You have no items in your cart.
Aggressive Form of Cushing’s Disease Masks as Ectopic Cushing’s Syndrome
A 62-year-old man with an aggressive form of Cushing’s disease had his diagnosis delayed because ...
More from Cushing’s Disease News
-
-
Partnership Aims to Lower Out-of-Pocket Costs for Rare Disease Meds
AllianceRx Walgreens Prime, a specialty and home delivery pharmacy, is partnering with TailorMed, a healthcare technology ... -
‘SMART’ Goals Are Barrier Breakers
The work I do in the field of mental health is unique and rewarding. Every ... -
Imaging Tests Mislead Physicians in Diagnosing Cushing’s Patient
Blood tests should be performed before imaging examinations when Cushing’s syndrome is suspected, to prevent ... -
Rare Blood Clot Disorder Follows Pituitary Gland Surgery in Teen
A 14-year-old girl with aggressive Cushing’s disease developed cavernous sinus thrombosis — a rare condition that ... -
Nominations Open for 2022 Eurordis Black Pearl Awards
Nominations are now open for the worldwide 2022 Black Pearl Awards from Eurordis-Rare Diseases Europe. ... -
Friendly Tips for Interacting With a Loved One Who Has Health Issues
Living with and understanding an illness can be difficult. The last thing people with health ... -
Glucocorticoid Use Tied to Complications in Exogenous Cushing’s Patient
A man with exogenous, or therapy-related, Cushing’s syndrome, caused by long-term glucocorticoid use for Crohn’s ... -
Preparing for Battle: A Letter to My Younger Self
Dear Paris, Nineteen years from now, life for you will be very different. I know ... -
Adrenal Insufficiency Can Follow Use of Isturisa, Case Study Reports
People with Cushing’s disease who are treated with Isturisa (osilodrostat) should be monitored for the ... -
Excess Thyroid Hormones Can Be Rare Complication After Surgery
Thyrotoxicosis, or abnormally high levels of thyroid hormones in the body, is a rare complication ... -
Some Pituitary Tumors May Increase Risk of Relapse After Surgery
A type of tumor in the brain’s pituitary gland, which causes Cushing’s disease, has been ... -
Alternative Medicine Helped Me Recover From Low Testosterone
There is an ongoing debate regarding alternative versus modern medicine. Both of these branches of ... -
Centogene Sets Mission to Cure 100 Rare Diseases in Next 10 Years
At its first virtual investor event, biotech company Centogene set a bold mission: to cure ... -
I’m Still Dealing With the Aftermath of Cushing’s Disease
Most people I talk to who have Cushing’s disease describe their experience with it as ... -
Too Many Patients Feel Unprepared for Recovery After Surgery
Many patients with Cushing’s syndrome felt unprepared for the recovery phase following curative surgery, a ... -
EveryLife Introduces First of Kind ‘Roadmap’ to ICD Codes
To help patient advocacy leaders and their partners better understand how global health statistics codes ... -
Our Belief Should Be Stronger Than Our Unbelief
Former NFL player Eric Berry is one of the most decorated athletes of all time, ... -
Risk of Blood Clots Persists for 6 Months After Curative Surgery
The risk of blood clot formation — commonly higher than normal in people with Cushing’s ... -
Case Report Describes Rare Cushing’s Complication
A recent report describes the case of a woman with adrenocorticotropic hormone (ACTH)-independent Cushing’s syndrome ... -
Caregivers Are Appreciated, Valued, and Necessary
My wife has worked in the healthcare industry for 16 years. She started as a ... -
FKBP5 Protein May Be Cortisol Activity Biomarker
Measuring the levels of the RNA molecule that provides instructions to make a protein called ... -
How Extreme Dieting Damaged My Body
Before receiving treatment, navigating Cushing’s disease was extremely difficult for me, not only because of ... -
Get Ready for NORD’s Patient and Family Forum, Set for June 26-27
Those who wish to gain practical tools for living optimally with rare diseases are encouraged ... -
Rare 2030 Action Campaign Pushing for European Plan for Rare Diseases
Eurordis opened a campaign, called Rare 2030 Action, that is seeking to establish a European ... -
Bedside Manner Matters: How Doctors Can Build Rapport With Patients
The medical drama “The Resident” is one of my favorite TV shows. It centers around ... -
Strongbridge Secures Third US Patent for Recorlev
