COVID-19 Columns, Huntington’s Disease News Columns Losing My Sense of Taste Taught Me a Lesson in Caregiving January 19, 2021January 19, 2021 Last November, I joined a club. I share this news with the same spirit that ...
Huntington's Disease News Study Links Cognitive Impairment to Reduced Gray Matter Volume January 19, 2021January 19, 2021 Based on MRI scans, Huntington’s disease patients with major cognitive impairments have reduced gray matter ...
Huntington's Disease News UK Rare Diseases Framework Opens to Improve Diagnosis, Access to Care January 14, 2021January 14, 2021 U.K. Rare Diseases Framework, a government-led approach to raising national awareness of rare disorders, accelerating ...
COVID-19 Columns, Huntington’s Disease News Columns No Matter Your Hardships, Today Is a Great Day to Be Alive January 13, 2021January 13, 2021 I’ve lost two moms in my lifetime. My biological mom, Debbie, who was with me ...
Huntington's Disease News Huntexil Analysis Shows Slowed Decline in Total Functional Capacity January 12, 2021January 12, 2021 Treatment with Huntexil (pridopidine) can slow the decline in total functional capacity in people with ...
Huntington’s Disease News Columns As Caregivers, We Can Choose a Positive Mindset January 12, 2021January 12, 2021 It’s all about the mindset. I suggest caregivers work on developing a positive mindset. It ...
COVID-19 Columns, Huntington’s Disease News Columns Focusing on What Is Good and Beautiful This Year January 5, 2021January 5, 2021 Hi, 2021. How are you? You have much to live up to. Last year, a ...
Huntington's Disease News ‘Dancing at the Vatican’ Spotlights Families’ Struggles, Joy at Meeting Pope January 5, 2021January 5, 2021 The Huntington’s Disease Association of Ireland (HDAI) is spreading the word about a new documentary ...
COVID-19 Columns, Huntington’s Disease News Columns Operation Warp Speed Should Inspire a Similar Effort for Rare Diseases December 22, 2020December 22, 2020 Whoever named Operation Warp Speed, the U.S. government’s project to produce and develop COVID-19 vaccines ...
Huntington's Disease News Natural History Study of Huntington’s Fully Enrolled, Triplet Says December 22, 2020December 22, 2020 Triplet Therapeutics announced it has completed patient enrollment in SHIELD HD, a natural history study ...
Huntington’s Disease News Columns Getting Involved in the Huntington’s Community Brings Great Rewards December 16, 2020December 16, 2020 I have only known one way to live in a family affected by a rare ...
Huntington's Disease News Single CDNF Protein Injection Shown to Protect Nerve Cells, Improve Motor Skills in Rats December 15, 2020December 15, 2020 A single injection of the protein CDNF — cerebral dopamine neurotrophic factor — into the brains ...
Huntington’s Disease News Columns The Turn-Negatives-Into-Positives Challenge December 15, 2020December 15, 2020 Thick rubber bands seem unbreakable. It takes effort to pull each end. In contrast, breaking ...
COVID-19 Columns, Huntington’s Disease News Columns Time Is the Best Gift to Share With Others December 8, 2020December 8, 2020 So … December is finally here. It’s the last month of the longest year ever, ...
Huntington's Disease News 1st Patient Dosed in Phase 2a Trial of Annexon’s Antibody Therapy for Huntington’s December 8, 2020December 8, 2020 The first participant was dosed in a Phase 2a clinical trial testing Annexon’s investigational therapy ANX005 ...
Huntington’s Disease News Columns Love Is the Mission December 1, 2020December 1, 2020 I usually write about what life is like as a caregiver, along with my observations ...
Huntington's Disease News Late-onset Huntington’s Has Fewer Motor Defects, Similar Cognitive Progression, Study Shows December 1, 2020December 1, 2020 Patients with early-onset Huntington’s disease (HD) experience more muscle and eye movement abnormalities, and more ...
COVID-19 News, Huntington's Disease News Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe November 26, 2020December 28, 2020 The first wave of COVID-19 in Europe severely disrupted access to care and raised stress and ...
Huntington’s Disease News Columns Would You Want to Know If You Have Huntington’s? November 25, 2020November 25, 2020 Editor’s note: This column briefly mentions the topic of suicide. Please find resources for help ...
