Posts by: Mary Chapman

Under rules in the No Surprises Act, insured patients people in the U.S., including those with multiple sclerosis, should no longer receive unexpected medical bills for emergency care or for ... Read more

January 17, 2022January 17, 2022

ALS Community Invited to Help Set Research Priorities in US

ALS News Today

The National Institute of Neurological Disorders and Stroke (NINDS) is asking people across the amyotrophic lateral sclerosis (ALS) community to submit their preferences regarding what should be prioritized to accelerate ALS ... Read more

January 13, 2022January 14, 2022

Takeda Canada Seeks AI, Digital Solutions With Innovation Challenge

Angioedema News

With a goal of finding new digital technologies and artificial intelligence (AI) solutions for patients with rare genetic disorders like hereditary angioedema (HAE), and for inflammatory bowel diseases, Takeda Canada ... Read more

January 11, 2022January 11, 2022

Lief Care and AxeALS Partner to Support Patients’ Nutritional Needs

ALS News Today

A Lief Cares initiative, under its partnership with AxeALS, raised nearly $8,000 for the amyotrophic lateral sclerosis (ALS) community and is providing patients with specially formulated nutritional supplements. Lief Cares is the nonprofit ... Read more

January 10, 2022January 10, 2022

Alzheimer Society of Canada Programs Are ‘First Link’ of Support

Alzheimer's News Today

To ensure that dementia patients and their caregivers have proper support and information, the Alzheimer Society of Canada is calling attention to its First Link program, designed to share a ... Read more

January 7, 2022January 7, 2022

Fabry International Network Seeks Entries for FIN Award 2022

Fabry Disease News

The Fabry International Network (FIN) is calling for global submissions for its annual FIN Award, which recognizes the efforts of patient organizations to educate and unify the Fabry disease community ... Read more

January 6, 2022January 6, 2022

ALS Patient Posts 1st Tweet Using Stentrode Brain Computer Interface

ALS News Today

A recent tweet by an Australian amyotrophic lateral sclerosis (ALS) patient using an implantable brain computer interface called Stentrode is said to be the first time a message has been ... Read more

January 5, 2022January 5, 2022

In Search for Treatments and a Cure, IRSF Invests $2.3M in Research

Rett Syndrome News

To support scientific investigations that seek therapies and a cure for Rett syndrome, the International Rett Syndrome Foundation (IRSF) is investing $2.3 million in research grants. The IRSF worked with ... Read more

December 30, 2021December 30, 2021

Alzheimer’s Association Welcomes Aduhelm Price Cut, But Presses On

Alzheimer's News Today

While calling the recent decision to slash by about half the U.S. list price for Aduhelm (aducanumab) an “important step,” the Alzheimer’s Association continues to advocate for more equitable access to ... Read more

December 30, 2021December 31, 2021

CureDuchenne Invests $1M in Gennao Bio’s Effort to Find Therapies

Muscular Dystrophy News

Genetic medicines company Gennao Bio will use a $1 million CureDuchenne Ventures investment to help expand its gene monoclonal antibody (GMAB) platform technology, which is now applied to rare muscle ... Read more

December 29, 2021December 30, 2021

Webinar on Joint Replacements and Bleeding Disorders Opens HFA Series

Hemophilia News Today

Next year’s Hemophilia Federation of America’s (HFA) monthly educational series for patients, caregivers, and healthcare providers opens on Jan. 18 at 7 p.m. EST with a presentation about joint replacements ... Read more

December 28, 2021December 28, 2021

PRO-ACT Database Wins Healey Center Prize for Innovation in ALS

ALS News Today

The largest collection of amyotrophic lateral sclerosis (ALS) clinical trial data, amassed to help researchers globally find better treatments and potentially a cure for the progressive neurological disorder, was awarded ... Read more

December 28, 2021December 28, 2021

Parkinson’s UK Opens Initiative to Bring Racial Groups Into Research

Parkinson's News Today

A Parkinson’s UK effort to bring greater racial and ethnic inclusivity to research into Parkinson’s disease is moving forward with new collaborations and a diverse steering group. The organization announced its initiative in ... Read more

December 28, 2021December 28, 2021

Broadway Belts for PFF! Set for March 7, in Person and Virtually

COVID-19 News, Pulmonary Fibrosis News

The glam and glitzy affair that is Broadway Belts for PFF! is set for March 7 in New York City. And for the first time, supporters can experience the event ... Read more

December 22, 2021December 23, 2021

Vasculitis Foundation Needs Help Reaching Goals in 2022

ANCA Vasculitis News

Winding up its 35th year, the U.S.-based Vasculitis Foundation (VF) is making its annual call for support for its programs and initiatives, which aim to help existing and future vasculitis ... Read more