What Will Our Daughter Remember?

What Will Our Daughter Remember?

324043

What Will Our Daughter Remember?

Parenting a child with Sanfilippo syndrome results in many forms of grief. There is the diagnosis grief, when you mourn the loss of the future you thought your child had. There is regression grief, as you watch your child’s skills slip away day by day, stolen by a monster you can’t prevent from entering your home. There’s anticipatory grief, the breath-stealing sadness that consumes you when you think about a future where your child won’t…

You must be logged in to read/download the full post.