ALS News Today Columns

August 4, 2022August 4, 2022

Circling Back Around: Finding Patterns in Life With ALS

ALS News Today Columns

I remember those days when it was hard to get out of the house with our newborns. Two weeks after our daughter was born, my husband, Todd, and I celebrated ... Read more

August 2, 2022August 2, 2022

My COVID-19 Recovery Took Weeks, but I’m Staying Positive

ALS News Today Columns, COVID-19 Columns

There I was, just living each day and minding my own business. I was following all the guidelines from the U.S. Centers for Disease Control and Prevention and wearing a ... Read more

July 28, 2022July 28, 2022

Rediscovering Music and Memories in Our Marriage and ALS Journey

ALS News Today Columns

Music had been a source of connection and mild contention early in my relationship with my husband, Todd, but it hadn’t been much of either since Todd became paralyzed due ... Read more

July 21, 2022July 21, 2022

Appreciating the Small Victories While Living With ALS

ALS News Today Columns

My husband, Todd, has ALS and is paralyzed, so not only do I cook all the meals, but I also feed him. His meals are often rushed or delayed because ... Read more

July 14, 2022July 14, 2022

Flying ‘Into the Light of a Dark Black Night’ With ALS

ALS News Today Columns

One evening, I took my daily walk in the Nara Nature Park in Houghton, Michigan. As I made my way around a network of wooden boardwalks, through a marsh, and ... Read more

July 12, 2022July 12, 2022

Living With ALS Is a Matter of Letting Go and Keeping On

ALS News Today Columns

Newly diagnosed ALS patients often contact me and ask what I eat, what I do, and how I’ve managed to continue living with ALS for the past 12 years. I ... Read more

July 7, 2022July 7, 2022

Finding Necessary Distractions From the Challenges of Life With ALS

ALS News Today Columns

It’s nice to have distractions from the difficulty of life with ALS, so I was in a pretty good mood for the past week because my brothers, sister-in-law, and nieces ... Read more

July 5, 2022July 5, 2022

My ALS Week: Voice Therapy, New Exercise Ideas, and the Loss of a Colleague

ALS News Today Columns

This past week had me experiencing a roller coaster of emotions. I started with a feeling of pride while reading a recent study that validated my at-home voice therapy sessions. ... Read more

June 30, 2022June 30, 2022

We Are Always Preparing to Manage Life on Our Own

ALS News Today Columns

When my 12-year-old son, Isaac, went to mow the grass last week, he noticed that one of the tires had come off the rim. My husband, Todd, purchased the zero-turn ... Read more

June 28, 2022June 28, 2022

In Memoriam: Rick Jobus, Feb. 6, 1958-June 19, 2022

ALS News Today Columns

Courtesy of Rick Jobus It is with deep sadness that we inform the ALS News Today community of the passing of our friend and treasured columnist, Rick Jobus, on June ... Read more

June 28, 2022June 29, 2022

In Memoriam: Rick Jobus, Feb. 6, 1958-June 19, 2022

ALS News Today Columns

Courtesy of Rick Jobus It is with deep sadness that we inform the ALS News Today community of the passing of our friend and treasured columnist, Rick Jobus, on June ... Read more

June 28, 2022June 28, 2022

I Just Received a Diagnosis of ALS. What Now?

ALS News Today Columns

Sometimes the simplest things can help us the most. That’s what I learned in the months right after I received a diagnosis of ALS. Like most newly diagnosed ALS patients, ... Read more

June 23, 2022June 23, 2022

What Risks Are We Willing to Take?

ALS News Today Columns

“What if Todd had aspirated while you were on your spring break trip?” someone asked me. That’s the type of question I’ve asked myself many times over the last decade ... Read more

June 16, 2022June 16, 2022

Reflecting on 12 Years Since the ALS Diagnosis

ALS News Today Columns

“Kristin, if you can’t choose joy for yourself, then do it so Todd’s remaining days and years won’t be miserable,” I wrote in my journal a month after my husband, ... Read more

June 16, 2022June 20, 2022

Reflecting on 12 Years Since the ALS Diagnosis

ALS News Today Columns

“Kristin, if you can’t choose joy for yourself, then do it so Todd’s remaining days and years won’t be miserable,” I wrote in my journal a month after my husband, ... Read more