Posts by: Kristin Neva

Kristin Neva

August 4, 2022August 4, 2022

Circling Back Around: Finding Patterns in Life With ALS

I remember those days when it was hard to get out of the house with our newborns. Two weeks after our daughter was born, my husband, Todd, and I celebrated ... Read more

July 28, 2022July 28, 2022

Rediscovering Music and Memories in Our Marriage and ALS Journey

ALS News Today Columns

Music had been a source of connection and mild contention early in my relationship with my husband, Todd, but it hadn’t been much of either since Todd became paralyzed due ... Read more

July 21, 2022July 21, 2022

Appreciating the Small Victories While Living With ALS

ALS News Today Columns

My husband, Todd, has ALS and is paralyzed, so not only do I cook all the meals, but I also feed him. His meals are often rushed or delayed because ... Read more

July 14, 2022July 14, 2022

Flying ‘Into the Light of a Dark Black Night’ With ALS

ALS News Today Columns

One evening, I took my daily walk in the Nara Nature Park in Houghton, Michigan. As I made my way around a network of wooden boardwalks, through a marsh, and ... Read more

July 7, 2022July 7, 2022

Finding Necessary Distractions From the Challenges of Life With ALS

ALS News Today Columns

It’s nice to have distractions from the difficulty of life with ALS, so I was in a pretty good mood for the past week because my brothers, sister-in-law, and nieces ... Read more

June 30, 2022June 30, 2022

We Are Always Preparing to Manage Life on Our Own

ALS News Today Columns

When my 12-year-old son, Isaac, went to mow the grass last week, he noticed that one of the tires had come off the rim. My husband, Todd, purchased the zero-turn ... Read more

June 23, 2022June 23, 2022

What Risks Are We Willing to Take?

ALS News Today Columns

“What if Todd had aspirated while you were on your spring break trip?” someone asked me. That’s the type of question I’ve asked myself many times over the last decade ... Read more

June 16, 2022June 16, 2022

Reflecting on 12 Years Since the ALS Diagnosis

ALS News Today Columns

“Kristin, if you can’t choose joy for yourself, then do it so Todd’s remaining days and years won’t be miserable,” I wrote in my journal a month after my husband, ... Read more

June 16, 2022June 20, 2022

Reflecting on 12 Years Since the ALS Diagnosis

ALS News Today Columns

“Kristin, if you can’t choose joy for yourself, then do it so Todd’s remaining days and years won’t be miserable,” I wrote in my journal a month after my husband, ... Read more

June 9, 2022June 9, 2022

When There Isn’t Time to See a Tree Grow

ALS News Today Columns

As I left our house to get the kids from school, the tree was gone. A contractor’s crew was removing brush from the ditch with an excavator to extend the ... Read more

June 9, 2022June 20, 2022

When There Isn’t Time to See a Tree Grow

ALS News Today Columns

As I left our house to get the kids from school, the tree was gone. A contractor’s crew was removing brush from the ditch with an excavator to extend the ... Read more

June 2, 2022June 2, 2022

Honoring Family During a Memorial Day Visit to the Cemetery

ALS News Today Columns, COVID-19 Columns

Every Memorial Day, I go with my mom, daughter, and son to the Lakeside Cemetery in Hancock, Michigan, to attend a ceremony honoring veterans. I drive separately in case I ... Read more

June 2, 2022June 20, 2022

Honoring Family During a Memorial Day Visit to the Cemetery

ALS News Today Columns, COVID-19 Columns

Every Memorial Day, I go with my mom, daughter, and son to the Lakeside Cemetery in Hancock, Michigan, to attend a ceremony honoring veterans. I drive separately in case I ... Read more

May 26, 2022June 20, 2022

Getting Dental Work With ALS Is Often Complicated and Stressful

ALS News Today Columns

Last week, my husband, Todd, considered canceling a dentist appointment to get a crown placed over a broken tooth. “Is it really necessary?” he asked. “What’s left of this tooth ... Read more

May 26, 2022May 26, 2022

Getting Dental Work With ALS Is Often Complicated and Stressful

ALS News Today Columns

Last week, my husband, Todd, considered canceling a dentist appointment to get a crown placed over a broken tooth. “Is it really necessary?” he asked. “What’s left of this tooth ... Read more