The U.S. Patent and Trademark Office has issued a new patent to Strongbridge Biopharma that ... -
Nelson’s Syndrome Can Affect 1 in 4 With Cushing’s Disease if Adrenal Glands Removed
Some 25% of Cushing’s disease patients — or 1 in every 4 — will develop Nelson’s ... -
Advocates Can Try for Grants Ahead of Rare Disease Week on Capitol Hill
Ahead of this year’s Rare Disease Week on Capitol Hill, held virtually July 14–22, the ... -
My Blue Heelers Provided the Healing From Trauma That I Needed
There are many therapeutic approaches to healing from trauma. Because everyone’s healing process is different, ... -
High Cortisol Levels Seen to Ease Psoriasis in Cyclic Cushing’s Patient
Symptoms of psoriasis vulgaris, an autoimmune disease that mainly affects the skin, eased in a man ... -
How a Phone App Helped Me Finally Get Diagnosed
Have you ever thought that your phone could play a vital role in your journey ... -
‘Surviving and Thriving’ After an Unexpected Battle With Cushing’s Disease
Before my diagnosis in 2015, I hadn’t heard of Cushing’s disease. I didn’t even know ... -
Xeris to Acquire Strongbridge Pipeline, Including Recorlev
Xeris Pharmaceuticals and Strongbridge Biopharma have entered an agreement in which Xeris will acquire Strongbridge, ... -
Sparrow Plans Trial of SPI-62 in Cushing’s Syndrome
Sparrow Pharmaceuticals is planning to launch a Phase 2 clinical trial to assess the safety ... -
Metopirone Found to Safely Maintain Lower Urine Cortisol Levels
Metopirone (metyrapone) safely and successfully maintained lower levels of urinary cortisol over nine months in ... -
One-third Pituitary Gland Removal May Help Some With Cushing’s Disease
For people with Cushing’s disease whose pituitary tumor cannot be identified, removal of one-third of ... -
What I Learned During My Frustrating Journey to Diagnosis
Getting diagnosed with Cushing’s disease was a tricky process for me, and it often can ... -
FDA Decision on Recorlev for Endogenous Cushing’s Expected Early 2022
The U.S. Food and Drug Administration (FDA) is reviewing an application from Strongbridge Biopharma seeking ... -
Subclinical Cushing’s Triggered Shingles, Cardiac Arrest
The case of an elderly woman who developed shingles triggered by subclinical Cushing’s disease, and later ... -
Chronic Insomnia Can Be Sign of Cushing’s, Case Report Finds
Chronic insomnia can be a sign of Cushing’s syndrome, and doctors need be aware of ... -
Cushing’s Patient With Cortisol ‘Feedback Loop’ May Show New Subtype
A woman with a rare case of Cushing’s disease, in which rising cortisol triggered the ... -
Rare Case of Adrenal Cushing’s With Unrelated Thyroid Tumor
Screening for endocrine disorders, such as Cushing’s syndrome, is particularly important in patients who have tumors ... -
Cushing’s May Increase Risk of Acute Pancreatitis
Cushing’s syndrome may increase the risk of acute pancreatitis, a condition in which the pancreas ... -
Quick Approval Given COVID Vaccines Raise Concerns, Rare Disease Patients Say
More than half of the people with rare diseases and their caregivers, asked in a ... -
Hypercortisolism May Affect COVID-19 Severity in Cushing’s Patients
Clinical outcomes of COVID-19 in people with Cushing’s syndrome seem to depend on the severity ... -
EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US
The EveryLife Foundation for Rare Diseases is accepting applications for a scholarship program that aims to ... -
Signifor Controlled Patient’s Cortisol Fluctuations
Cortisol fluctuations in a woman with Cushing’s disease were controlled successfully with Signifor (pasireotide LAR), ... -
Recorlev Also Helps to Treat Diabetes in Cushing’s Syndrome, Trial Data Show
Recorlev (levoketoconazole), Strongbridge Biopharma’s oral investigational therapy for endogenous Cushing’s syndrome, led to sustained improvements in ... -
Despite Falling Mortality Rates, Cushing’s Still Triples Risk of Death
Although mortality rates associated with endogenous Cushing’s syndrome have dropped in recent years, the disease ... -
CSRF Welcomes Cushing’s Community in Promoting Awareness Day, April 8
From bolstering a list of recommended physicians to sharing patient stories, the Cushing’s Support & ... -
Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds
As anyone affected by a rare disease knows, treating the illness while trying to go ... -
