As an Adult With SMA, I Need Access to Evrysdi, Too

As an Adult With SMA, I Need Access to Evrysdi, Too

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As an Adult With SMA, I Need Access to Evrysdi, Too

Let’s start this story about Evrysdi (risdiplam) from the beginning. About a year ago, the chronic neuropathy in my scalp that had been bothering me for three years worsened to a point of concern. It started as a mild and slightly nauseating throbbing from the back of my skull that I ignored and kept from my mum. My caregiver and I tried to resolve it by changing my posture and the location where I sat.…

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