rates and improve kidney function in people with ANCA-associated vasculitis (AAV), while limiting the toxicity associated with standard steroid therapy, according to results from ... Read more

February 17, 2021February 17, 2021

Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

ANCA Vasculitis News

People with rare disorders have a worse healthcare experience than those affected by chronic diseases, according to the results of an international survey conducted by Eurordis-Rare Diseases Europe. Indeed, rare ... Read more

February 15, 2021February 15, 2021

Factors Predicting Serious AAV Infections Found to Vary Over Time

ANCA Vasculitis News

The risk factors that predict serious infections in people with ANCA-associated vasculitis (AAV) vary with time, a study found. Factors associated with early infection include age and admission to an ... Read more

February 10, 2021February 10, 2021

Pandemic Won’t Stop Rare Disease Day on Feb. 28

ANCA Vasculitis News, COVID-19 News

Scores of virtual events are afoot around the world to mark Rare Disease Day 2021 on Feb. 28. The activities are focused on heightening awareness about rare diseases and the ... Read more

February 8, 2021February 8, 2021

Models May Help in Weighing Risks of Rituximab’s Long-term Use in AAV

ANCA Vasculitis News

New statistical models could help to predict the risk of relapse and infection following ongoing rituximab treatment in people with ANCA-associated vasculitis (AAV), a study suggests. These models may aid ... Read more

February 3, 2021February 3, 2021

Infections Triggering MPO-AAV Should Be Considered in Treatment, Review Suggests

ANCA Vasculitis News

In some cases, infections may trigger the development of ANCA-associated vasculitis (AAV) with antibodies against the myeloperoxidase (MPO) protein, but the condition — known as AAV-MPO — typically regresses after ... Read more

February 1, 2021February 2, 2021

NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

ANCA Vasculitis News

While progress was made last year on newborn screening and other policy issues critical to rare disease patients, a “State Report Card” argues that many concerns — notably out-of-pocket costs ... Read more

January 27, 2021January 28, 2021

Vasculitis Foundation to Mark Awareness Month With ‘Patient Heroes’ Cards

ANCA Vasculitis News

The Vasculitis Foundation is urging people living with vasculitis to tell their personal stories on collectable baseball-type cards named “Patient Heroes.” This inaugural initiative will be part of this year’s Vasculitis ... Read more

January 25, 2021January 25, 2021

Immune Cell Ratio Can Help Identify Patients at High Risk of Infection

ANCA Vasculitis News

A higher ratio of disease-inducing neutrophils to lymphocytes at diagnosis may help predict severe infections and mortality in people with ANCA-associated vasculitis (AAV) taking immunosuppression therapy, a study suggests. The ... Read more

January 20, 2021February 22, 2021

NORD’s Caregiver Respite Program Continues Through Pandemic

ANCA Vasculitis News, COVID-19 News

Caring for a loved one with a rare disease, especially during these uncertain times, demands significant time, attention, patience, and dedication. To help meet that need, the National Organization for ... Read more