Posts by: Lori Dunham

It’s funny to think how life’s little moments can suddenly become momentous. Rarely do I start a day thinking it will be spectacular. However, when we intentionally look for the ... Read more

October 11, 2021October 11, 2021

How Will an Appeals Court Ruling on Ruzurgi Affect My Daughter?

Lambert-Eaton News Columns

Most of us in the Lambert-Eaton myasthenic syndrome (LEMS) community have been following a court case involving Ruzurgi (amifampridine), the only LEMS treatment approved by the U.S. Food and Drug ... Read more

October 4, 2021October 4, 2021

Finding Ways to Embrace Inevitable Change

Lambert-Eaton News Columns

“There are far, far better things ahead than anything we leave behind.” – C. S. Lewis As the wife of an active-duty military member for 23 years, I have known ... Read more

September 27, 2021September 27, 2021

Cultivating an Identity Beyond Chronic Illness

Lambert-Eaton News Columns

When my son was in high school, he had an individual education plan for math. This plan accommodated his need for extra help and time in a subject that didn’t ... Read more

September 20, 2021September 20, 2021

How to Advocate for Yourself or a Loved One With LEMS

Lambert-Eaton News Columns

Raising a child with a rare disease like Lambert-Eaton myasthenic syndrome (LEMS) has its challenges. One area that was challenging for me was knowing when to push beyond the bounds ... Read more

September 13, 2021September 13, 2021

The Importance of Connecting With the LEMS Community

Lambert-Eaton News Columns

I felt very alone when our daughter, Grace, was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS). I had no idea where to turn for help. Our family didn’t know anyone with ... Read more

August 30, 2021August 30, 2021

The Tricks That Made Air Travel Easier for My Daughter

Lambert-Eaton News Columns

Most lives have been interrupted by the events of the past two years. People across the globe have had to cancel plans, miss family reunions and weddings, curb travel, and ... Read more

August 23, 2021August 23, 2021

A Day in the Life: Grace Receives a Rituxan Infusion

COVID-19 Columns, Lambert-Eaton News Columns

Every six months, my 16-year-old daughter, Grace, receives a dose of Rituxan (rituximab), the latest and greatest treatment we have added to her regimen for Lambert-Eaton myasthenic syndrome (LEMS). Before ... Read more

August 16, 2021August 16, 2021

Guarding Against Comparing Our Situation With Others

Lambert-Eaton News Columns

Some days are just harder than others. Wouldn’t you agree? Much of the time, I feel like we are moving along nicely on this rare disease journey. We are in ... Read more

August 9, 2021August 9, 2021

How the Hope of Today Helped Me Face the Trauma of Yesterday

Lambert-Eaton News Columns

At this time last week, I found myself back in the place where our journey with Lambert-Eaton myasthenic syndrome (LEMS) began. We were living in Connecticut when our daughter Grace ... Read more

August 2, 2021August 2, 2021

Learning to Overlook Criticism While Using a Disabled Parking Permit

Lambert-Eaton News Columns

One of the first accommodations we made after our daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) was acquiring a disabled person parking permit. One of the prominent symptoms ... Read more

July 26, 2021July 26, 2021

Finding Ways to Stay Cool in the Summer Heat

Lambert-Eaton News Columns

Summer can present a host of problems for those living with Lambert-Eaton myasthenic syndrome (LEMS). Heat and humidity are known to exacerbate muscle weakness. Our family lives in Florida, which ... Read more

July 19, 2021July 19, 2021

How the 5 Stages of Grief Helped Me Face My Daughter’s Health Crisis

Lambert-Eaton News Columns

I consider watching our daughter struggle through the symptoms of Lambert-Eaton myasthenic syndrome (LEMS) one of the most difficult aspects of my life. As I look back on the last ... Read more

July 12, 2021July 12, 2021

Educating Ourselves About ADA Helped Us Make an Informed Job Decision

Lambert-Eaton News Columns

A few weeks ago, I wrote about our daughter’s desire to get a summer job. I was overwhelmed with the limitations that Grace faced in her job search, knowing she ... Read more

June 28, 2021June 28, 2021

Finding Strategies to Slow Our Pace

Lambert-Eaton News Columns

I have spent most of my life in a rush. As someone with a Type A personality, I love to be organized and manage my time efficiently. A great day ... Read more