The Gift of Grief Is Connection

The Gift of Grief Is Connection

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The Gift of Grief Is Connection

March 5, 2015, was the worst day of my life. I had stumbled upon a story from the “Today” show about a little girl with Sanfilippo syndrome, and my heart instantly knew what my brain wanted to deny: My 4-year-old son, Will, had the same rare genetic disorder, which my husband and I unknowingly passed down to him. There’s no cure or treatment. He had a terminal prognosis and would likely die in his teens.…

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