Posts by: Alliah Czarielle

My husband, Jared, and I are two weeks into our self-sufficiency journey. Just last week, our family moved into a rented condo. We spent some time and money to fix ... Read more

October 11, 2021October 11, 2021

A New Home Brings New Learning Opportunities

Hemophilia News Today Columns

Recently, my husband, Jared, and I decided to move into a new home. We’d been contemplating the idea since our daughter, Cittie, was born almost three years ago. Yet somehow, ... Read more

October 4, 2021October 4, 2021

Holding Out Hope When Changes Occur

Hemophilia News Today Columns

My husband, Jared, and I are on the cusp of making a major life decision. This decision had always been part of our long-term plan. We just didn’t expect it ... Read more

September 27, 2021September 27, 2021

Where Are the Voices of Filipino PWDs?

Hemophilia News Today Columns

I’ve been busy setting up my personal website and blog lately. So far, chronic illness and disability are two of my major themes. My husband, Jared, has hemophilia and a ... Read more

September 20, 2021September 20, 2021

Coping and Staying Connected During COVID-19 Quarantine

COVID-19 Columns, Hemophilia News Today Columns

As of this writing, my family and I have been in quarantine for over a week because my husband, Jared, has COVID-19. We were anxious after he tested positive, because ... Read more

September 13, 2021September 13, 2021

A Positive COVID-19 Test Prompts Concern in Our Household

COVID-19 Columns, Hemophilia News Today Columns

Last week, my husband, Jared, tested positive for COVID-19. He had been experiencing a tickle in his throat for the last couple days but didn’t have other symptoms. Then he ... Read more

September 2, 2021September 2, 2021

Taking Care of My Health in Light of My Husband’s Chronic Illnesses

Hemophilia News Today Columns

Now and then, I think about my own health. I wonder if I’m caring for myself enough, or if my husband’s illnesses might be standing in the way. When health ... Read more

August 30, 2021August 30, 2021

Freelancing Is a Great Option for Persons With Disabilities and Their Carers

Hemophilia News Today Columns

I recently took a second freelance job to help move my family forward despite the challenges of the pandemic. I’ve only been at it for two weeks, but so far ... Read more

August 23, 2021August 23, 2021

Reflections on the Meaning of Support in a Caring Relationship

Hemophilia News Today Columns

During the month of August, my husband, Jared, and I are happily celebrating our third year of marriage. Though the past few months have been rocky on account of the ... Read more

August 16, 2021August 16, 2021

I’m Banking on Radical Acceptance to Reach the Next Step in Life

Hemophilia News Today Columns

When I was younger, I drew up several vision boards outlining my dream life. I simply listed my goals and the age by which I wanted to achieve them. I ... Read more

August 9, 2021August 9, 2021

Hard Work and Perseverance Aren’t Enough — We Must Find Our Edge

Hemophilia News Today Columns

I’ve been diving deep into entrepreneurship lately. I’m striving to learn everything I can about business — and trying to understand its darkest secrets — in hopes of attaining a ... Read more

August 2, 2021August 2, 2021

An Olympic Weightlifter’s Struggle Hits Close to Home

Hemophilia News Today Columns

It was a celebratory day for the Philippines on July 26 when female powerlifter Hidilyn Diaz won gold at the Tokyo Olympics. It was her country’s first ever Olympic gold ... Read more

July 26, 2021July 26, 2021

Learning the Truth About Privilege, and Being Grateful for Ours

COVID-19 Columns, Hemophilia News Today Columns

I recently came across an NBC News Think essay about the oft-overlooked privilege of being able to focus on one’s studies while in college. It reminded me of how my ... Read more

July 19, 2021July 19, 2021

What Happens When the Carer Needs Care?

COVID-19 Columns, Hemophilia News Today Columns

I’ve been sick for most of this week with digestive issues. This is a chronic condition for me, but it always bothers me when it happens. I’m weak and unable ... Read more

July 12, 2021July 12, 2021

How Persons With Disability Can Improve Unhealthy Traits

Hemophilia News Today Columns

One of the good things about being married to a person with disability (PwD) is that I can talk to my husband, Jared, objectively about disability and chronic illness. We ... Read more