Recent COVID-19 News

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Featured Article

11-year-old With aHUS Patiently Waiting for a Kidney
aHUS News, COVID-19 News
July 28, 2021
On the outside, Khloe Sudol seems like a normal 11-year-old. The quiet, reserved girl is full of energy, filling her time with horseback riding, swimming, and school work. But on the inside, her kidneys have failed as a result of the ultra-rare disease atypical hemolytic uremic syndrome (aHUS), which causes blood clots to form in […] [read/download]
FDA Greenlights Stem Cells Trial Aiming to Improve Quality of Life
COVID-19 News, Multiple Sclerosis News Today
July 28, 2021
The U.S. Food and Drug Administration (FDA) has given the green light to a Phase 2 clinical trial that will assess the efficacy of using adult mesenchymal stem cells (MSCs) to treat the symptoms of mild to moderate multiple sclerosis (MS). The non-profit Hope Biosciences Stem Cell Research Foundation (HBSCRF), which received the FDA authorization, believes such stem […] [read/download]
AC Immune Acquires Experimental Vaccine PD01, Other Therapies
COVID-19 News, Parkinson's News Today
July 28, 2021
Parkinson’s vaccine candidate Affitope PD01, along with maker Affiris’ portfolio of other alpha-synuclein-targeting therapies, was acquired by AC Immune in a recent deal valued at nearly $60 million. “We believe very strongly that active vaccination will play an important role in the long-term management and possible prevention of neurodegenerative diseases,” Andrea Pfeifer, PhD, CEO of […] [read/download]
Rare Myopathy Affects Women, Too, Advocate Emphasizes
COVID-19 News, Muscular Dystrophy News
July 27, 2021
After being diagnosed as a carrier of x-linked myotubular myopathy (XLMTM) and losing her infant twin boys to the disease, Ashley Walker was driven into an episode of alcoholism. What she didn’t know then was that her liver was affected severely by the disease, which eventually resulted in an emergency room visit for pancreatitis (inflammation […] [read/download]
Rituximab Safe, Effective in Case of Sjogren’s-related ILD
COVID-19 News, Sjogren's Syndrome News
July 27, 2021
Rituximab safely and effectively treated sudden interstitial lung disease (ILD) in a 49-year-old man with undiagnosed primary Sjögren’s syndrome, a case study shows. case adds to a growing number of reports and case series showing that rituximab lessens lung involvement in Sjögren’s patients, further supporting the usefulness of the immunosuppressive treatment in this patient […] [read/download]
Every ALS Patient in New Jersey to Get Free Eye Gaze Technology
ALS News Today, COVID-19 News
July 27, 2021
Thanks to a new partnership, every amyotrophic lateral sclerosis (ALS) patient in New Jersey, about 400 in total, will have free access to eye gaze technology that can aid them in communicating. As the name suggests, this assistive technology helps people with neurodegenerative diseases, such as ALS, to communicate using their eyes. The $1.1 million […] [read/download]
R-107 Stops PAH Progression, Reverses Hypertension in Rats
COVID-19 News, Pulmonary Hypertension News
July 26, 2021
An investigational therapy called R-107 completely stopped the progression of pulmonary arterial hypertension (PAH) in a rat model and may become the first medicine to reverse the increasing blood pressure characteristic of the disease, a study suggested. Now, R-107’s developer, Claritas Pharmaceuticals, plans to begin clinical testing in humans. “The data from this study are […] [read/download]
PF Diagnosis, Care in UK Also Fell to COVID-19 Pandemic
COVID-19 News, Pulmonary Fibrosis News
July 26, 2021
More than 100,000 fewer hospital appointments were logged by people with lung diseases like idiopathic pulmonary fibrosis (IPF) in England between March 2020 and 2021, relative to the average annual number of such appointments — which the Taskforce for Lung Health attributed to the COVID-19 pandemic and the strain it has put on hospital resources. […] [read/download]
Gilenya Started Earlier in RRMS Disease Course in Recent Years
COVID-19 News, Multiple Sclerosis News Today
July 26, 2021
People with relapsing-remitting multiple sclerosis (RRMS) have switched to treatment with Gilenya (fingolimod) at an earlier stage in their disease in recent years, compared to individuals who switched to the treatment around the time it became available, a new study indicates. The findings suggest “an increased experience in using fingolimod [Gilenya] for sub-optimally treated RRMS […] [read/download]
Digital Technology Changing Parkinson’s Research, Clinical Care
COVID-19 News, Parkinson's News Today
July 23, 2021
Digital health technology, which spans phone apps to telemedicine, is advancing Parkinson’s disease research and clinical care, according to different review studies. “Digital health technology is an important and promising field that is beginning to make a real tangible impact on persons with [Parkinson’s disease],” Anat Mirelman, PhD, a neurology specialist at Tel Aviv University […] [read/download]

