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Signs of Depression in aHUS Caregivers
It can be exhausting and stressful to be the caregiver for someone who has a ...
More from aHUS News
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Higher-dose Ultomiris, Likely to Shorten Infusion Times, Favored for EU Approval
The Committee for Medicinal Products for Human Use (CHMP) has recommended that a new 100 ... -
How to Stay Motivated With a Chronic Disease Like aHUS?
When you’re living with a very rare disorder such as atypical hemolytic uremic syndrome (aHUS), with ... -
Case Report Identifies Mutation in Non-complement Gene That Can Cause aHUS
Researchers have identified a novel mutation in the gene DGKE that can cause atypical hemolytic ... -
The aHUS Tracker
If you have atypical hemolytic uremic syndrome (aHUS), you need to have regular blood tests ... -
60K More aHUS Patients Would Be Alive Worldwide if Given Appropriate Healthcare, Alliance Says
The aHUS Alliance Global Action estimates there could be 84,000 people living with atypical hemolytic ... -
Soliris Safely Prevents aHUS Recurrence in Kidney Transplant Recipients, Study Finds
Soliris (eculizumab) is safe and effective for the prevention of recurrence in people with atypical ... -
Raising Awareness of aHUS
Raising awareness of rare chronic disorders such as atypical hemolytic uremic syndrome, or aHUS, could ... -
aHUS Alliance Seeks Video Project Submissions to Mark Awareness Day
Leading up to atypical hemolytic uremic syndrome (aHUS) Awareness Day on Sept. 24, the aHUS ... -
Self-care Tips for aHUS Patients
For people with atypical hemolytic uremic syndrome (aHUS), self-care is important to help cope with ... -
aHUS Can Co-exist With Autoimmune Disorders, Impeding Diagnosis, Per Report
Atypical hemolytic uremic syndrome (aHUS) can co-exist with autoimmune disorders, complicating the diagnosis of the ... -
Spoon Theory for aHUS Patients
Life can be challenging with a rare and chronic disease like atypical hemolytic uremic syndrome ... -
aHUS Alliance Seeks Input from Ultomiris-treated Patients
To help persuade decision-making entities to make the atypical hemolytic uremic syndrome (aHUS) treatment Ultomiris ... -
aHUS Case Study Describes Intestinal Blood Clots After Kidney Transplant Rejection
The rejection of a kidney transplant was found to be the cause of intestinal bleeding ... -
Soliris vs. Ultomiris for aHUS
Soliris (eculizumab) and Ultomiris (ravulizumab-cwvz) are medications developed by Alexion to treat atypical hemolytic uremic syndrome (aHUS). ... -
Mutations Affecting C3 Protein Activity Linked to aHUS in Case Report
Mutations leading to the overactivation of the complement regulator protein C3 should be recognized as ... -
FAQs About Soliris
Soliris (eculizumab) is a medication developed by Alexion to treat atypical hemolytic uremic syndrome (aHUS). ... -
Rare Inflammatory Arthritis, Still’s Disease, Is Potential aHUS Trigger, Case Report Suggests
A rare type of inflammatory arthritis known as Still’s disease may trigger the development of ... -
FAQs About Ultomiris for aHUS
Ultomiris (ravulizumab-cwvz) is a treatment for atypical hemolytic uremic syndrome (aHUS) that was developed by ... -
Girl’s aHUS May Be Due to Autoimmune Thyroid Disease, Report Finds
Atypical hemolytic uremic syndrome (aHUS) can co-exist with autoimmune thyroid disease, and the two conditions ... -
Mindfulness for People Living With aHUS
It can be challenging to live with a rare and chronic disease like atypical hemolytic ... -
Weekly Ultomiris Injections May Be as Effective as Infusions, Phase 3 Data Suggest
Self-administering Ultomiris (ravulizumab) as weekly under-the-skin injections may be as safe and effective in preventing ... -
Travel Tips for People With aHUS
Atypical hemolytic uremic syndrome (aHUS) is a multi-organ disease that primarily affects kidney function. Therefore, ... -
Ultomiris Approved in Europe to Treat Children and Adults with aHUS
Alexion Pharmaceuticals announced that Ultomiris (ravulizumab) has been approved in the European Union to treat ... -
Planning for the Future When You Have aHUS
Being diagnosed with a rare disease like atypical hemolytic uremic syndrome (aHUS) can be frightening, ... -
Kidney Research UK Honored for Film on Leaps in aHUS Treatment, Knowledge
A short film by Kidney Research UK looking at how scientific research has helped those with atypical hemolytic ... -
Skin Biopsy and How It Can Help Diagnose aHUS
A skin biopsy is one of the tests that doctors can use to confirm a ... -
Clinical Trials for aHUS
Only a few treatment options exist for atypical hemolytic uremic syndrome (aHUS) and there’s currently ... -
What’s a Treatment Plan and Do I Need One With aHUS?