I Can’t Control Other People’s Comments, Only How I Respond
When I tell people I had Cushing’s disease, I usually receive a broad range of ... -
Japan OKs Isturisa for Endogenous Cushing’s
The Japanese Ministry of Health, Labour and Welfare (MHLW) has approved Isturisa (osilodrostat) to treat ... -
Recorlev Also Helps Lower Cholesterol and Body Fat, Phase 3 Trial Finds
Recorlev (levoketoconazole), Strongbridge Biopharma’s oral candidate to treat endogenous Cushing’s syndrome, was superior to a placebo ... -
Isturisa Rapidly Lowers Urine Cortisol Levels, Eases Disease-related Risks
Isturisa (osilodrostat), an approved oral therapy for Cushing’s disease, can rapidly normalize — in a median ... -
ETSS, Minimally Invasive Surgery, Seen to Largely Treat Cushing’s Disease
Endoscopic transsphenoidal surgery (ETSS), a minimally invasive procedure that allows surgeons to remove pituitary tumors ... -
HRA Pharma Funds ‘Cushing’s Hub’ to Provide Clinicians with Latest Info
HRA Pharma Rare Diseases is providing an unrestricted educational grant to fund “Cushing’s Hub,” a ... -
Cushing’s Patients Likely at Higher Risk of Irregular Heartbeat
People with Cushing’s syndrome are likely at a higher risk of developing atrial fibrillation, a ... -
Rare Cushing’s Case Linked to Tumors in Pituitary, Brain Membranes
Although rare, Cushing’s disease associated with a tumor in the pituitary gland — a pea-size ... -
The Importance of Having Friends Who Understand Your Disease
In the midst of my disease, I felt very alone. Invisible diseases like Cushing’s tend ... -
Pink, Green, Blue and Purple Lights Illuminated World for Rare Disease Day
Many diseases have their own awareness color — breast cancer is pink, muscular dystrophy is ... -
Recorlev Up for FDA Approval as Endogenous Cushing’s Syndrome Treatment
Strongbridge Biopharma has filed an application with the U.S. Food and Drug Administration (FDA) seeking the approval of Recorlev ... -
Some Patients at Higher Risk of Hyperlipidemia Despite Surgery
Disruptions in blood sugar metabolism and hypercortisolism — excessive levels of the hormone cortisol in ... -
Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion
Diagnosed with sickle cell disease as a 6-month-old, Tristan Lee has faced a lot of ... -
Cushing’s Found to Cause ‘Persistent Mental Health Problems’ in Patients
For years before and after their diagnosis, people with Cushing’s disease use more psychotropic medications ... -
Rare Disease Day at NIH, Set for March 1, Growing Year by Year
Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place ... -
Successful Cushing’s Surgery Leads to Better Bone Density, Study Finds
Biomarkers in a majority of Cushing’s syndrome patients with surgically induced disease remission showed a high rate ... -
Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients
People with rare disorders have a worse healthcare experience than those affected by chronic diseases, ... -
Potential Oral ACTH Inhibitor for Cushing’s Disease Entering Phase 1 Trial
Crinetics Pharmaceuticals is launching a Phase 1 clinical trial to evaluate the safety and tolerability ... -
Pandemic Won’t Stop Rare Disease Day on Feb. 28
Scores of virtual events are afoot around the world to mark Rare Disease Day 2021 ... -
Treatment for Rare Cancer May Help Cushing’s Patients
The cancer medicine bexarotene may hold promise for treating Cushing’s disease, a study suggests. The study, ... -
NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns
While progress was made last year on newborn screening and other policy issues critical to ... -
Consider Possibility of Cushing’s Disease in Patients With Adrenal Tumor
Physicians should consider the possibility of Cushing’s disease in patients presenting with an adrenal tumor ... -
Irisin Hormone Levels May Help Diagnose Muscle, Bone Weakness
Patients with active Cushing’s disease have lower blood levels of irisin, a hormone secreted by ... -
4-year-old Child Successfully Treated for Rare Cushing’s Syndrome
Only about 10% of Cushing’s syndrome patients are children. Now, a rare case of the ... -
Test Key to Confirming Cushing’s Linked to Pregnancy, Report Suggests
A stimulation test with human choriogonadotropin (hCG) — a hormone normally produced by the placenta ... -
Etomidate Lowers Severely High Cortisol in Infant With Adrenal Cushing’s
