I am a scleroderma patient. Saying or writing that is hard for me. It took 20 years of being a patient to feel confident enough to say it out loud. I’ve had systemic scleroderma my entire adult life, and it’s changed the way I live, how I do my job, where I go, and even how I get there. I was diagnosed at 19, and I’ve since had to learn to adjust my expectations about…

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