Posts by: Alliah Czarielle

My husband, Jared, and I have maintained a small garden on our balcony ever since we moved into our new home. We started out with just a few potted herbs, ... Read more

May 9, 2022May 9, 2022

A Good Pair of Shoes Is Important to My Husband With Hemophilia

Hemophilia News Today Columns

Recently, my husband, Jared, and I stumbled upon a local shoemakers’ trade bazaar at the city hall. We just moved to a new home in a brand-new city at the ... Read more

May 2, 2022May 2, 2022

Looking at Environmental Protection Through the Lens of Disability

Hemophilia News Today Columns

Climate change has been a hot topic in our circles lately. We feel it very much in the Philippines, where hot summers in the months of April and May have ... Read more

April 18, 2022April 18, 2022

My Money Advice for a Young Couple With Chronic Illnesses

COVID-19 Columns, Hemophilia News Today Columns

Managing money is an essential skill every couple must learn. From the moment they decide to live together, and especially after they decide to walk down the aisle, the health ... Read more

April 11, 2022April 11, 2022

Living a ‘Demi-normal’ Life With Chronic Illnesses

Hemophilia News Today Columns

“Demi-normal.” It’s a term I’ve coined to describe how my husband, Jared, and I both live with chronic illness. Most people are familiar with the prefix “demi-,” meaning “halfway,” “almost ... Read more

March 28, 2022March 28, 2022

Dentist Appointments Can Be Problematic for Those With Hemophilia

Hemophilia News Today Columns

Last week, my husband, Jared, and I booked a visit to our trusted dentist. We hadn’t had our regular teeth cleaning for over a year because of pandemic restrictions. Alarmed ... Read more

March 21, 2022March 21, 2022

These Are the Kind of Friends We Need

Hemophilia News Today Columns

Meaningful connections with other people are of incredible value to people with chronic illnesses. My husband, Jared, and I can both attest to this, as he lives with severe hemophilia ... Read more

March 14, 2022March 14, 2022

Women’s Day Reminded Me of the Importance of Equality

COVID-19 Columns, Hemophilia News Today Columns

Tuesday morning, March 8. Bright rays of sun had already passed through our floor-length bedroom windows, but my sleep-deprived brain was fighting to keep my eyes shut for a few ... Read more

February 28, 2022February 28, 2022

My New Diagnosis Tightens the Bond I Have With My Husband

Hemophilia News Today Columns

I recently started seeing a psychiatrist again to confirm the state of my mental health. Though I haven’t been experiencing any serious symptoms lately, I thought it might be good ... Read more

February 21, 2022February 21, 2022

Stepping Out of the Echo Chamber Is Crucial for Advocacy

COVID-19 Columns, Hemophilia News Today Columns

It’s election season here in the Philippines, and two presidential candidates, both with large bases of support, are going head-to-head. In light of this, I came across a social media post ... Read more

February 14, 2022February 14, 2022

What My Husband Means When He Says, ‘It’s Nothing’

Hemophilia News Today Columns

“It’s nothing.” That phrase is often associated with women. Many have argued that women tend to obscure their feelings to avoid hurting other people, especially their partners. As a woman ... Read more

February 7, 2022February 7, 2022

Reflections on Pain After an Odd Jaw Bleed

Hemophilia News Today Columns

It happened after a month of celebrations. First, it was Christmas and New Year’s. Then, it was my husband Jared’s birthday. Five days later, our daughter, Cittie, turned 3. Plus, ... Read more

January 31, 2022January 31, 2022

My Husband Is Strong Because of Hemophilia

Hemophilia News Today Columns

A sealed jar that no one can open. A faucet attachment that’s been screwed on too tightly. A piece of furniture that needs to be moved. These are just some ... Read more

January 24, 2022January 24, 2022

Without the Darkness, We Wouldn’t See the Light

Hemophilia News Today Columns

In Chinese philosophy, the concepts of yin and yang represent two opposing forces that come together in synergy to complement each other and create a perfect balance. Their symbols are ... Read more

January 17, 2022January 17, 2022

My Husband Chose a Simple Birthday Celebration

COVID-19 Columns, Hemophilia News Today Columns

My husband, Jared, recently celebrated his birthday. Hooray for 29 years of fighting and surviving! He opted for a low-key celebration at home with me, our daughter, Cittie, and her ... Read more