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Phase 3 Trials Will Test Self-injectable Crovalimab
Two Phase 3 clinical trials will evaluate the safety and effectiveness of Roche’s investigational, self-injectable ...
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No One Is Immune From Everyday Challenges
Celebrities seem to have it all. Their lives look so easy and enviable. We watch ... -
New C3 Mutation, Linked to Severe aHUS, Found in Infant in Israel
A newly identified mutation in the C3 gene that causes severe, life-threatening atypical hemolytic uremic ... -
Can You Keep a Secret?
Medications come with warning labels. Maybe rare diseases should, too. Warning: Atypical hemolytic uremic syndrome ... -
Soliris Effectively Treats aHUS in Newborn Girl, Case Study Reports
Soliris (eculizumab) may help to control microangiopathy — a disease affecting small vessels — and ... -
Rare Case of aHUS Found in Man with Lipoprotein Glomerulopathy
Researchers have reported a rare case of atypical hemolytic uremic syndrome (aHUS) in a 21-year-old ... -
Prayers + Life Lessons = Attitude Adjustment
The Serenity Prayer Most people know about the Serenity Prayer. It is a favorite among ... -
aHUS Leads to Kidney Failure in Infant With Cystic Fibrosis
A 6-month-old girl who was diagnosed with cystic fibrosis (CF) went into kidney failure due ... -
Investigative Questions Are Essential to Caregiving
My husband’s general practitioner, hematologist, and nephrologist each care for the same number of patients ... -
Soliris Helps Treat aHUS Relapse with Kidney Disease During Pandemic
Soliris (eculizumab) is effective for treating relapses in patients with atypical hemolytic uremic syndrome, even ... -
Pandemic Protocols: With Chronic Illness, We’ve Been There, Done That
When society shut down at the onset of the COVID-19 outbreak last year, many healthy ... -
Caregiving and Convenience: If the Shoe Fits
One of the first casualties of taking on the role as my husband’s caregiver was ... -
My FAQs for aHUS
I like that series of Books for Dummies, authored by experts in various fields. Written ... -
Soliris Prevents aHUS Recurrence in COVID-19 Patient in Case Study
Treatment with Soliris (eculizumab) successfully prevented the recurrence of atypical hemolytic uremic syndrome (aHUS) in ... -
Ultomiris Available Soon for Eligible aHUS Patients in England
Alexion Pharmaceuticals’ long-acting Ultomiris (ravulizumab) was added to the list of medications available through England’s national health ... -
It Could Always Be Worse: My Husband’s Journey to Diagnosis
Five years ago, my husband, Ronald, and I were overwhelmed with financial worries. Our business ... -
Boy With aHUS Due to Rare Mutation Responded Well to Soliris, Report Finds
A child with atypical hemolytic uremic syndrome (aHUS) caused by a mutation in the DGKE ... -
Ultomiris Approved in Scotland for Patients Weighing at Least 10 kg
Ultomiris (ravulizumab) has been approved in Scotland for adults and children weighing at least 10 ... -
aHUS Triggered by Pregnancy Similar to Other Forms, Triggers
Atypical hemolytic uremic syndrome (aHUS) that is triggered by pregnancy is similar to aHUS caused ... -
Long-term Ultomiris Found to Improve Kidney Function in Adults
Adults with atypical hemolytic uremic syndrome (aHUS) continue to show improvements in kidney function, blood ... -
Soliris Successfully Treats Pregnancy-related aHUS in Case Report
Soliris (eculizumab) can be used successfully to treat patients with pregnancy-related atypical hemolytic uremic syndrome ... -
Preventive Soliris Appears to Increase Kidney Transplant Success in aHUS
Preventive or early treatment with Soliris (eculizumab) appears to increase the chances of a successful ... -
Rare Mutation Causing Adult-onset aHUS Provides Insights Into Disease
The case of a man with atypical hemolytic uremic syndrome (aHUS) caused by a rare ... -
Diagnostic Process Using Genetic, Clinical Data May Aid in Identifying aHUS
A diagnostic process combining genetic, clinical, and patient inquiry data may help in the identification ... -
Soliris Effective for 2 Patients With Both aHUS and C3G
Soliris (eculizumab) can effectively treat patients with both atypical hemolytic uremic syndrome (aHUS) and C3 ... -
Certain Patients Might Safely Stop Soliris With Monitoring, Study Suggests
Most people with atypical hemolytic uremic syndrome (aHUS) whose disease is in remission after treatment ... -
Talking to Your Employer About aHUS
If you have atypical hemolytic uremic syndrome (aHUS) and are working, you may want to ... -
Ultomiris Found to Be Safe, Effective for Pregnancy-related aHUS
Ultomiris (ravulizumab) can safely and effectively treat women with atypical hemolytic uremic syndrome (aHUS) whose ... -
Shoshin for aHUS Patients
If you are living with a chronic disease such as atypical hemolytic uremic syndrome (aHUS), ... -
Ultomiris Safe and Effective for Children With aHUS, Phase 3 Trial Shows
Ultomiris (ravulizumab-cwvz) is safe and effective in children with atypical hemolytic uremic syndrome (aHUS), data from ... -
About OneSource for aHUS Patients
If you have atypical hemolytic uremic syndrome (aHUS) and are being treated with Soliris (eculizumab) ... -
Importance of Advocacy for aHUS