Treatment with Etomidate worked to reduce severely elevated cortisol levels in a 2-month-old girl with ... -
COVID-19 May Be Severe in Cushing’s Patients, Case Report Suggests
A young healthcare worker who contracted COVID-19 shortly after being diagnosed with Cushing’s disease was ... -
MRI Better Than IPSS at Locating Pituitary Tumors, Researchers Conclude
Magnetic resonance imaging (MRI) is a better way to find pituitary tumors in Cushing’s disease than ... -
Clinical Trial Will Test Fluasterone in Cushing’s Syndrome
SteroTherapeutics and the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) ... -
EURORDIS Award Contest Welcomes Photos of Life With Rare Disease
The annual EURORDIS Photo Award contest is inviting people worldwide to visually express what life ... -
Recorlev Lessens Cushing’s Symptoms, Eases Depression, SONICS Trial Data Show
Recorlev (levoketoconazole), Strongbridge Biopharma’s oral investigational therapy, lessens disease symptoms and depression, and improves quality ... -
Seeing Beyond the Stereotypes
There’s more to people than meets the eye, although the first thing we often notice ... -
Epidural Steroid Injections May Increase Risk of Adrenal Insufficiency, Study Finds
People undergoing regular epidural steroid injections (ESIs) to ease back pain may be at increased ... -
Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe
The first wave of COVID-19 in Europe severely disrupted access to care and raised stress and ... -
Rare Case of Cushing’s Disease Due to ‘Collision’ Brain Tumor Reported
Researchers report a very rare case of Cushing’s disease in a 34-year-old woman caused by a ... -
Patients With Ectopic Cushing’s Face Healthcare Challenges in Colombia, Study Says
Patients with ectopic Cushing’s syndrome face challenges in their healthcare management if they live in ... -
Cushing’s Disease Linked to Rare Pituicytoma in Case Report
Although rare, pituicytomas should still be considered as a possible cause of Cushing’s disease in ... -
A Letter to My Newly Diagnosed Self
Thinking back over the last few years following my recovery from Cushing’s disease, I still ... -
AllianceRx Walgreens Prime Chosen as Sole Supplier of Metopirone in US
HRA Pharma Rare Diseases has named AllianceRx Walgreens Prime as its exclusive pharmacy distributor for ... -
Report Describes Two Cases of Cushing’s Syndrome Diagnosis After Pregnancy
Two cases of Cushing’s syndrome that were diagnosed following pregnancy are described in a new ... -
Isturisa Quickly, Safely Lowers Cortisol Levels in 3 Severe Cushing’s Cases
Isturisa (osilodrostat) rapidly and safely controlled high cortisol levels associated with severe Cushing’s syndrome in three ... -
Even Slightly High Cortisol Levels Can Have Negative Impact on Mental Health
Even slightly higher-than-normal levels of cortisol — the hormone that is abnormally high in people ... -
This Is What Trauma Looks Like to Me
When I hear the word “trauma,” I think about car accidents, fires, military deployments, and ... -
Bone Cancer Case Highlights Need for Long-term Monitoring After Radiotherapy for Cushing’s
A 67-year-old woman developed bone cancer 30 years after receiving radiation therapy to treat Cushing’s ... -
Retrospective Cushing’s Diagnosis Done via Hair Test, Case Report Shows
A woman with undiagnosed Cushing’s disease experienced a resolution of her hypercortisolism symptoms after a ... -
Topical Steroid Use While on HIV Therapy May Lead to Cushing’s, Case Study Shows
Using steroid-based creams to treat skin conditions in the genital area may lead to the ... -
Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting ... -
Obese Patients Don’t Need Cushing’s Screenings Prior to Weight-loss Surgery
Since morbid obesity by itself is not a telltale sign of Cushing’s syndrome, routine screenings ... -
Muscle Weakness Persists in Cushing’s Syndrome Despite Remission, Study Finds
People with Cushing’s syndrome experience muscle weakness that persists even when the disorder is in ... -
Patients Prefer ONDST Over 24-Hour Urine Analysis as First Cushing’s Test, Per Study
Patients prefer the overnight dexamethasone suppression test (ONDST) over the 24-hour urine analysis test as ... -
Study Provides Further Evidence of Cognitive, Emotional Difficulties in Cushing’s Syndrome
People with Cushing’s syndrome commonly experience cognitive and emotional problems, a new study indicates. The ... -