COVID-19 Columns, Huntington’s Disease News Columns I’m Determined to Focus on Gratitude November 24, 2020November 24, 2020 Two years ago, my wife, Jill, took a genetic test and discovered she has Huntington’s ...
Huntington's Disease News Phase 1 Trial Will Test Oral PTC518 Candidate Therapy; First Results Due Early 2021 November 24, 2020November 24, 2020 A Phase 1 trial will evaluate PTC Therapeutic’s PTC518, its investigational therapy for Huntington’s disease, ...
Huntington’s Disease News Columns The Value of Consulting a Genetic Counselor During Testing November 18, 2020November 18, 2020 As I briefly touched on in my previous column, “Opportunities for a Better Genetic Testing ...
Huntington’s Disease News Columns The Definition of a Caregiver November 17, 2020November 17, 2020 At some point in the history of mankind, someone said, “Let’s raise awareness about [topic ...
Huntington's Disease News PDYN-derived Peptides Identified as Possible, Much-needed HD Biomarkers November 17, 2020November 17, 2020 Levels of proteins derived from prodynorphin (PDYN) — ultimately used during cell-to-cell signaling in the ...
Huntington’s Disease News Columns Paying Attention to My Wife’s Silent Suffering November 10, 2020November 10, 2020 The events of the past week have reminded me just how tough my wife, Jill, ...
Huntington's Disease News First Patients Enrolled in PROOF-HD Phase 3 Trial Testing Pridopidine November 10, 2020November 10, 2020 The first U.S. patients have been enrolled in PROOF-HD, a Phase 3 clinical trial investigating ...
Huntington’s Disease News Columns Fasting as a Means of Solidarity November 3, 2020November 3, 2020 When my sister died in a tragic accident a year ago, grief caused me to ...
Huntington's Disease News 1st Wexler Prize Given Scientist Studying Astrocytes Role in Huntington’s November 3, 2020November 3, 2020 The Hereditary Disease Foundation‘s (HDF) has announced the first winner of its Nancy S. Wexler Young Investigator ...
Huntington’s Disease News Columns Opportunities for a Better Genetic Testing Process October 28, 2020October 28, 2020 I’ve always tried to stay alert to the needs of the Huntington’s disease community by ...
Huntington's Disease News UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner October 28, 2020November 30, 2020 A photo of a bespectacled young boy, his red baseball cap slightly askew as he ...
Huntington’s Disease News Columns Making a Difference in the Upcoming Elections October 27, 2020October 27, 2020 When I write this column every week, I try to only share the things that ...
Huntington's Disease News Branaplam Receives Orphan Drug Designation for Huntington’s; Trial Planned for 2021 October 27, 2020October 27, 2020 The U.S. Food and Drug Administration (FDA) has given orphan drug designation to the oral ...
COVID-19 Columns, Huntington’s Disease News Columns Should I Get a Huntington’s Tattoo? October 23, 2020October 23, 2020 When I was a sophomore in college, I debated going blond. It was January, and ...
Huntington's Disease News FDA Puts Voyager’s Gene Therapy Candidate VY-HTT01 on Clinical Hold October 20, 2020October 20, 2020 The U.S. Food and Drug Administration (FDA) is putting on hold Voyager Therapeutics’ request to test VY-HTT01, its investigational ...
Huntington’s Disease News Columns It’s Not About You … It’s About Me October 20, 2020October 20, 2020 I have decided to get my wife a T-shirt that reads, “It’s not you, it’s ...
Huntington’s Disease News Columns Mental Preparedness Is Crucial Ahead of Genetic Testing October 14, 2020October 14, 2020 As I mentioned in my debut column of “Negative to Positives” a couple weeks ago, ...
Huntington's Disease News Safety Board Recommends AMT-130 Trial Continue Enrolling, Treating Patients October 13, 2020October 13, 2020 No significant safety concerns associated with AMT-130, uniQure’s experimental gene therapy for Huntington’s disease, were identified ...
Huntington’s Disease News Columns The Protective Mindset of a Caregiver October 13, 2020October 13, 2020 I’m protective, a trait typical of most men. For example, I will drive for 18 ...
Huntington's Disease News Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos October 6, 2020November 6, 2020 Same But Different, a nonprofit U.K. group that uses art for social change, is inviting ...
Huntington’s Disease News Columns Show, Don’t Tell: The Little Details That Count in Caregiving October 6, 2020October 6, 2020 When I first understood that I was going to be a writer, I did what ...
