My daughter Abby has Sanfilippo syndrome, which is a terminal, genetic disorder. She will likely leave this earth before me. That thought alone is quite a lot to absorb and process. It forces me to think long term. How many more years will she be here with me? What will our lives look like in several years after the disease has progressed? How old will she be when she passes? But what I want to…

You must be logged in to read/download the full post.