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My Concussion Worsened Instead of Getting Better
Friday, Sept. 18 is National Concussion Awareness Day. To raise more awareness of how dangerous ...
More from Lambert-Eaton News
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Wait Between Repeat Nerve Stimulation Tests in LEMS, Researcher Advises
When monitoring Lambert-Eaton myasthenic syndrome (LEMS) patients, physicians should wait at least 150 seconds between ... -
Same But Different Photo Contest Celebrates People With Rare Diseases
Same But Different, a U.K. nonprofit that uses the arts to bring communities together, is ... -
Catalyst, KYE Agree to Commercialize Firdapse for Adult LEMS Patients in Canada
Catalyst Pharmaceuticals and KYE Pharmaceuticals have reached an exclusive agreement that will enable KYE to commercialize ... -
Health Canada Approves Ruzurgi for LEMS Patients Ages 6 or Older
Health Canada has approved Ruzurgi (amifampridine) for the treatment of Lambert-Eaton myasthenic syndrome (LEMS) in ... -
EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to ... -
Firdapse Approved in Canada to Treat People With LEMS
Health Canada has approved the use of oral Firdapse (amifampridine) to treat people with Lambert-Eaton myasthenic syndrome ... -
New Streaming Channel Showcases Rare Disease Films
When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated ... -
Test Helps Assess Carpal Tunnel Syndrome in LEMS, Case Report Shows
A post-exercise facilitation test, which measures muscle activity following voluntary muscle contraction or electrical stimulation, ... -
National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US
The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease ... -
Scientists Validate New Tool for Estimating Cancer Risk in LEMS Patients
A new scoring tool can be used to effectively estimate the risk of developing small cell ... -
Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic
The Alexion Charitable Foundation has awarded $1.1 million in grants to programs that support those ... -
Specific Response Pattern to Nerve Stimulation May Help Diagnose LEMS
People with Lambert-Eaton myasthenia syndrome (LEMS) have a specific response pattern to repetitive nerve stimulation ... -
Singer Lukas Nelson Convinced Me to Build a Simple Garden
Music has always been my escape. One Christmas after I had back surgery as a ... -
Researchers Studying Cause of Autoimmune Diseases Awarded $1.95M Grant
A $1.95 million federal grant has been awarded to researchers investigating the underlying cause of ... -
Coalition Will Address Racial Disparities in Rare Disease Communities
The Black Women’s Health Imperative (BWHI) recently created a Rare Disease Diversity Coalition focused on ... -
Autoantibodies Targeting GRP78 Protein May Cause PCD in LEMS
Autoantibodies against a protein called GRP78 may lead to paraneoplastic cerebellar degeneration (PCD) in people with Lambert-Eaton ... -
LEMme Tell Ya About the Unexpected Benefits of Medicinal Cannabis
Second in a two-part series. Read part one. Pain management with cannabis takes conscientious planning ... -
COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say
While the ongoing COVID-19 pandemic won’t have much of an impact on cash available for ... -
LEMS-associated Respiratory Problems May Lead to Heart Dysfunction, Case Report Shows
Lambert‐Eaton myasthenic syndrome-associated diaphragm weakness and subsequent respiratory problems may impair heart function, a case ... -
LEMme Tell Ya About Medical Cannabis for Pain Relief
First in a two-part series. I am certain my children never thought they would see ... -
Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe
European authorities must step up efforts to screen babies for a multitude of genetic disorders, ... -
Video Games Connect Chronically Ill Children Isolated at Home, Hospital
Dara Riva always had a rule that her 10-year-old son could play video games only ... -
Unity and EU-wide Efforts Focus of Online Rare Disease Meeting
Eurordis, a Paris-based coalition of national rare disease associations across Europe, hosted its first all-virtual ... -
Catalyst Still Expecting Firdapse Approval in Canada in 2020
Despite the COVID-19 pandemic, Catalyst Pharmaceuticals is still expecting Firdapse (amifampridine) to be approved for the ... -
‘LEMme Tell Ya’ Patient Stories in Their Mothers’ Words: Lori Dunham
Every year since my Lambert-Eaton myasthenic syndrome (LEMS) diagnosis in 2016 has brought unexpected experiences. ... -
Good Long-term Outcomes Seen in Japanese Study, Regardless of Cancer
Japanese patients will Lambert‐Eaton myasthenic syndrome (LEMS) show long-term neurological improvements with treatment regardless of ... -
Honoring Motherless Daughters and Those Who Raised Us
Editor’s note: This column briefly discusses suicide. Another Mother’s Day is almost upon us. How ... -
Pregnancy and LEMS
Lambert-Eaton myasthenic syndrome (LEMS) is a rare autoimmune disease characterized by muscle weakness, among other ... -
Lower Electromyography Threshold Improves Accuracy of LEMS Diagnosis, Study Suggests
Increments, or increases in nerve responses, greater than 60% in electromyography (EMG) recordings upon short ... -
Recovery Is a Long Road Following My Concussion
When I was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) in 2016, I quickly learned that ... -
A Cautionary Tale About Hydroxychloroquine’s Side Effects
It seems that one can’t turn on the news, scroll through Twitter, or read Facebook ... -
Catalyst Pharmaceuticals Confirms Sufficient Supply of Firdapse
In a business update amid the COVID-19 pandemic, Catalyst Pharmaceuticals said it has ample supplies ... -
LEMS and Exercise
Lambert-Eaton myasthenic syndrome (LEMS) is a rare autoimmune disease characterized by the immune system mistakenly ... -
The Importance of Being Mindful During COVID-19
The cold surface felt good on my cheek. I turned my head to the other ... -
Experts Publish Guidance on Managing MG and LEMS During COVID-19 Pandemic
A group of experts have provided a series of recommendations for people with myasthenia gravis ... -
How to Stay Motivated With a Chronic Disease Like LEMS
Because only about 400 people live with Lambert-Eaton myasthenic syndrome (LEMS) in the U.S., it’s ... -
Mindfulness for People with LEMS
Symptoms of chronic diseases such as Lambert-Eaton myasthenic syndrome (LEMS) can present real challenges to ... -
Catalyst Expects No Supply Problems for Firdapse Due to COVID-19
Catalyst Pharmaceuticals says the COVID-19 pandemic is not likely to affect North American supplies of ... -
NORD’s Advice on COVID-19: You’re Stronger Than You Think
First, the bad news: If you’re one of the 30 million or so Americans with ... -
Building Emotional Resilience When You Have LEMS
Emotional resilience is a term used to describe how people respond to changes in life ... -
Timely Treatment Can Be Successful for LEMS Linked to Lung Adenocarcinoma, Case Study Suggests
Timely cancer treatment helped stabilize a 63-year-old man for more than six years who had ... -
Importance of Support Networks for Patients with LEMS
Developing and maintaining a good support network is important for physical and mental health. Positive ...