Posts by: BNS Staff

Photo courtesy of Holly Patient Day 25 of 30 This is Holly Patient’s story: I don’t know exactly when my IPF journey began. Was it on that hike, when I ... Read more

August 24, 2021August 24, 2021

Q&A with Sanofi: Nexviazyme Safely Aids Muscle Strength in LOPD

Pompe Disease News

Newly approved, Nexviazyme (avalglucosidase alfa) is a next-generation, alternative enzyme replacement therapy for late-onset Pompe disease patients starting at age 1. In clinical trials that supported the Aug. 6 approval by the ... Read more

July 29, 2021July 29, 2021

Coming Soon: 31 Days of SMA

SMA News Today Columns

SMA News Today’s 31 Days of SMA campaign will publish one story per day from someone who has been affected by the disease for SMA Awareness Month in August. Stay ... Read more

November 12, 2020November 12, 2020

An Ounce of Prevention is Worth a Pound of Cure (Benjamin Franklin, 1736)

ALS News Today

Feeding tubes play a critical role in ensuring that people with ALS who have difficulty swallowing can get proper nutrition, stay hydrated, and take their medications. One of the significant ... Read more