Rare Disease Day Panel Opens Window to Patient Experience

Rare Disease Day Panel Opens Window to Patient Experience

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Rare Disease Day Panel Opens Window to Patient Experience

BioNews, the publisher of this website, hosted a virtual panel discussion on Rare Disease Day 2022, taking a deeper dive into what it’s like to live with a rare disease, including conversations about advocacy, mental health, survivor’s guilt, treatment of minority patients, and more. The Monday event, “A Window Into RARE,” was hosted by Liza Bernstein, a patient advocate and three-time breast cancer survivor. Panelists included columnists Paris Dancy of Cushing’s Disease News, Michelle Gonzaba of…

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