Metopirone Safely Normalized, or Significantly Lowered, Urine Cortisol Levels in Phase 3/4 Trial
Metopirone (metyrapone) safely normalized, or at least lowered by half, the levels of cortisol found ... -
2 Cancer Meds May be Promising Combo Treatment for Cushing’s Disease
A combination of bexarotene and lapatinib, two approved anti-cancer medications, may hold promise in treating Cushing’s disease, ... -
LOGICS Trial Supports Recorlev’s Efficacy in Lowering Cortisol Levels
Patients with endogenous Cushing’s syndrome who stopped using Recorlev (levoketoconazole) and moved to a placebo in ... -
My Emotional Struggles with Cushing’s Brought Dark Days
During the years I dealt with Cushing’s disease symptoms, I increasingly became unlike myself. Before ... -
High Cortisol Levels in Urine May Be Linked to Changes in Blood Sugar Metabolism
Abnormally high levels of cortisol in the urine — one of the hallmarks of Cushing’s ... -
New Cushing’s Saliva Test Does Not Meet Standard Methods
An alternative diagnostic test to measure the levels of late-night cortisol in the saliva of ... -
Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input
Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed ... -
Dissolving Hydrocortisone Tablets for CAH May Lead to Higher Dosing, Cushing’s
Dissolving hydrocortisone tablets in water for multiple daily dosing to treat congenital adrenal hyperplasia (CAH) ... -
EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to ... -
How Cushing’s Syndrome Changed My Social Life
I started developing Cushing’s syndrome at a very young age, though I wasn’t diagnosed until ... -
New Streaming Channel Showcases Rare Disease Films
When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated ... -
Isturisa Leads to Rapid, Sustained Reduction in Cortisol Levels
Treatment with Isturisa (osilodrostat) led to a rapid and sustained reduction in cortisol levels and ... -
Phase 3 Relacorilant Trial Enrolling Cushing’s Patients With Adrenal Origin
The first patient has been enrolled in Corcept Therapeutics‘ Phase 3 GRADIENT trial, which is ... -
Nizoral May Be Better Choice for Cushing’s Syndrome Patients When Surgery Is Not Available
In cases where surgery is temporarily unavailable for Cushing’s syndrome patients due to the COVID-19 ... -
Isturisa, Oral Treatment for Cushing’s Syndrome, Available in Germany
Isturisa (osilodrostat) is now available in Germany to treat adults with endogenous Cushing’s syndrome. The announcement ... -
Smart Contact Lens Shows Ability to Measure Cortisol Levels
A newly developed smart contact lens might be used to measure levels of the hormone ... -
Estrogen Receptor Alpha May Be Involved in Development of Cushing’s During Pregnancy
Estrogen receptor alpha — one of the two main types of protein receptors activated by ... -
Last Patient Completes Withdrawal Phase of Recorlev Trial for Cushing’s
The last patient has completed the last study visit in the withdrawal phase of the ... -
National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US
The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease ... -
Adrenal Cushing’s Syndrome More Common in Southeast Asia
The proportion of Cushing’s syndrome patients whose disease is caused by a tumor in the ... -
Isturisa Effective in Treating Cushing’s Syndrome Other Than Cushing’s Disease, Phase 2 Trial Shows
Recordati’s Isturisa (osilodrostat) safely and effectively normalizes urinary levels of cortisol in people with endogenous ... -
Isturisa Shows Sustained Responses in Cushing’s Disease Patients in LINC-4 Trial
Isturisa (osilodrostat), an approved therapy for Cushing’s disease, continues to demonstrate high and sustained responses in patients ... -
Cushing’s Patients Need Special Monitoring in Light of COVID-19, Experts Say
Infection with COVID-19 may appear different and take a distinct clinical course in people with ... -
Coalition Will Address Racial Disparities in Rare Disease Communities
The Black Women’s Health Imperative (BWHI) recently created a Rare Disease Diversity Coalition focused on ... -
Isturisa Now Available in France, Recordati Announces
Cushing’s syndrome treatment Isturisa (osilodrostat) now is commercially available in France. The announcement from Recordati Rare ... -
Isturisa Now Available for Adult Cushing’s Patients in the U.S.
