7 US States Launch RDAC Advocacy Groups With NORD Support

7 US States Launch RDAC Advocacy Groups With NORD Support

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7 US States Launch RDAC Advocacy Groups With NORD Support

Seven new U.S. states have launched a Rare Disease Advisory Council, or RDAC, in the last year with the support of the National Organization for Rare Disorders (NORD), an advocacy group for the millions of Americans living with rare diseases, to include Lambert-Eaton myasthenic syndrome (LEMS). It is estimated that there are more than 7,000 rare diseases affecting more than 25 million Americans. In 2015, a group of patients, caregivers, families, and providers in North…

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