I’m Not Giving Up, I’m Just Adapting to My Disease Progression

I’m Not Giving Up, I’m Just Adapting to My Disease Progression

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I’m Not Giving Up, I’m Just Adapting to My Disease Progression

I’ve said it before and I’ll say it again: Life with the progressively degenerative disease, Friederich’s ataxia (FA), is hard. Having FA means adapting to relentless disease progression that sneaks into all the parts of my life — physical, mental, and emotional — and complicates them. It’s a difficult way to journey through life, but I’m oddly used to it. Adjusting has become routine. That’s not to say that my soul is not weary from…

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