Huntington's Disease News Top-line Data Show Potential Cognitive Benefit of Pepinemab in Early Huntington’s Patients October 6, 2020October 6, 2020 Vaccinex’s investigational antibody pepinemab showed good tolerability in a Phase 2 clinical trial of people ...
Huntington’s Disease News Columns ‘The Good Place’ Reminds Me of the Importance of a Moment October 2, 2020October 2, 2020 On Saturday, the last season of the Netflix series “The Good Place” began streaming. To ...
Huntington’s Disease News Columns Welcome to ‘Negative to Positives,’ A New Huntington’s Disease Column September 30, 2020September 30, 2020 Like many of you reading, I am from a Huntington’s disease (HD) family. I learned ...
Huntington’s Disease News Columns Life Is Short, So Live It Well September 29, 2020September 29, 2020 The anniversary of my sister’s death is coming up in about a month. Rose died ...
Huntington's Disease News Phase 3 Trial of Oral Pridopidine in Early Stage Patients Opening Soon September 29, 2020September 29, 2020 Prilenia Therapeutics, in partnership with the Huntington Study Group (HSG), has launched the Phase 3 ...
Huntington’s Disease News Columns Learning to Expect the Unexpected September 22, 2020September 22, 2020 My wife, Jill, and I have not been to the local movie theater in months. ...
Huntington's Disease News New book, ‘Harry Needs a Hug,’ Helps Children Who Have Huntington’s in Their Family September 22, 2020September 22, 2020 A new book is available to help children cope when a family member has Huntington’s ...
COVID-19 Columns, Huntington’s Disease News Columns Finding a Therapist to Talk to About Huntington’s Can Be Hard September 18, 2020September 18, 2020 This week, I have my first therapy appointment in a while. I hope therapy will ...
Huntington’s Disease News Columns Writing Keeps This Caregiver Sane September 15, 2020September 15, 2020 I stumbled into my future profession when I took a creative writing class as a ...
Huntington's Disease News Huntington’s in Youth Closely Tied to Problems With School and Social Life September 15, 2020September 15, 2020 Behavioral changes due to early onset Huntington’s disease and problems with school, and social and family ...
Huntington’s Disease News Columns Learn How to Party On, Dude September 8, 2020September 8, 2020 One of summer’s guilty pleasures is watching mindless movies. On a recent weekend, Jill and ...
Huntington's Disease News TBK1 Enzyme Seen to Clear Mutant Huntingtin Protein in Disease Models September 8, 2020September 8, 2020 An enzyme called TANK‐binding kinase 1 (TBK1) can lower levels of the mutant huntingtin protein ...
Huntington’s Disease News Columns An Ant Invasion Reminds Me How Important Having My Rock Is September 4, 2020September 4, 2020 About a week ago, my boyfriend and I treated ourselves to Qdoba for lunch. I ...
COVID-19 Columns, Huntington’s Disease News Columns As Caregivers, We Can Choose to Be Empathetic and Patient September 1, 2020September 1, 2020 My mom is dying. She’s 90, has dementia, can’t walk, yells angrily at times, and ...
Huntington's Disease News Huntington’s Alters Brain Development Before Birth, Study Shows September 1, 2020September 1, 2020 Huntington’s disease alters nerve cell development in the cortex — a brain region largely affected ...
Huntington's Disease News Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input August 25, 2020September 26, 2020 Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed ...
Huntington's Disease News Gut Microbiome Seen to Differ in People With Huntington’s or at Disease Risk August 25, 2020August 26, 2020 Microbes in the gut of people with Huntington’s or likely to develop this disease appear to ...
Huntington’s Disease News Columns Telemedicine Makes Life Easier for Patients August 25, 2020August 26, 2020 Last year, I wrote about the possibility of telemedicine visits for Huntington’s patients with the ...
Huntington’s Disease News Columns Striving to Be as Carefree as a Kitten August 21, 2020August 21, 2020 I have been working from home since March and likely will continue to do so ...
Huntington’s Disease News Columns Living Outside the Box August 18, 2020August 18, 2020 If you could go anywhere on vacation, would you take your time planning the perfect ...
Huntington's Disease News Antidopaminergic Meds Ease Chorea But May Worsen Cognition, Study Finds August 18, 2020August 18, 2020 Antidopaminergic medications are associated with lesser chorea and irritability in people with Huntington’s disease, but they may worsen ...
