Finding the Words to Describe Our Relationship With ALS

Finding the Words to Describe Our Relationship With ALS

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Finding the Words to Describe Our Relationship With ALS

I was struck by the wording in an advertisement in Quest magazine, a publication of the Muscular Dystrophy Association, that invited people “coping with amyotrophic lateral sclerosis (ALS)” to participate in an observational study. I think of “coping” as not only dealing with something difficult, but doing so effectively. How am I coping? Some days, I cope with my husband Todd’s ALS better than others, depending on the disease’s progression. Did he hit a new…

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