Community Invited to Share Stories for Fabry Awareness Month

Community Invited to Share Stories for Fabry Awareness Month

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Community Invited to Share Stories for Fabry Awareness Month

Members of the Fabry disease community are invited to share their stories — those of patients, caregivers, family members, and advocates — and to use social media to celebrate Fabry Awareness Month this April. For this year’s campaign, the global Fabry International Network, known as FIN, has launched a Cool Down Fabry initiative that aims to help parents and caregivers recognize the symptoms of the lysosomal storage disorder in children. Intolerance to heat is a common…

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