Posts by: Young Lee

It’s definitely not a universal truth that every person with Charcot-Marie-Tooth disease (CMT) has negative associations with athletics and grade school gym class. However, because many of us with CMT ... Read more

May 24, 2022May 24, 2022

Finding Joy and Self-love Through Movement

Charcot-Marie-Tooth News Columns

May 10, 2022June 20, 2022

The Importance of Fostering Good Patient-doctor Relationships

Charcot-Marie-Tooth News Columns

Much of what we know about Charcot-Marie-Tooth disease (CMT), and often take for granted, is relatively new information. Many of the breakthroughs in our understanding of treatments, genetic subtypes, orthotics, ... Read more

May 10, 2022May 10, 2022

The Importance of Fostering Good Patient-doctor Relationships

Charcot-Marie-Tooth News Columns

April 19, 2022June 20, 2022

Transforming Frustration With CMT Into Learning

Charcot-Marie-Tooth News Columns

There is a common game that children play, although I’m not aware of an official name for it. The game is pretty simple and involves two players. Player one presents ... Read more

April 19, 2022April 19, 2022

Transforming Frustration With CMT Into Learning

Charcot-Marie-Tooth News Columns

There is a common game that children play, although I’m not aware of an official name for it. The game is pretty simple and involves two players. Player one presents ... Read more

February 22, 2022February 22, 2022

Let’s Work Toward a Future Where CMT Awareness Isn’t Rare

Charcot-Marie-Tooth News Columns

When those of us with Charcot-Marie-Tooth disease (CMT) bring up our condition, a common response is, “So how does that affect your teeth?” It’s a frustrating misconception, and we may ... Read more

February 22, 2022June 20, 2022

Let’s Work Toward a Future Where CMT Awareness Isn’t Rare

Charcot-Marie-Tooth News Columns

February 8, 2022February 8, 2022

What Living With Hope Looks Like for Me

Charcot-Marie-Tooth News Columns

I’m sure most CMTers will agree that Charcot-Marie-Tooth disease (CMT) often sucks. It can feel like there’s nothing redeemable about living with this chronic condition. CMT wears away at our ... Read more

February 8, 2022June 20, 2022

What Living With Hope Looks Like for Me

Charcot-Marie-Tooth News Columns

January 27, 2022January 27, 2022

‘No Cure’ Doesn’t Mean ‘No Hope’

Charcot-Marie-Tooth News Columns

I have the words “Charcot-Marie-Tooth” set as one of my Google alerts. As a result, I’ve come across many articles about CMT and CMTers. I love this. For me, it’s ... Read more

January 11, 2022January 11, 2022

I’m Learning to Be More Open About My Needs

Charcot-Marie-Tooth News Columns

I made my friend from childhood wait while I put on my ankle-foot orthoses (AFOs). We had just finished eating our eggs and toast at a fancy breakfast place, but ... Read more

December 21, 2021December 21, 2021

We Don’t Need to Walk a Mile in Our Braces Alone

Charcot-Marie-Tooth News Columns

When I was a kid, I felt as if I were the only one with Charcot-Marie-Tooth disease (CMT). I felt like I was one of one. Though I did have ... Read more

December 21, 2021June 20, 2022

We Don’t Need to Walk a Mile in Our Braces Alone

Charcot-Marie-Tooth News Columns

When I was a kid, I felt as if I were the only one with Charcot-Marie-Tooth disease (CMT). I felt like I was one of one. Though I did have ... Read more

December 14, 2021December 14, 2021

This CMTer Has Taken Up Tai Chi

Charcot-Marie-Tooth News Columns

If I woke up early enough as a child, I could catch my grandmother, my “Po Po,” doing her tai chi exercises in an open area of our house right ... Read more