ALS News Today Columns

September 24, 2020September 24, 2020

Finding My People

ALS News Today Columns

I cried again as I read yet another social media post by a caregiving spouse whose husband just died from ALS. ALS kills someone every 90 minutes, and I’ve made ... Read more

September 22, 2020September 22, 2020

When We Do Something, Something Happens

ALS News Today Columns, COVID-19 Columns

Hang on tightly, it’s another week of weather events, news alerts, and a continuing health crisis. I feel like I’m riding on a big airplane flying through rough turbulence. Certainly, ... Read more

September 17, 2020September 17, 2020

The Burden of Knowing the Future

ALS News Today Columns

Lulu Wang’s film “The Farewell” is based on an actual lie. The 2019 comedic drama looks at a family’s decision to keep their matriarch ignorant of her stage IV lung ... Read more

September 15, 2020September 15, 2020

Things to Do While Waiting for a Cure

ALS News Today Columns, COVID-19 Columns

Big news buzzed through the ALS community last week about AMX0035, an investigational treatment for ALS that just finished a Phase 2/3 clinical trial. Early results indicated that AMX0035 slowed ... Read more

September 10, 2020September 10, 2020

Gaining Perspective Through Journaling

ALS News Today Columns

Perspective can be hard to come by with ALS, but writing has helped me keep my head above water. I’ve kept a journal since I was a kid. I wrote ... Read more

September 8, 2020September 8, 2020

Learning to Pivot When Living With ALS

ALS News Today Columns, COVID-19 Columns

All around me, I’ve been noticing how people, businesses, and organizations are pivoting to survive these challenging times. We’re getting confident using Zoom, dine-in restaurants have expanded their takeout business, ... Read more

September 8, 2020September 10, 2020

Learning to Pivot When Living With ALS

ALS News Today Columns, COVID-19 Columns

All around me, I’ve been noticing how people, businesses, and organizations are pivoting to survive these challenging times. We’re getting confident using Zoom, dine-in restaurants have expanded their takeout business, ... Read more

September 3, 2020September 3, 2020

Now, Our Favorite Restaurant Is Inaccessible to All

ALS News Today Columns

My husband, Todd, and I celebrated our 17th wedding anniversary in late August with a date at Fitzgerald’s, a restaurant built on the shore of Lake Superior in Eagle River, ... Read more

September 3, 2020September 10, 2020

Now, Our Favorite Restaurant Is Inaccessible to All

ALS News Today Columns

My husband, Todd, and I celebrated our 17th wedding anniversary in late August with a date at Fitzgerald’s, a restaurant built on the shore of Lake Superior in Eagle River, ... Read more

September 1, 2020September 1, 2020

Going With My Gut

ALS News Today Columns, COVID-19 Columns

Looking forward to getting a flu shot is something I never thought possible. But at this point in what has been a very strange year, it’s a darned good excuse ... Read more

September 1, 2020September 10, 2020

Going With My Gut

ALS News Today Columns, COVID-19 Columns

Looking forward to getting a flu shot is something I never thought possible. But at this point in what has been a very strange year, it’s a darned good excuse ... Read more

August 27, 2020August 28, 2020

Friends Who Can Handle Chronic Illness

ALS News Today Columns

In his book “Out of Solitude,” Henri Nouwen writes, “When we honestly ask ourselves which persons in our lives mean the most to us, we often find that it is ... Read more

August 27, 2020September 10, 2020

Friends Who Can Handle Chronic Illness

ALS News Today Columns

In his book “Out of Solitude,” Henri Nouwen writes, “When we honestly ask ourselves which persons in our lives mean the most to us, we often find that it is ... Read more

August 26, 2020August 26, 2020

Finding Sweetness in the Eye of the Storm

ALS News Today Columns

Just like Lionel Barrymore as James Temple in “Key Largo“ and Gary Sinise as Lt. Dan Taylor in “Forrest Gump,” I survived a hurricane wheelchair-bound. Unlike the original works that ... Read more

August 26, 2020September 10, 2020

Finding Sweetness in the Eye of the Storm

ALS News Today Columns

Just like Lionel Barrymore as James Temple in “Key Largo“ and Gary Sinise as Lt. Dan Taylor in “Forrest Gump,” I survived a hurricane wheelchair-bound. Unlike the original works that ... Read more