Finding Meaning in Life With a Genetic Disease

Finding Meaning in Life With a Genetic Disease

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Finding Meaning in Life With a Genetic Disease

My husband Aubrey’s hereditary ATTR amyloidosis journey is included in a forthcoming book titled “Rare Disease Drug Development: Clinical, Scientific, Patient, and Caregiver Perspectives.” He feels very touched that the editor saw fit to reach out to him. Emotional healing occurs when we can provide insight into a situation — in this case, one that has affected his family for three generations. Aubrey shared his story to explain what he’s been through since his diagnosis…

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