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Patients Prefer ONDST Over 24-Hour Urine Analysis as First Cushing’s Test, Per Study
Patients prefer the overnight dexamethasone suppression test (ONDST) over the 24-hour urine analysis test as ...
More from Cushing’s Disease News
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Study Provides Further Evidence of Cognitive, Emotional Difficulties in Cushing’s Syndrome
People with Cushing’s syndrome commonly experience cognitive and emotional problems, a new study indicates. The ... -
Metopirone Safely Normalized, or Significantly Lowered, Urine Cortisol Levels in Phase 3/4 Trial
Metopirone (metyrapone) safely normalized, or at least lowered by half, the levels of cortisol found ... -
2 Cancer Meds May be Promising Combo Treatment for Cushing’s Disease
A combination of bexarotene and lapatinib, two approved anti-cancer medications, may hold promise in treating Cushing’s disease, ... -
LOGICS Trial Supports Recorlev’s Efficacy in Lowering Cortisol Levels
Patients with endogenous Cushing’s syndrome who stopped using Recorlev (levoketoconazole) and moved to a placebo in ... -
My Emotional Struggles with Cushing’s Brought Dark Days
During the years I dealt with Cushing’s disease symptoms, I increasingly became unlike myself. Before ... -
High Cortisol Levels in Urine May Be Linked to Changes in Blood Sugar Metabolism
Abnormally high levels of cortisol in the urine — one of the hallmarks of Cushing’s ... -
New Cushing’s Saliva Test Does Not Meet Standard Methods
An alternative diagnostic test to measure the levels of late-night cortisol in the saliva of ... -
Same But Different Photo Contest Celebrates People With Rare Diseases
Same But Different, a U.K. nonprofit that uses the arts to bring communities together, is ... -
Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input
Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed ... -
Dissolving Hydrocortisone Tablets for CAH May Lead to Higher Dosing, Cushing’s
Dissolving hydrocortisone tablets in water for multiple daily dosing to treat congenital adrenal hyperplasia (CAH) ... -
EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to ... -
How Cushing’s Syndrome Changed My Social Life
I started developing Cushing’s syndrome at a very young age, though I wasn’t diagnosed until ... -
New Streaming Channel Showcases Rare Disease Films
When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated ... -
Isturisa Leads to Rapid, Sustained Reduction in Cortisol Levels
Treatment with Isturisa (osilodrostat) led to a rapid and sustained reduction in cortisol levels and ... -
Phase 3 Relacorilant Trial Enrolling Cushing’s Patients With Adrenal Origin
The first patient has been enrolled in Corcept Therapeutics‘ Phase 3 GRADIENT trial, which is ... -
Nizoral May Be Better Choice for Cushing’s Syndrome Patients When Surgery Is Not Available
In cases where surgery is temporarily unavailable for Cushing’s syndrome patients due to the COVID-19 ... -
Isturisa, Oral Treatment for Cushing’s Syndrome, Available in Germany
Isturisa (osilodrostat) is now available in Germany to treat adults with endogenous Cushing’s syndrome. The announcement ... -
Smart Contact Lens Shows Ability to Measure Cortisol Levels
A newly developed smart contact lens might be used to measure levels of the hormone ... -
Estrogen Receptor Alpha May Be Involved in Development of Cushing’s During Pregnancy
Estrogen receptor alpha — one of the two main types of protein receptors activated by ... -
Last Patient Completes Withdrawal Phase of Recorlev Trial for Cushing’s
The last patient has completed the last study visit in the withdrawal phase of the ... -
National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US
The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease ... -
Adrenal Cushing’s Syndrome More Common in Southeast Asia
The proportion of Cushing’s syndrome patients whose disease is caused by a tumor in the ... -
Isturisa Effective in Treating Cushing’s Syndrome Other Than Cushing’s Disease, Phase 2 Trial Shows
Recordati’s Isturisa (osilodrostat) safely and effectively normalizes urinary levels of cortisol in people with endogenous ... -
Isturisa Shows Sustained Responses in Cushing’s Disease Patients in LINC-4 Trial
Isturisa (osilodrostat), an approved therapy for Cushing’s disease, continues to demonstrate high and sustained responses in patients ... -
Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic
The Alexion Charitable Foundation has awarded $1.1 million in grants to programs that support those ... -
Cushing’s Patients Need Special Monitoring in Light of COVID-19, Experts Say
Infection with COVID-19 may appear different and take a distinct clinical course in people with ... -
Coalition Will Address Racial Disparities in Rare Disease Communities
The Black Women’s Health Imperative (BWHI) recently created a Rare Disease Diversity Coalition focused on ... -
Isturisa Now Available in France, Recordati Announces
Cushing’s syndrome treatment Isturisa (osilodrostat) now is commercially available in France. The announcement from Recordati Rare ... -
Isturisa Now Available for Adult Cushing’s Patients in the U.S.