Huntington's Disease News EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US August 17, 2020September 18, 2020 The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to ...
Huntington's Disease News New Streaming Channel Showcases Rare Disease Films August 12, 2020September 13, 2020 When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated ...
Huntington's Disease News Gene Transfer Method of EPO Improves Cognition in Mouse Study August 11, 2020August 11, 2020 Administration of the hormone erythropoietin (EPO) using a gene transfer method improved spatial cognition, stimulated ...
Huntington’s Disease News Columns The Enduring Positivity of Huntington’s Patients and Families August 11, 2020August 12, 2020 Ever since my wife, Jill, and our daughter were tested and diagnosed as gene positive ...
Huntington’s Disease News Columns I’ve Learned to Focus on Living in the Moment August 7, 2020August 7, 2020 I spent about two months weighing the pros and cons of getting bangs again. On ...
Huntington's Disease News Vico Therapeutics Raises $31M to Fund Advances in Central Nervous System Treatments August 4, 2020August 4, 2020 Vico Therapeutics has raised $31 million in Series A financing to continue pursuing the development ...
Huntington’s Disease News Columns Respecting Religious Beliefs Can Offer Peace in Families August 4, 2020August 4, 2020 What makes a great marriage? That age-old question has been the subject of many books ...
Huntington’s Disease News Columns Lessons Learned from Watching ‘Scooby-Doo’ July 28, 2020July 29, 2020 Did you ever watch cartoons when you were young? One of my favorites as a ...
Huntington's Disease News Study Finds Evidence of Brain Damage in Huntington’s Decades Before Clinical Onset July 28, 2020July 28, 2020 People who will develop Huntington’s disease have subtle biological evidence of brain damage decades before ...
Huntington’s Disease News Columns Welcome to Empty-Nest World July 21, 2020July 22, 2020 If you think adulting is hard, wait until you are empty nesting. My wife, Jill, ...
Huntington's Disease News Adequate Care Lacking for Many With Huntington’s in India, Study Finds July 21, 2020July 21, 2020 Among people with Huntington’s disease living in India, psychiatric problems are common but routine clinical ...
Huntington’s Disease News Columns My Support Network Keeps Me Sane July 17, 2020July 17, 2020 During college, I always joked with my friends that I would drop out of school ...
Huntington’s Disease News Columns The Importance of Food, Glorious Food July 14, 2020July 14, 2020 The last few weeks have been somewhat trying for Jill. She has been plagued with ...
Huntington's Disease News Natural History Study of Huntington’s Starts Enrolling Participants July 14, 2020July 14, 2020 The first patients have been enrolled in a clinical study of the natural history of ...
Huntington's Disease News National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US July 9, 2020August 9, 2020 The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease ...
Huntington's Disease News AFFiRiS’ New Antibody May Help Halt HD Progression, Early Data Suggests July 7, 2020July 7, 2020 AFFiRiS’ C6-17, a candidate monoclonal antibody for the treatment of Huntington’s disease, is able to target and ...
Huntington’s Disease News Columns Being a Caregiver Means Being Involved July 7, 2020July 7, 2020 One of my recent columns was about the Huntington’s Disease Society of America’s annual convention. ...
Huntington’s Disease News Columns The Simple Joy of Taking a Walk June 30, 2020July 1, 2020 We live in Illinois, where the weather can be unpredictable. Some days we have perfect ...
Huntington's Disease News AMT-130, uniQure’s Gene Therapy, Given to First Patient Group in Trial June 30, 2020June 30, 2020 A Phase 1/2 clinical trial evaluating AMT-130 as a potential gene therapy for Huntington’s disease has “treated” its first ...
Huntington’s Disease News Columns It’s Not About You, Caregivers June 23, 2020June 23, 2020 I am messy. I’ve always been messy. My desk at work looks like an explosion ...
Huntington's Disease News German Researcher Promotes Non-drug Alternatives for Treating Huntington’s June 23, 2020June 23, 2020 At least three major pharmaceutical companies are looking into potential gene therapies for Huntington’s disease ...
Huntington’s Disease News Columns Cooking Reminds Me of Cherished Time with My Mother June 19, 2020June 19, 2020 My grandmother and my mom taught me how to cook. Growing up, I would make ...