Living with a rare disease like atypical hemolytic uremic syndrome (aHUS) can be challenging. Given ... -
aHUS and Cobalamin C Deficiency Found for 1st Time in Young Woman
The first known case of atypical hemolytic uremic syndrome (aHUS) and adult-onset cobalamin C deficiency, ... -
I Have Just Been Diagnosed With aHUS, Now What?
Finding out that you have a rare disease like atypical hemolytic uremic syndrome (aHUS) can ... -
Ultomiris Safe, Effective at Resolving Life-threatening Complications of aHUS
Ultomiris (ravulizumab-cwvz) is safe and effective at resolving acute and life-threatening complications of atypical hemolytic ... -
How Might aHUS Affect my Heart?
Atypical hemolytic uremic syndrome (aHUS) is a rare disease that affects the kidneys by causing ... -
How to Deal with aHUS Attacks
Atypical hemolytic uremic syndrome (aHUS) is a rare disease characterized by the formation of small ... -
CHMP Favors Ultomiris to Treat Children and Adults with aHUS in EU
The Committee for Medicinal Products for Human Use (CHMP), a branch of the European Medicines ... -
FAQs About Dialysis in aHUS
Atypical hemolytic uremic syndrome (aHUS) is a rare disease characterized by the formation of blood ... -
What Types of Dialysis Are Given to People with aHUS?
Atypical hemolytic uremic syndrome (aHUS) is a rare disease characterized by the formation of blood ... -
Soliris Helps Prevent aHUS Relapses During Pregnancy, Case Report Suggests
Treatment with Soliris (eculizumab) during pregnancy may help prevent subsequent relapses of pregnancy-associated atypical hemolytic uremic ... -
aHUS and Pregnancy
Atypical hemolytic uremic syndrome (aHUS), a rare disease in which small blood clots form in ... -
Is aHUS Genetic?
Atypical hemolytic uremic syndrome (aHUS) is a rare disease characterized by the formation of blood ... -
Dealing with Shortness of Breath When You Have aHUS
Atypical hemolytic uremic syndrome (aHUS) is a genetic disease characterized by the formation of blood ... -
Tekturna Seen to Treat High Blood Pressure Associated with aHUS
A medication for high blood pressure, Tekturna (aliskiren) may be used as an add-on therapy to manage ... -
aHUS Can Arise Following Aortic Dissection, Case Study Says
Atypical hemolytic-uremic syndrome can arise following an aortic dissection — a serious condition in which ... -
Bexsero Vaccine Against MenB Bacteria Only Effective in 50% of aHUS Patients, Study Finds
Bexsero, a vaccine developed as a treatment for serogroup B meningococci — the bacteria that ... -
Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds
The number of treatments for children with rare diseases has grown over the past decade, according ... -
New aHUS-Causing Mutations Found in DGKE Gene in Chinese Patient, Report Says
Scientists have discovered, in a Chinese patient, new mutations in the DGKE gene that can ... -
Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare
In recognition of Rare Disease Day Feb. 29, BioNews Services launched a social media campaign ... -
Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles ... -
How Does aHUS Differ from Other Thrombotic Microangiopathies?
Thrombotic microangiopathy (TMA) refers to the formation of blood clots in the small blood vessels of ... -
Advice on Starting Nonprofit Groups for Rare and Other Diseases Focus of NORD Webinar
Starting a 501(c)(3) tax-exempt nonprofit isn’t easy, but the National Organization for Rare Disorders gave ... -
Advances in Diagnosis, Disease Characterization Needed in Canada to Improve aHUS Outcomes, Registry Study Suggests
Advancements in diagnosis and disease characterization are needed in Canada to improve the clinical outcomes ... -
Patients, Supporters Worldwide Recognizing Rare Disease Day 2020
An abundance of events are afoot around the world to mark Rare Disease Day 2020 ... -
Patients Suspected of Having aHUS Should be Treated With Soliris Immediately, Case Study Suggests
Patients who have symptoms that indicate severe atypical hemolytic uremic syndrome (aHUS) should be diagnosed ...