Foundation Helps Sponsor Drafting of Guidelines for Juvenile Batten

Foundation Helps Sponsor Drafting of Guidelines for Juvenile Batten

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Foundation Helps Sponsor Drafting of Guidelines for Juvenile Batten

The Beyond Batten Disease Foundation (BBDF) is sponsoring Care Beyond Diagnosis in its efforts to draft international guidelines to help clinicians counsel and treat patients with CLN3 disease, or juvenile Batten disease. Based on clinical evidence and consensus-based recommendations, the guidelines are designed to improve patient care and disease management, as well as facilitate reimbursements. “Having the support of BBDF is a huge achievement for our team,” Jeffrey Donohue, co-CEO of Care Beyond Diagnosis, said in…

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