A Day in My Shoes: The Small, Everyday Problems of EB

A Day in My Shoes: The Small, Everyday Problems of EB

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A Day in My Shoes: The Small, Everyday Problems of EB

Many people living with rare disease often worry about health issues, government support, insurance, and being accepted by society. But we may also face minor, everyday problems. I was born with epidermolysis bullosa (EB), a rare condition that makes my skin and mucus membranes very fragile. With the wrong kind of friction, my skin will tear easily, leading to blisters or wounds. When I was little, I was often covered in bandages from head to…

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