Posts by: Mary Chapman

Supporters globally are gearing up for International Ataxia Awareness Day, observed annually on Sept. 25 to raise the profile of a group of progressive neurological disorders that includes Friedreich’s ataxia ... Read more

September 16, 2021September 16, 2021

MGFA Poised for 2021 Coast-to-Coast Walk 2740 Challenge

Myasthenia Gravis News

With the goal of raising funds and awareness to improve care and find a cure for myasthenia gravis (MG), the Myasthenia Gravis Foundation of America (MGFA) is hosting the 2021 ... Read more

September 14, 2021September 14, 2021

MS Trust Welcomes School Year With ‘Awareness Pack’ for Children

Multiple Sclerosis News Today

The MS Trust has put together a free School Awareness Pack aimed at raising the profile of multiple sclerosis (MS) and dispelling some common disease misunderstandings in schools. Designed for ... Read more

September 10, 2021September 10, 2021

Cure SMA, Cytokinetics Renew Joint Efforts to Raise Funds and Awareness

SMA News Today

Cure SMA and Cytokinetics have extended a partnership helping to heighten spinal muscular atrophy (SMA) education, awareness and fundraising, and t0 direct public policy in addressing community needs. To that ... Read more

September 9, 2021September 9, 2021

Parkinson’s UK Opens Campaign to Heighten Awareness, Empathy

Parkinson's News Today

Building upon previous efforts, Parkinson’s UK has opened a monthlong marketing campaign aiming for a better understanding of Parkinson’s disease — particularly among young adults — and of the daily challenges facing ... Read more

September 8, 2021September 8, 2021

10 Families in UK Invited to Try for Free, Daylong ‘Camp in the Cloud’

Hemophilia News Today

Ten U.K. families who are members of the Haemophilia Society have the chance to enjoy a free, virtual Camp in the Cloud experience offered by Over The Wall, a nonprofit specializing in activity camps ... Read more

September 3, 2021September 3, 2021

Patient Groups Team Up to Create First ILD Day on Sept. 15

Pulmonary Fibrosis News

Aiming to get people at risk for lung disorders more quickly diagnosed and treated, nine patient organizations — including the Pulmonary Fibrosis Foundation (PFF) — are collaborating to present the ... Read more

September 2, 2021September 2, 2021

Score of MDA-led Activities Mark September, MD Awareness Month

Muscular Dystrophy News

A myriad of activities are afoot to mark National Muscular Dystrophy Awareness Month, observed each September. The events aim to raise funds for, and heighten awareness of, muscular dystrophy (MD) and ... Read more

September 2, 2021September 2, 2021

Supporters Poised for September, 10th World Alzheimer’s Month

Alzheimer's News Today

Each September, people from around the globe come together to heighten awareness of Alzheimer’s disease and push back against stigmas around dementia. This year marks a decade of advocacy, as ... Read more

September 1, 2021September 2, 2021

It’s September, So Supporters Are Marking CMT Awareness Month

Charcot-Marie-Tooth News

From sporting special gear to joining a “Band Together” class — a workout session using resistance bands to improve range of motion among Charcot-Marie-Tooth patients — supporters are marking CMT ... Read more

September 1, 2021September 1, 2021

‘Rose Up’ Virtual Event Raises Funds, Awareness

Cystic Fibrosis News Today

Cystic fibrosis (CF) patients, caregivers and supporters are invited to participate in Rose Up, a Sept. 17 virtual event aimed at uniting the CF community and raising awareness and funds ... Read more

August 30, 2021August 30, 2021

Virtual Reality Games Take Aim at Trunk Control in Parkinson’s

Parkinson's News Today

A Virginia Commonwealth University (VCU) team is developing immersive virtual reality “games” to help those with movement disorders, including Parkinson’s disease. Led by James S. Thomas, PhD, a physical therapy ... Read more

August 27, 2021August 27, 2021

CDC Funds Five-year Study to Better Define Fragile X Natural History

Fragile X News Today

A Rush University Medical Center scientist will use a $4 million “cooperative agreement” from the Centers for Disease Control and Prevention (CDC) to better define the natural history of fragile ... Read more

August 27, 2021August 27, 2021

Sept. 18 is ‘Unite Day’ for Bleeding Disorders Community

Hemophilia News Today

Bleeding disorder patients and their supporters are encouraged to participate on Sept. 18 in Unite Day, a national virtual event aimed at celebrating the community and underscoring the need for ... Read more

August 27, 2021August 27, 2021

Canadians Urged to ‘Take Action for MS’

COVID-19 News, Multiple Sclerosis News Today

As the federal election looms in Canada, a nation that has one of the world’s highest rates of multiple sclerosis (MS), the MS Society of Canada is urging patients and ... Read more