Testing Out a New Lung at High Elevations
COVID-19 Columns, Pulmonary Fibrosis News Columns
July 28, 2021
The moment my parents, Diana and Jack, were in the clear two weeks after their second COVID-19 vaccine, they hopped on a plane to see their three grandchildren in Illinois. was about a month shy of my mom’s one-year lung transplant anniversary. Their trip was everything they had hoped for — grubby fingers, hugs, […] [read/download]
Where My PH Diagnosis and Disability Identity Intersect
COVID-19 Columns, Pulmonary Hypertension News Columns
July 27, 2021
I haven’t always identified as disabled, even though I lived with disability long before my initial pulmonary hypertension diagnosis in 2016. Adjusting to life with a chronic illness that affects breathing awakened a connection inside me to disability as part of my identity — one I felt had been dormant since childhood. I have navigated […] [read/download]
Learning the Truth About Privilege, and Being Grateful for Ours
COVID-19 Columns, Hemophilia News Today Columns
July 26, 2021
I recently came across an NBC News Think essay about the oft-overlooked privilege of being able to focus on one’s studies while in college. It reminded me of how my parents supported me through my own college years, and how I failed to fully appreciate how fortunate I was until I saw the flip side […] [read/download]
How I Discovered My Inner Superhero
COVID-19 Columns, Myasthenia Gravis News Columns
July 23, 2021
I started working as a speech therapist at a large academic hospital in January 2020. I was excited to start, and my passion for the job was coming out of my ears. But lurking behind the joy of getting such a thrilling job was a buildup of anxiety, shame, guilt, and self-doubt. At the time […] [read/download]
My Concerns as COVID-19 Restrictions Are Lifted in the UK
COVID-19 Columns, Sickle Cell Disease News Columns
July 23, 2021
Most COVID-19 restriction laws were lifted in England on July 19. includes mask requirements, social distancing rules, work-from-home guidance, and the rule of six, or the maximum number of people allowed at a social gathering. July 19 has been dubbed “Freedom Day” here in the U.K., but I can’t help but worry how this […] [read/download]
The F-words I’m Focusing on Following My Fracture
COVID-19 Columns, Sarcoidosis News Columns
July 23, 2021
No, not that one. The other day, I Fell and Fractured my Foot (though I admit I probably said the other F-word a few times when it happened). I sprained my ankle, too, just to make it more Fun. It was the Fifth metatarsal on the outer side of my right foot, the long bone […] [read/download]
Please Be Mindful When Speaking to Someone With a Chronic Illness
COVID-19 Columns, Sickle Cell Disease News Columns
July 21, 2021
When speaking to a person with a chronic illness, you might do and say things with the best of intentions, but sometimes it may not translate well. Following are some of the things I don’t like to hear. Apologies Sometimes when I tell someone I have sickle cell disease, they’ll instantly apologize. I don’t believe […] [read/download]
Learning My Limitations and Planning Ahead Makes Summer Enjoyable
COVID-19 Columns, Pulmonary Hypertension News Columns
July 21, 2021
Something about sunshine boosts my mood. Do you find that to be true, too? For me, warmer months bring to mind fun memories of childhood traditions. When I was growing up, my family had a camp on the water. Family picnics, and beach and boat outings are some of my best lifelong memories. I’ve always […] [read/download]
The Friends and Fate I Chose Thanks to ‘Dragon Age: Inquisition’
COVID-19 Columns, SMA News Today Columns
July 21, 2021
I never planned on writing about video games for my column. But after three columns about four games by two different studios and counting, I thought it’d be fun to tell the origin story of how gaming became a big part of my life and disability advocacy. So, hit pause on whatever you’re doing (except […] [read/download]
What Happens When the Carer Needs Care?
COVID-19 Columns, Hemophilia News Today Columns
July 19, 2021
I’ve been sick for most of this week with digestive issues. is a chronic condition for me, but it always bothers me when it happens. I’m weak and unable to do much. I must gauge my energy levels and try to squeeze important tasks into the moments I feel relatively fine. The electrolyte loss […] [read/download]