Huntington’s Disease News Columns The Day I Summoned the Courage to Update My LinkedIn Profile June 18, 2020June 18, 2020 We were settling down in the living room to relax after putting our daughter to ...
Huntington’s Disease News Columns Overcoming Denial in the Face of Huntington’s Disease June 16, 2020June 16, 2020 The Huntington’s Disease Society of America held its annual conference in early June. Like many ...
Huntington's Disease News Austedo to Manage Chorea Safe at Higher Doses, Study Finds June 15, 2020June 16, 2020 Austedo (deutetrabenazine) can be safely taken at higher than the maximum dose now approved to ...
Huntington’s Disease News Columns To Join or Not to Join, That Is the Question June 12, 2020June 12, 2020 To this day, I have only talked to two younger people with Huntington’s who weren’t ...
Huntington's Disease News Coalition Will Address Racial Disparities in Rare Disease Communities June 10, 2020July 11, 2020 The Black Women’s Health Imperative (BWHI) recently created a Rare Disease Diversity Coalition focused on ...
Huntington’s Disease News Columns The Real World Is Precious June 9, 2020June 9, 2020 On May 21, 1992, MTV aired the first episode of “The Real World.” The introduction ...
Huntington's Disease News ‘Hero’ Proteins Protect Other Proteins from Stress, Research Finds June 9, 2020June 9, 2020 A novel class of proteins, dubbed heat-resistant obscure (Hero) proteins, can protect other proteins from ...
Huntington's Disease News Pepinemab Clinical Trial Ongoing; Top-line Results Coming Later this Year June 2, 2020June 2, 2020 Vaccinex’s Phase 2 SIGNAL study, evaluating the investigational antibody pepinemab (VX15/2503) in Huntington’s disease patients ...
Huntington’s Disease News Columns A Caregiver’s Biggest Lesson June 2, 2020June 2, 2020 I have pink eye. Again. And I’m extremely happy I got it. I’ll get to ...
COVID-19 News, Huntington's Disease News COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say May 28, 2020June 28, 2020 While the ongoing COVID-19 pandemic won’t have much of an impact on cash available for ...
Huntington’s Disease News Columns Feeling Helpless Vs. Being Helpful May 26, 2020May 26, 2020 If you’ve ever experienced an allergic reaction to something, you probably understand why the root ...
Huntington's Disease News China Approves Austedo for Huntington’s-related Chorea May 26, 2020May 26, 2020 Teva Pharmaceuticals’ Austedo (deutetrabenazine tablets) has been approved by China’s National Medical Products Administration (NMPA) for treating ...
Huntington’s Disease News Columns Pulled Between Two Lives May 22, 2020May 22, 2020 Working remotely, while slightly draining, has had its benefits. Being able to sleep in until ...
Huntington’s Disease News Columns Music Transports Me Back to Those Dark Diagnosis Days May 21, 2020May 22, 2020 My husband and I were driving along a country road with no destination in mind. ...
Huntington’s Disease News Columns The Inexhaustible Reality of Love May 19, 2020May 19, 2020 Reality bites. That was the name of a 1994 romantic comedy movie starring Winona Ryder ...
Huntington's Disease News Government Agencies Approve MMJ’s Import of Marijuana for Research May 19, 2020May 19, 2020 Multiple government agencies have cooperated to allow MMJ International Holdings to import cannabis extracts to ...
Huntington’s Disease News Columns Honoring a Huntington’s Family Member Dedicated to Finding a Cure May 12, 2020May 12, 2020 May is Huntington’s Disease Awareness Month. While I was starting to write this week’s column, ...
Huntington's Disease News Huntington’s Disease Awareness Month Goes Virtual in May Due to Pandemic May 12, 2020May 12, 2020 Because of the COVID-19 pandemic, Huntington’s Disease Awareness Month organizers have come up with creative ways ...
COVID-19 News, Huntington's Disease News Rare Diseases Clinical Research Network Opens Online Survey on COVID-19 May 11, 2020June 12, 2020 The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand ...
Huntington’s Disease News Columns Practicing Self-care and Letting Go of the Guilt May 8, 2020May 8, 2020 All of my friends know about my love of wine. The first summer after I ...
COVID-19 Columns, Huntington's Disease News Hugging Is One of the Things I Miss the Most May 5, 2020May 5, 2020 The first time I met my wife, Jill, she told me she wasn’t comfortable with ...