Atypical hemolytic uremic syndrome (aHUS) is a rare disease that is sometimes hard to diagnose. ... -
aHUS and Cancer
People with atypical hemolytic uremic syndrome (aHUS) usually have a genetic predisposition for disorders of ... -
aHUS Alliance Asking Patients Worldwide to Join Rare Disease Day Project
For Rare Disease Day on Feb. 28, aHUS Alliance Global Action is inviting people worldwide ... -
Treatment Team of Specialists for aHUS
Atypical hemolytic uremic syndrome (aHUS) primarily affects the kidneys but it can also affect numerous ... -
Pregnancy in aHUS No Longer Unadvised, But Still High-risk, Expert Says
Pregnancy is no longer medically unadvised, or contraindicated, as it once was, for women with ... -
Paramedical Services for aHUS
Patients with atypical hemolytic uremic syndrome (aHUS) and their family members may benefit from paramedical ... -
aHUS Alliance Global Action Gears Up for a Busy Year
After a year in which COVID-19 was a disruptor, aHUS alliance Global Action is starting 2021 by ... -
Individualized Education Plan (IEP) for aHUS Patients
Atypical hemolytic uremic syndrome (aHUS) affects an estimated 1 in 500,000 people in the U.S. ... -
CD46 Mutation Not Enough to Trigger aHUS, Genetic Analysis Shows
A common mutation in the CD46 gene associated with atypical hemolytic uremic syndrome (aHUS) onset ... -
aHUS Triggers
Atypical hemolytic uremic syndrome (aHUS), a chronic multi-organ disease that primarily affects kidney function, may ... -
aHUS Relapse Triggered by COVID-19, Case Report Finds
The first reported instance of a COVID-19 infection triggering an atypical hemolytic uremic syndrome (aHUS) ... -
aHUS in Children
Atypical hemolytic uremic syndrome (aHUS) can occur during childhood and at any time thereafter. Here ... -
5 Main Symptoms of aHUS
In atypical hemolytic uremic syndrome (aHUS), an overactive immune system mistakenly attacks the lining of ... -
How Does My Doctor Know I Have aHUS?
Since atypical hemolytic uremic syndrome (aHUS) is rare and has symptoms similar to those of ... -
Specific aHUS Mutations Affect Relapse Risk After Soliris Discontinued, Data Show
The specific disease-causing mutations in a person with atypical hemolytic uremic syndrome (aHUS) affect their ... -
aHUS and School
A rare chronic illness such as atypical hemolytic uremic syndrome (aHUS) can make going to ... -
FAQs About the aHUS Registry
You may be considering enrolling in the ongoing global atypical hemolytic uremic syndrome (aHUS) registry. Here ... -
Ultomiris as Shorter Infusion Approved in Europe to Treat aHUS
The European Commission has approved a new intravenous formulation of Ultomiris (ravulizumab) to treat for adults ... -
Brain Fog in aHUS
While it’s not a classic symptom of atypical hemolytic uremic syndrome (aHUS), brain fog is ... -
Most aHUS Patients May Benefit From Dosing Interval Extension in Soliris Maintenance Treatment
Extending the dosing interval of Soliris (eculizumab) maintenance treatment from standard two weeks to three ... -
Ultomiris More Cost-effective Than Soliris for aHUS Patients in US, Study Finds
Ultomiris (ravulizumab) is expected to be more cost-effective than its predecessor Soliris (eculizumab) as a ... -
Global aHUS Registry
If you have atypical hemolytic uremic syndrome (aHUS), you may want to consider enrolling in ... -
Ultomiris Effective in Pediatric aHUS Previously Treated With Soliris, Study Suggests
Ultomiris (ravulizumab) is safe and results in stable kidney and blood measurements in children and ... -
aHUS and Sleep Disorders
Patients with atypical hemolytic uremic syndrome (aHUS) may experience problems with sleep. Here are some ... -
Soliris Eases Fatigue, Other Common aHUS Symptoms, Real-world Data Show
Soliris (eculizumab) can meaningfully ease fatigue and other symptoms commonly reported by people with atypical hemolytic ... -
aHUS and Fatigue
People with atypical hemolytic uremic syndrome (aHUS) may experience fatigue — extended periods of exhaustion ... -
aHUS and Vision
Atypical hemolytic uremic syndrome (aHUS) primarily affects the kidneys. But it can also damage other ... -
FDA Approves New Ultomiris Formulation That Shortens Infusion Time
The U.S. Food and Drug Administration (FDA) has approved a new formulation of Ultomiris (ravulizumab), a ... -
aHUS and Seizures
Atypical hemolytic uremic syndrome (aHUS) mainly affects the kidneys, but it can also take a ... -
Case Highlights Need to Identify More aHUS-causing Mutations
Research is needed to identify more mutations that cause atypical hemolytic uremic syndrome (aHUS), as ... -
How to Help a Family Member With aHUS
Atypical hemolytic uremic syndrome (aHUS) can lead to multiple health problems that affect the day-to-day ... -
Japan Approves Ultomiris to Treat Patients With aHUS
Ultomiris (ravulizumab) has been approved in Japan for the treatment of adults and children with ... -
Signs of Depression in aHUS Caregivers
It can be exhausting and stressful to be the caregiver for someone who has a ... -
Higher-dose Ultomiris, Likely to Shorten Infusion Times, Favored for EU Approval
The Committee for Medicinal Products for Human Use (CHMP) has recommended that a new 100 ... -
How to Stay Motivated With a Chronic Disease Like aHUS?