11-year-old With aHUS Patiently Waiting for a Kidney
aHUS News, COVID-19 News
July 28, 2021
On the outside, Khloe Sudol seems like a normal 11-year-old. The quiet, reserved girl is full of energy, filling her time with horseback riding, swimming, and school work. But on the inside, her kidneys have failed as a result of the ultra-rare disease atypical hemolytic uremic syndrome (aHUS), which causes blood clots to form in […] [read/download]
FDA Greenlights Stem Cells Trial Aiming to Improve Quality of Life
COVID-19 News, Multiple Sclerosis News Today
July 28, 2021
The U.S. Food and Drug Administration (FDA) has given the green light to a Phase 2 clinical trial that will assess the efficacy of using adult mesenchymal stem cells (MSCs) to treat the symptoms of mild to moderate multiple sclerosis (MS). The non-profit Hope Biosciences Stem Cell Research Foundation (HBSCRF), which received the FDA authorization, believes such stem […] [read/download]
AC Immune Acquires Experimental Vaccine PD01, Other Therapies
COVID-19 News, Parkinson's News Today
July 28, 2021
Parkinson’s vaccine candidate Affitope PD01, along with maker Affiris’ portfolio of other alpha-synuclein-targeting therapies, was acquired by AC Immune in a recent deal valued at nearly $60 million. “We believe very strongly that active vaccination will play an important role in the long-term management and possible prevention of neurodegenerative diseases,” Andrea Pfeifer, PhD, CEO of […] [read/download]
Rare Myopathy Affects Women, Too, Advocate Emphasizes
COVID-19 News, Muscular Dystrophy News
July 27, 2021
After being diagnosed as a carrier of x-linked myotubular myopathy (XLMTM) and losing her infant twin boys to the disease, Ashley Walker was driven into an episode of alcoholism. What she didn’t know then was that her liver was affected severely by the disease, which eventually resulted in an emergency room visit for pancreatitis (inflammation […] [read/download]
Rituximab Safe, Effective in Case of Sjogren’s-related ILD
COVID-19 News, Sjogren's Syndrome News
July 27, 2021
Rituximab safely and effectively treated sudden interstitial lung disease (ILD) in a 49-year-old man with undiagnosed primary Sjögren’s syndrome, a case study shows. case adds to a growing number of reports and case series showing that rituximab lessens lung involvement in Sjögren’s patients, further supporting the usefulness of the immunosuppressive treatment in this patient […] [read/download]
Every ALS Patient in New Jersey to Get Free Eye Gaze Technology
ALS News Today, COVID-19 News
July 27, 2021
Thanks to a new partnership, every amyotrophic lateral sclerosis (ALS) patient in New Jersey, about 400 in total, will have free access to eye gaze technology that can aid them in communicating. As the name suggests, this assistive technology helps people with neurodegenerative diseases, such as ALS, to communicate using their eyes. The $1.1 million […] [read/download]
R-107 Stops PAH Progression, Reverses Hypertension in Rats
COVID-19 News, Pulmonary Hypertension News
July 26, 2021
An investigational therapy called R-107 completely stopped the progression of pulmonary arterial hypertension (PAH) in a rat model and may become the first medicine to reverse the increasing blood pressure characteristic of the disease, a study suggested. Now, R-107’s developer, Claritas Pharmaceuticals, plans to begin clinical testing in humans. “The data from this study are […] [read/download]
PF Diagnosis, Care in UK Also Fell to COVID-19 Pandemic
COVID-19 News, Pulmonary Fibrosis News
July 26, 2021
More than 100,000 fewer hospital appointments were logged by people with lung diseases like idiopathic pulmonary fibrosis (IPF) in England between March 2020 and 2021, relative to the average annual number of such appointments — which the Taskforce for Lung Health attributed to the COVID-19 pandemic and the strain it has put on hospital resources. […] [read/download]
Gilenya Started Earlier in RRMS Disease Course in Recent Years
COVID-19 News, Multiple Sclerosis News Today
July 26, 2021
People with relapsing-remitting multiple sclerosis (RRMS) have switched to treatment with Gilenya (fingolimod) at an earlier stage in their disease in recent years, compared to individuals who switched to the treatment around the time it became available, a new study indicates. The findings suggest “an increased experience in using fingolimod [Gilenya] for sub-optimally treated RRMS […] [read/download]
Digital Technology Changing Parkinson’s Research, Clinical Care
COVID-19 News, Parkinson's News Today
July 23, 2021
Digital health technology, which spans phone apps to telemedicine, is advancing Parkinson’s disease research and clinical care, according to different review studies. “Digital health technology is an important and promising field that is beginning to make a real tangible impact on persons with [Parkinson’s disease],” Anat Mirelman, PhD, a neurology specialist at Tel Aviv University […] [read/download]

