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Caregiving Was a Catalyst to Telling Rare Disease Stories

I have several roles here at BioNews, the parent company that publishes Pulmonary Fibrosis News and other rare disease websites. I started with this humble column and eventually joined the forums team as a co-moderator. My most recently acquired title is “columns lead,” in which I manage and mentor several fellow columnists who write for our many rare disease websites. It’s exciting and rewarding to help columnists grow as they share their own rare disease…