ANCA Vasculitis News

June 21, 2021June 21, 2021

EveryLife Introduces First of Kind ‘Roadmap’ to ICD Codes

ANCA Vasculitis News

To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes — are assigned, updated, and revised in the U.S. health ... Read more

June 17, 2021June 21, 2021

Get Ready for NORD’s Patient and Family Forum, Set for June 26-27

ANCA Vasculitis News, COVID-19 News

Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual Living Rare Living Stronger Patient and Family Forum, hosted by the ... Read more

June 16, 2021June 16, 2021

Abstract on How Avacopan Affects Kidney Function Makes Top 10 List

ANCA Vasculitis News

Treatment with ChemoCentryx’s investigational therapy avacopan can improve kidney function in people with ANCA-associated vasculitis to a greater extent than steroids, especially among individuals with advanced kidney disease, clinical trial ... Read more

June 14, 2021June 14, 2021

Get Ready for NORD’s Patient and Family Forum, Set for June 26-27

ANCA Vasculitis News, COVID-19 News

Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual Living Rare Living Stronger Patient and Family Forum, hosted by the ... Read more

June 9, 2021June 9, 2021

Vasculitis UK Funds 4 Research Projects in AAV, Other Vasculitis

ANCA Vasculitis News, COVID-19 News

Vasculitis UK has awarded a total of £200,000 (about $283,000) in four grants to research projects mostly focused on the development of new therapeutic approaches and biomarkers for ANCA-associated vasculitis ... Read more

June 7, 2021June 7, 2021

Rare 2030 Action Campaign Pushing for European Plan for Rare Diseases

ANCA Vasculitis News

Eurordis opened a campaign, called Rare 2030 Action, that is seeking to establish a European action plan for rare diseases to ensure that none of the 30 million people in ... Read more

June 2, 2021June 3, 2021

V-RED Awards Honor 3 Physicians for Early Vasculitis Diagnoses

ANCA Vasculitis News

The Vasculitis Foundation‘s Excellence in Diagnostics (V-RED) award program — which has grown into an awareness campaign — is this year honoring an endocrinologist, a primary care physician, and a ... Read more

May 26, 2021May 27, 2021

Most Adhered to Treatment During COVID-19 Lockdowns

ANCA Vasculitis News, COVID-19 News

About one-third of patients with ANCA-associated vasculitis (AAV) or other forms of vasculitis postponed at least one of their healthcare visits during the first months of the COVID-19 pandemic, but ... Read more

May 24, 2021May 24, 2021

Low BMI in Older MPA Patients Linked to High Infection Risk

ANCA Vasculitis News

Being underweight at diagnosis, with a low body mass index (BMI), is associated with a significantly greater risk of severe infections in older adults with microscopic polyangiitis (MPA), a recent ... Read more

May 19, 2021May 19, 2021

Expert Panel Issues Guidance on Rituximab and COVID-19 Vaccination

ANCA Vasculitis News, COVID-19 News

A group of European experts have drafted a series of recommendations for the use of immunosuppressive therapies, such as rituximab, and the timing for COVID-19 vaccination in people with ANCA-associated ... Read more

May 17, 2021May 18, 2021

Vilobelimab Safe, Well-tolerated in Phase 2 IXPLORE Study

ANCA Vasculitis News

Adding vilobelimab (IFX-1) to standard of care treatment is safe and well-tolerated among patients with ANCA-associated vasculitis (AAV), according to top-line results from the ongoing Phase 2 IXPLORE study. Some ... Read more

May 12, 2021May 12, 2021

AAV Cases Near Quarries Support Silica as Environmental Trigger, Study Says

ANCA Vasculitis News

The likelihood of developing ANCA-associated vasculitis rises significantly among people living near quarries that extract quartz with silica, a data analysis from France reported.  Its findings also support silica exposure ... Read more

May 10, 2021May 10, 2021

FDA Advisory Committee Narrowly Supports Approval of Avacopan

ANCA Vasculitis News

A committee of the U.S. Food and Drug Administration (FDA) — which provides the agency with non-binding recommendations from independent medical experts — has narrowly supported the approval of avacopan ... Read more

May 5, 2021May 5, 2021

Activities Abound for Vasculitis Awareness Month

ANCA Vasculitis News, COVID-19 News

Activities ranging from sporting wearable art to highlighting “patient heroes” are underway to mark Vasculitis Awareness Month (VAM), set aside each May to call attention to this rare autoimmune disease. ... Read more

May 3, 2021May 3, 2021

Scientists Identify Molecule That Triggers AAV-related Defense Mechanism

ANCA Vasculitis News

A molecule released by platelets — cell fragments in the blood that form clots and stop or prevent bleeding — appears to contribute to the progression of ANCA-associated vasculitis (AAV) ... Read more