Isturisa (osilodrostat) oral treatment for Cushing’s disease patients is now fully available to be sold and ... -
COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say
While the ongoing COVID-19 pandemic won’t have much of an impact on cash available for ... -
Enrollment Completed for Phase 3 Trial Testing Recorlev for Endogenous Cushing’s Syndrome
Strongbridge Biopharma has finished enrolling patients in its Phase 3 LOGICS clinical trial assessing the ... -
Rare Diseases Clinical Research Network Opens Online Survey on COVID-19
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand ... -
Pandemic Delays Trials Investigating Relacorilant as Endogenous Cushing’s Syndrome Treatment
The Phase 3 GRACE clinical trial evaluating Corcept Therapeutics‘ relacorilant as a potential treatment for ... -
Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say
While there are few silver linings to the cloud created by COVID-19, the pandemic that ... -
Isturisa for Cushing’s Syndrome Likely To Be Available in Europe Over Summer
Recordati Rare Diseases announced that it has officially acquired marketing rights in Europe for the Cushing’s treatment ... -
Pituitary Adenomas in Cushing’s Disease Differ Between Men, Women, Study Reports
The pituitary adenomas that cause Cushing’s disease in men differ from those in women in ... -
AACE Issues Advice for Cushing’s Patients During Pandemic
As people with uncontrolled Cushing’s syndrome and adrenal insufficiency are at a relatively higher risk ... -
Adrenal Surgery Causes Persistent Decrease in Kidney Function in Cushing’s Patients, Study Suggests
People with Cushing’s syndrome who undergo surgery to remove one or both adrenal glands experience a ... -
Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19
Even with the coronavirus pandemic ravaging Europe and much of the world, patient advocate Lucia ... -
Adrenal Gland Surgeries May Be Safer if Incisions Made to Back
Making incisions through the back of the body, rather than the front, can lessen bleeding ... -
Study Recommends ARMC5 Gene Analysis for Cushing’s Patients With Bilateral Adrenal Masses
More than half of the people with Cushing’s syndrome due to masses in both adrenal ... -
Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds
The number of treatments for children with rare diseases has grown over the past decade, according ... -
Researchers Establish Cutoff Value for Dexamethasone in Cushing’s Tests
While the diagnosis of Cushing’s syndrome is often based on a low-dose dexamethasone suppression test ... -
FDA Approves New Oral Treatment Isturisa for Cushing’s Disease
Isturisa (osilodrostat) is now approved in the U.S. for adults with Cushing’s disease for whom pituitary ... -
Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare
In recognition of Rare Disease Day Feb. 29, BioNews Services launched a social media campaign ... -
Metabolic Changes in Cushing’s Likely Mediated by Organ Interactions, Mouse Study Suggests
Excess glucocorticoid levels in Cushing’s syndrome induces whole-body metabolic changes that are likely mediated by ... -
Recordati Rare Diseases Will Market Signifor, Signifor LAR in U.S.
Recordati‘s U.S. marketing rights for Cushing’s disease medications Signifor (pasireotide) and Signifor LAR will be handled ... -
Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles ... -
Becoming a ‘Cushie’ and Taking the First Step in My Healing Journey
I’ve always been an anxious girl. I had friends growing up, but I tended to ... -
Cushing’s Took a Toll on My Mental Health
The hardest part about my Cushing’s disease journey has been recognizing its effect on my ... -
How I Coped with Cushing’s Disease
No matter what part of the Cushing’s journey you are on, self-care is extremely important. ... -
Finding Love for My Ugly Disease
Welcome to Vanessa Nguyen’s “My Pretty Ugly Disease,” a new Cushing’s Disease News column. If ... -
Not Every Symptom Is What It Seems
Hey, everyone! If you’re a post-operation Cushie, you know that the unknowns throughout recovery are ... -
Binding My Post-operation Mental Health Wounds
Two weeks ago, I ended my column by discussing the cold I got during my ... -
My Recovery Continues After Leaving the Hospital
Welcome to the end of another week! For those of you who live in the ... -
My Experience with Cushing’s Recovery
Hello, everyone! This week, I want to touch upon a topic I’m frequently asked about: ... -
Be Brutally Honest with Those Who Tell You How to Feel
Hey, everyone! This week, I want to touch upon something that many Cushing’s patients deal ... -
How I Dealt with Cushing’s Disease Before, During and After Diagnosis
Hey, everyone! This week, I want to get a little more personal. Many readers have ...