Huntington's Disease News AskBio Acquires BrainVectis and Potential Gene Therapy for Huntington’s May 5, 2020May 5, 2020 AskBio announced that it has acquired BrainVectis, a company developing gene therapies for Huntington’s disease and other neurodegenerative conditions. The ...
Huntington's Disease News Enrollment Complete for GENERATION HD1 Trial Testing Tominersen for Huntington’s April 28, 2020April 30, 2020 Roche has completed patient enrollment for its Phase 3 GENERATION HD1 clinical trial evaluating the potential of ...
COVID-19 Columns, Huntington's Disease News Forced Family Time April 28, 2020May 8, 2020 My wife, Jill, and I live in Illinois, where the governor has declared a stay-at-home ...
COVID-19 News, Huntington's Disease News Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say April 27, 2020June 1, 2020 While there are few silver linings to the cloud created by COVID-19, the pandemic that ...
Huntington's Disease News My Genetic Status Complicated Having a Baby April 23, 2020April 24, 2020 As I walked down the street to get my afternoon coffee one day, it appeared ...
Huntington's Disease News The Realities of Rare Diseases April 21, 2020April 21, 2020 Social distancing seems to be the trend these days. Several reality shows illustrate what I ...
Huntington's Disease News Vaccinex’s Pepinemab Halts Brain Shrinkage, Eases Symptoms in Early Huntington’s Patients, Results Shows April 21, 2020April 21, 2020 Vaccinex’s experimental therapy pepinemab (VX15/2503) improves brain metabolism, halts its atrophy, and eases motor and ...
Huntington's Disease News New Perspectives from a Trip to the ER April 17, 2020April 17, 2020 This past Monday night, my boyfriend and I cooked an amazing meatball dish with garlic ...
Huntington's Disease News Small Molecule Seen to Reverse Huntington’s Repeat CAG Mutation April 14, 2020April 14, 2020 A DNA-binding compound can reverse the repeat expansion mutation that is associated with Huntington’s disease, ...
Huntington's Disease News We Are Two People with One Heart April 14, 2020April 14, 2020 My home has been super quiet for the past several days, a silence that will ...
Huntington's Disease News Believing in the Impossible April 7, 2020April 7, 2020 When she was little, my daughter, Alexus, visited a 7-Eleven store with my wife, Jill. ...
COVID-19 News, Huntington's Disease News Factor-H Reaches Out to Huntington’s Neglected Families of South America April 7, 2020May 8, 2020 Huntington’s disease affects an average of 1 in 10,000 people worldwide. But in small, remote ...
Huntington's Disease News A 10-minute Walk, and a Purr That Changed My Life April 3, 2020April 3, 2020 Thursday, Oct. 17, 2019, started off like most weekdays for me. Working in consulting, there ...
Huntington's Disease News The Importance of Having ‘Emotional Vitamins’ March 31, 2020March 31, 2020 I can’t stand dogs. They bark a lot. They smell. They require a lot of ...
COVID-19 News, Huntington's Disease News AMT-130 Gene Therapy Trial Postpones Treatments Amid COVID-19 Pandemic March 31, 2020May 8, 2020 Treatment in a U.S.-based Phase 1/2 clinical trial evaluating uniQure‘s gene therapy AMT-130 in people ...
Huntington's Disease News Pain Management Often Neglected in Huntington’s, Researchers Say March 31, 2020March 31, 2020 The uncontrolled jerking and writhing movements associated with Huntington’s disease are well known, along with ...
Huntington's Disease News Saying ‘Yes, Yes!’ to the Power of Words March 26, 2020March 27, 2020 I wasn’t expecting to be brought to tears when I heard motivational speaker Lisa Nichols ...
Huntington's Disease News Celebrating a Year of Being Part of a Courageous Community March 24, 2020March 24, 2020 This week marks a year since I started writing my column, “A Family Tradition.” Having ...
Huntington's Disease News ‘Our Odyssey’ Nonprofit Connects Young Adults Who Have Rare Diseases March 24, 2020March 24, 2020 As a high-school student in the suburbs of Boston, Seth Rotberg watched his mother’s mental ...
COVID-19 Columns, Huntington's Disease News Coronavirus Has Affected Everyone’s Lives March 20, 2020May 8, 2020 For many people I know, including me, COVID-19 started out as a joke. It shares ...