Testing Out a New Lung at High Elevations
COVID-19 Columns, Pulmonary Fibrosis News Columns
July 28, 2021
The moment my parents, Diana and Jack, were in the clear two weeks after their second COVID-19 vaccine, they hopped on a plane to see their three grandchildren in Illinois. was about a month shy of my mom’s one-year lung transplant anniversary. Their trip was everything they had hoped for — grubby fingers, hugs, […] [read/download]
Where My PH Diagnosis and Disability Identity Intersect
COVID-19 Columns, Pulmonary Hypertension News Columns
July 27, 2021
I haven’t always identified as disabled, even though I lived with disability long before my initial pulmonary hypertension diagnosis in 2016. Adjusting to life with a chronic illness that affects breathing awakened a connection inside me to disability as part of my identity — one I felt had been dormant since childhood. I have navigated […] [read/download]
Learning the Truth About Privilege, and Being Grateful for Ours
COVID-19 Columns, Hemophilia News Today Columns
July 26, 2021
I recently came across an NBC News Think essay about the oft-overlooked privilege of being able to focus on one’s studies while in college. It reminded me of how my parents supported me through my own college years, and how I failed to fully appreciate how fortunate I was until I saw the flip side […] [read/download]
How I Discovered My Inner Superhero
COVID-19 Columns, Myasthenia Gravis News Columns
July 23, 2021
I started working as a speech therapist at a large academic hospital in January 2020. I was excited to start, and my passion for the job was coming out of my ears. But lurking behind the joy of getting such a thrilling job was a buildup of anxiety, shame, guilt, and self-doubt. At the time […] [read/download]
My Concerns as COVID-19 Restrictions Are Lifted in the UK
COVID-19 Columns, Sickle Cell Disease News Columns
July 23, 2021
Most COVID-19 restriction laws were lifted in England on July 19. includes mask requirements, social distancing rules, work-from-home guidance, and the rule of six, or the maximum number of people allowed at a social gathering. July 19 has been dubbed “Freedom Day” here in the U.K., but I can’t help but worry how this […] [read/download]
The F-words I’m Focusing on Following My Fracture
COVID-19 Columns, Sarcoidosis News Columns
July 23, 2021
No, not that one. The other day, I Fell and Fractured my Foot (though I admit I probably said the other F-word a few times when it happened). I sprained my ankle, too, just to make it more Fun. It was the Fifth metatarsal on the outer side of my right foot, the long bone […] [read/download]
Please Be Mindful When Speaking to Someone With a Chronic Illness
COVID-19 Columns, Sickle Cell Disease News Columns
July 21, 2021
When speaking to a person with a chronic illness, you might do and say things with the best of intentions, but sometimes it may not translate well. Following are some of the things I don’t like to hear. Apologies Sometimes when I tell someone I have sickle cell disease, they’ll instantly apologize. I don’t believe […] [read/download]
Learning My Limitations and Planning Ahead Makes Summer Enjoyable
COVID-19 Columns, Pulmonary Hypertension News Columns
July 21, 2021
Something about sunshine boosts my mood. Do you find that to be true, too? For me, warmer months bring to mind fun memories of childhood traditions. When I was growing up, my family had a camp on the water. Family picnics, and beach and boat outings are some of my best lifelong memories. I’ve always […] [read/download]
The Friends and Fate I Chose Thanks to ‘Dragon Age: Inquisition’
COVID-19 Columns, SMA News Today Columns
July 21, 2021
I never planned on writing about video games for my column. But after three columns about four games by two different studios and counting, I thought it’d be fun to tell the origin story of how gaming became a big part of my life and disability advocacy. So, hit pause on whatever you’re doing (except […] [read/download]
What Happens When the Carer Needs Care?
COVID-19 Columns, Hemophilia News Today Columns
July 19, 2021
I’ve been sick for most of this week with digestive issues. is a chronic condition for me, but it always bothers me when it happens. I’m weak and unable to do much. I must gauge my energy levels and try to squeeze important tasks into the moments I feel relatively fine. The electrolyte loss […] [read/download]

Recent COVID-19 News

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SPECIAL REPORT: COVID-19