Father-daughter Duo Double Up to Find FSHD, Rare Disease Cures

Father-daughter Duo Double Up to Find FSHD, Rare Disease Cures

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Father-daughter Duo Double Up to Find FSHD, Rare Disease Cures

When his daughter, Meredith Huml, was diagnosed — finally — with facioscapulohumeral (FSHD) muscular dystrophy in 2004, Raymond Huml immediately jumped into action, researching everything he could about the disease and reaching out to the FSHD Society. “We went to the FSHD Society and looked up what they had,” Raymond Huml said in a video interview with Muscular Dystrophy News from his home in Morrisville, North Carolina. “And I memorized everything on that site.” He…

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