When you’re living with a very rare disorder such as atypical hemolytic uremic syndrome (aHUS), with ... -
Case Report Identifies Mutation in Non-complement Gene That Can Cause aHUS
Researchers have identified a novel mutation in the gene DGKE that can cause atypical hemolytic ... -
The aHUS Tracker
If you have atypical hemolytic uremic syndrome (aHUS), you need to have regular blood tests ... -
60K More aHUS Patients Would Be Alive Worldwide if Given Appropriate Healthcare, Alliance Says
The aHUS Alliance Global Action estimates there could be 84,000 people living with atypical hemolytic ... -
Soliris Safely Prevents aHUS Recurrence in Kidney Transplant Recipients, Study Finds
Soliris (eculizumab) is safe and effective for the prevention of recurrence in people with atypical ... -
Raising Awareness of aHUS
Raising awareness of rare chronic disorders such as atypical hemolytic uremic syndrome, or aHUS, could ... -
aHUS Alliance Seeks Video Project Submissions to Mark Awareness Day
Leading up to atypical hemolytic uremic syndrome (aHUS) Awareness Day on Sept. 24, the aHUS ... -
Self-care Tips for aHUS Patients
For people with atypical hemolytic uremic syndrome (aHUS), self-care is important to help cope with ... -
aHUS Can Co-exist With Autoimmune Disorders, Impeding Diagnosis, Per Report
Atypical hemolytic uremic syndrome (aHUS) can co-exist with autoimmune disorders, complicating the diagnosis of the ... -
Spoon Theory for aHUS Patients
Life can be challenging with a rare and chronic disease like atypical hemolytic uremic syndrome ... -
aHUS Alliance Seeks Input from Ultomiris-treated Patients
To help persuade decision-making entities to make the atypical hemolytic uremic syndrome (aHUS) treatment Ultomiris ... -
aHUS Case Study Describes Intestinal Blood Clots After Kidney Transplant Rejection
The rejection of a kidney transplant was found to be the cause of intestinal bleeding ... -
Soliris vs. Ultomiris for aHUS
Soliris (eculizumab) and Ultomiris (ravulizumab-cwvz) are medications developed by Alexion to treat atypical hemolytic uremic syndrome (aHUS). ... -
Mutations Affecting C3 Protein Activity Linked to aHUS in Case Report
Mutations leading to the overactivation of the complement regulator protein C3 should be recognized as ... -
FAQs About Soliris
Soliris (eculizumab) is a medication developed by Alexion to treat atypical hemolytic uremic syndrome (aHUS). ... -
Rare Inflammatory Arthritis, Still’s Disease, Is Potential aHUS Trigger, Case Report Suggests
A rare type of inflammatory arthritis known as Still’s disease may trigger the development of ... -
FAQs About Ultomiris for aHUS
Ultomiris (ravulizumab-cwvz) is a treatment for atypical hemolytic uremic syndrome (aHUS) that was developed by ... -
Girl’s aHUS May Be Due to Autoimmune Thyroid Disease, Report Finds
Atypical hemolytic uremic syndrome (aHUS) can co-exist with autoimmune thyroid disease, and the two conditions ... -
Mindfulness for People Living With aHUS
It can be challenging to live with a rare and chronic disease like atypical hemolytic ... -
Weekly Ultomiris Injections May Be as Effective as Infusions, Phase 3 Data Suggest
Self-administering Ultomiris (ravulizumab) as weekly under-the-skin injections may be as safe and effective in preventing ... -
Travel Tips for People With aHUS
Atypical hemolytic uremic syndrome (aHUS) is a multi-organ disease that primarily affects kidney function. Therefore, ... -
Ultomiris Approved in Europe to Treat Children and Adults with aHUS
Alexion Pharmaceuticals announced that Ultomiris (ravulizumab) has been approved in the European Union to treat ... -
Planning for the Future When You Have aHUS
Being diagnosed with a rare disease like atypical hemolytic uremic syndrome (aHUS) can be frightening, ... -
Kidney Research UK Honored for Film on Leaps in aHUS Treatment, Knowledge
A short film by Kidney Research UK looking at how scientific research has helped those with atypical hemolytic ... -
Skin Biopsy and How It Can Help Diagnose aHUS
A skin biopsy is one of the tests that doctors can use to confirm a ... -
Clinical Trials for aHUS
Only a few treatment options exist for atypical hemolytic uremic syndrome (aHUS) and there’s currently ... -
What’s a Treatment Plan and Do I Need One With aHUS?
