Posts by: BNS Staff

BNS Staff

June 28, 2022June 28, 2022

In Memoriam: Rick Jobus, Feb. 6, 1958-June 19, 2022

Courtesy of Rick Jobus It is with deep sadness that we inform the ALS News Today community of the passing of our friend and treasured columnist, Rick Jobus, on June ... Read more

June 28, 2022June 29, 2022

In Memoriam: Rick Jobus, Feb. 6, 1958-June 19, 2022

ALS News Today Columns

Courtesy of Rick Jobus It is with deep sadness that we inform the ALS News Today community of the passing of our friend and treasured columnist, Rick Jobus, on June ... Read more

September 25, 2021September 25, 2021

30 Days of PF: My Message Is Hope

Pulmonary Fibrosis News Columns

Photo courtesy of Holly Patient Day 25 of 30 This is Holly Patient’s story: I don’t know exactly when my IPF journey began. Was it on that hike, when I ... Read more

August 24, 2021August 24, 2021

Q&A with Sanofi: Nexviazyme Safely Aids Muscle Strength in LOPD

Pompe Disease News

Newly approved, Nexviazyme (avalglucosidase alfa) is a next-generation, alternative enzyme replacement therapy for late-onset Pompe disease patients starting at age 1. In clinical trials that supported the Aug. 6 approval by the ... Read more

July 29, 2021July 29, 2021

Coming Soon: 31 Days of SMA

SMA News Today Columns

SMA News Today’s 31 Days of SMA campaign will publish one story per day from someone who has been affected by the disease for SMA Awareness Month in August. Stay ... Read more

November 12, 2020November 12, 2020

An Ounce of Prevention is Worth a Pound of Cure (Benjamin Franklin, 1736)

ALS News Today

Feeding tubes play a critical role in ensuring that people with ALS who have difficulty swallowing can get proper nutrition, stay hydrated, and take their medications. One of the significant ... Read more