Isturisa (osilodrostat) oral treatment for Cushing’s disease patients is now fully available to be sold and ... -
COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say
While the ongoing COVID-19 pandemic won’t have much of an impact on cash available for ... -
Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe
European authorities must step up efforts to screen babies for a multitude of genetic disorders, ... -
Unity and EU-wide Efforts Focus of Online Rare Disease Meeting
Eurordis, a Paris-based coalition of national rare disease associations across Europe, hosted its first all-virtual ... -
Enrollment Completed for Phase 3 Trial Testing Recorlev for Endogenous Cushing’s Syndrome
Strongbridge Biopharma has finished enrolling patients in its Phase 3 LOGICS clinical trial assessing the ... -
Rare Diseases Clinical Research Network Opens Online Survey on COVID-19
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand ... -
Pandemic Delays Trials Investigating Relacorilant as Endogenous Cushing’s Syndrome Treatment
The Phase 3 GRACE clinical trial evaluating Corcept Therapeutics‘ relacorilant as a potential treatment for ... -
Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say
While there are few silver linings to the cloud created by COVID-19, the pandemic that ... -
Isturisa for Cushing’s Syndrome Likely To Be Available in Europe Over Summer
Recordati Rare Diseases announced that it has officially acquired marketing rights in Europe for the Cushing’s treatment ... -
NORD Opens COVID-19 Financial Aid Program for Rare Disease Community
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people ... -
Pituitary Adenomas in Cushing’s Disease Differ Between Men, Women, Study Reports
The pituitary adenomas that cause Cushing’s disease in men differ from those in women in ... -
AACE Issues Advice for Cushing’s Patients During Pandemic
As people with uncontrolled Cushing’s syndrome and adrenal insufficiency are at a relatively higher risk ... -
NORD’s Advice on COVID-19: You’re Stronger Than You Think
First, the bad news: If you’re one of the 30 million or so Americans with ... -
NORD’s Advice on COVID-19: You’re Stronger Than You Think
First, the bad news: If you’re one of the 30 million or so Americans with ... -
Adrenal Surgery Causes Persistent Decrease in Kidney Function in Cushing’s Patients, Study Suggests
People with Cushing’s syndrome who undergo surgery to remove one or both adrenal glands experience a ... -
Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19
Even with the coronavirus pandemic ravaging Europe and much of the world, patient advocate Lucia ... -
Adrenal Gland Surgeries May Be Safer if Incisions Made to Back
Making incisions through the back of the body, rather than the front, can lessen bleeding ... -
Study Recommends ARMC5 Gene Analysis for Cushing’s Patients With Bilateral Adrenal Masses
More than half of the people with Cushing’s syndrome due to masses in both adrenal ... -
Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds
The number of treatments for children with rare diseases has grown over the past decade, according ... -
Researchers Establish Cutoff Value for Dexamethasone in Cushing’s Tests
While the diagnosis of Cushing’s syndrome is often based on a low-dose dexamethasone suppression test ... -
FDA Approves New Oral Treatment Isturisa for Cushing’s Disease
Isturisa (osilodrostat) is now approved in the U.S. for adults with Cushing’s disease for whom pituitary ... -
Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare
In recognition of Rare Disease Day Feb. 29, BioNews Services launched a social media campaign ... -
Metabolic Changes in Cushing’s Likely Mediated by Organ Interactions, Mouse Study Suggests
Excess glucocorticoid levels in Cushing’s syndrome induces whole-body metabolic changes that are likely mediated by ... -
Recordati Rare Diseases Will Market Signifor, Signifor LAR in U.S.
Recordati‘s U.S. marketing rights for Cushing’s disease medications Signifor (pasireotide) and Signifor LAR will be handled ... -
Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles ... -
Becoming a ‘Cushie’ and Taking the First Step in My Healing Journey
I’ve always been an anxious girl. I had friends growing up, but I tended to ... -
Cushing’s Took a Toll on My Mental Health
The hardest part about my Cushing’s disease journey has been recognizing its effect on my ... -
How I Coped with Cushing’s Disease
No matter what part of the Cushing’s journey you are on, self-care is extremely important. ... -
Finding Love for My Ugly Disease
Welcome to Vanessa Nguyen’s “My Pretty Ugly Disease,” a new Cushing’s Disease News column. If ... -
Not Every Symptom Is What It Seems
Hey, everyone! If you’re a post-operation Cushie, you know that the unknowns throughout recovery are ... -
Binding My Post-operation Mental Health Wounds
Two weeks ago, I ended my column by discussing the cold I got during my ... -
My Recovery Continues After Leaving the Hospital
Welcome to the end of another week! For those of you who live in the ... -
My Experience with Cushing’s Recovery
Hello, everyone! This week, I want to touch upon a topic I’m frequently asked about: ... -
Be Brutally Honest with Those Who Tell You How to Feel
Hey, everyone! This week, I want to touch upon something that many Cushing’s patients deal ... -
How I Dealt with Cushing’s Disease Before, During and After Diagnosis
Hey, everyone! This week, I want to get a little more personal. Many readers have ...