Living with a rare disease like atypical hemolytic uremic syndrome (aHUS) can be challenging. Given ... -
aHUS and Cobalamin C Deficiency Found for 1st Time in Young Woman
The first known case of atypical hemolytic uremic syndrome (aHUS) and adult-onset cobalamin C deficiency, ... -
I Have Just Been Diagnosed With aHUS, Now What?
Finding out that you have a rare disease like atypical hemolytic uremic syndrome (aHUS) can ... -
Ultomiris Safe, Effective at Resolving Life-threatening Complications of aHUS
Ultomiris (ravulizumab-cwvz) is safe and effective at resolving acute and life-threatening complications of atypical hemolytic ... -
How Might aHUS Affect my Heart?
Atypical hemolytic uremic syndrome (aHUS) is a rare disease that affects the kidneys by causing ... -
How to Deal with aHUS Attacks
Atypical hemolytic uremic syndrome (aHUS) is a rare disease characterized by the formation of small ... -
CHMP Favors Ultomiris to Treat Children and Adults with aHUS in EU
The Committee for Medicinal Products for Human Use (CHMP), a branch of the European Medicines ... -
FAQs About Dialysis in aHUS
Atypical hemolytic uremic syndrome (aHUS) is a rare disease characterized by the formation of blood ... -
What Types of Dialysis Are Given to People with aHUS?
Atypical hemolytic uremic syndrome (aHUS) is a rare disease characterized by the formation of blood ... -
Soliris Helps Prevent aHUS Relapses During Pregnancy, Case Report Suggests
Treatment with Soliris (eculizumab) during pregnancy may help prevent subsequent relapses of pregnancy-associated atypical hemolytic uremic ... -
aHUS and Pregnancy
Atypical hemolytic uremic syndrome (aHUS), a rare disease in which small blood clots form in ... -
Is aHUS Genetic?
Atypical hemolytic uremic syndrome (aHUS) is a rare disease characterized by the formation of blood ... -
Dealing with Shortness of Breath When You Have aHUS
Atypical hemolytic uremic syndrome (aHUS) is a genetic disease characterized by the formation of blood ... -
Tekturna Seen to Treat High Blood Pressure Associated with aHUS
A medication for high blood pressure, Tekturna (aliskiren) may be used as an add-on therapy to manage ... -
aHUS Can Arise Following Aortic Dissection, Case Study Says
Atypical hemolytic-uremic syndrome can arise following an aortic dissection — a serious condition in which ... -
Bexsero Vaccine Against MenB Bacteria Only Effective in 50% of aHUS Patients, Study Finds
Bexsero, a vaccine developed as a treatment for serogroup B meningococci — the bacteria that ... -
Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds
The number of treatments for children with rare diseases has grown over the past decade, according ... -
New aHUS-Causing Mutations Found in DGKE Gene in Chinese Patient, Report Says
Scientists have discovered, in a Chinese patient, new mutations in the DGKE gene that can ... -
Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare
In recognition of Rare Disease Day Feb. 29, BioNews Services launched a social media campaign ... -
How Does aHUS Differ from Other Thrombotic Microangiopathies?
Thrombotic microangiopathy (TMA) refers to the formation of blood clots in the small blood vessels of ... -
Advances in Diagnosis, Disease Characterization Needed in Canada to Improve aHUS Outcomes, Registry Study Suggests
Advancements in diagnosis and disease characterization are needed in Canada to improve the clinical outcomes ... -
Patients Suspected of Having aHUS Should be Treated With Soliris Immediately, Case Study Suggests
Patients who have symptoms that indicate severe atypical hemolytic uremic syndrome (aHUS) should be diagnosed ...